Abstract
Abstract
Research has clearly identified that Americans do not die well. Many die alone, isolated and in pain in hospitals. Improvements will come only with greater individual and societal commitment. One way to ensure change is through expanded community involvement in end of life care reform. The Community-State Partnerships to Improve End-of-Life Care are serving as a model for building community awareness and involvement. Home health is in an opportune position to take a leadership role in reform by convening community coalitions and by bringing the home health philosophy and perspective to these coalitions.
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References
1.
American Health Decisions. (1997 ). The quest to die with dignity: An analysis of American’s values, opinions, and attitudes concerning end of life care. Atlanta, GA: Author.
2.
Blacksher, E., & Christopher, M. (2002). On the road to reform: Advocacy and activism in end-of-life care. Journal of Palliative Medicine, 5(1).
3.
Institute of Medicine Committee on Care at the End of Life. (1997 ). Approaching death: Improving care at the end of life. Washington, DC: National Academy Press.
4.
Robert Wood Johnson Foundation (1997 ). Last acts task force on palliative care: Precepts of palliative care. Princeton, NJ: Author.
5.
Steinhauser, K. E., Christakis, N. A., Clipp, E. C., McNeilly, M., McIntyre, L., Tulsky, J. A. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. Journal of the American Medical Association, 284(19).
6.
SUPPORT Principal Investigators. (1995). A controlled trial to improve care for seriously ill hospitalized patients: The study to understand prognoses and preferences for outcomes and risks of treatments. Journal of the American Medical Association, 274(20).
7.
Yankelovich, D. (1991 ). Coming to public judgment: Making democracy work in a complex world. Syracuse, NY: Syracuse University Press.