This study investigated family adaptation during the period when an adult son or daughter with mental retardation is adjusting to initial entry into supported employment. The Resiliency Model of Family Stress Adjustment and Adaptation (McCubbin & McCubbin, 1991) was used as an analytical framework. Results provided evidence that (1) family strength dimensions are related to family adaptation and (2) there are families in need of support services.
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References
1.
AlbinJ., & RhodesL. (1993). Changeover to community employment: The problem of realigning organizational culture, resources, and community roles. In Consensus validation conference: Supported employment for people with severe mental retardation: Resource papers. Washington, DC: National Institute on Disability and Rehabilitation Research.
2.
AldenderferM., & BlashfieldR. (1984). Cluster analysis. Bevery Hills, CA: Sage.
3.
AngellR. (1936). The family encounters the depression. New York: Charles Scribner.
4.
BakerF. (1972). Numerical taxonomy for education researchers. Review of Educational Research, 42, 345–358.
5.
BervenN., & HubertL. (1977). Complete-link clustering as a complement to factor analysis: A comparison to factor analysis used alone. Journal of Vocational Behavior, 10, 69–81.
6.
BrothersonM., HoughtonJ., TurnbullA., BronickiG., Roeder-GordonC., SummerJ., & TurnbullH. (1988). Transition into adulthood: Parental planning for sons and daughters with disabilities. Transition into Adulthood, 23, 165–174.
7.
CarterE., & McGoldrickM. (1980). The family life cycle and family therapy: An overview. In CarterE. & McGoldrickM. (Eds.), The family life cycle: A framework for family therapy (pp. 3–20). New York: Gardner Press.
8.
Chadsey-RuschJ., GonzalezP., TinesJ., & JohnsonJ. (1989). Social ecology of the work place: Contextual variables affecting social interactions of employees with and without mental retardation. American Journal on Mental Retardation, 94(2), 141–151.
9.
DeVellisR. (1991). Scale development: Theory and applications. Newbury Park, CA: Sage Publications.
10.
FaillaS. (1990). Families of children with developmental disabilities: A causal model of family adaptation (Doctoral dissertation, Louisiana State University Medical Center, 1990). Dissertation Abstracts International, 51(2), 661.
11.
FergusonP., FergusonD., & JonesD. (1988). Generations of hope: Parental perspectives on the transitions of their children with severe retardation from school to adult life. Journal of the Association of Persons with Severe Handicaps, 13, 177–187.
12.
HillR. (1949). Families under stress: Adjustment to the crises of war separation and reunion. Westport, CT: Greenwood Press.
13.
HillR. (1958). Social stresses on the family: Generic features of families under stress. Social Casework, 39(2 3), 139–150.
14.
IrvinL. (1993). Families coping with transition: Themes/dilemmas. Paper presented at the Division on Career Development and Transition International Conference.
15.
IrvinL., ThorinE., & SingerG. (1993). Family related roles and considerations: Transitions to adulthood by youth with developmental disabilities. Journal of Vocational Rehabilitation, 3(2), 38–46.
16.
KosciulekJ. (1994). Dimensions of family coping with head injury. Rehabilitation Counseling Bulletin, 37, 244–258.
17.
LaveeY., McCubbinH., & OlsonD. (1987). The effect of stressful life events and transitions on family functioning and well-being. Journal of Marriage and the Family, 49, 857–873.
18.
LaveeY., McCubbinH., & PattersonJ. (1985). The Double ABCX model of family stress and adaptation: An empirical test by analysis of structural equations with latent variables. Journal of Marriage and the Family, 47, 811–825.
19.
Lignugaris-KraftB., SalzbergC., RuleS., & StowitschekJ. (1988). Social-vocational skills of workers with and without mental retardation in two community employment sites. Mental Retardation, 26, 297–305.
20.
MankD. (1995). The underachievement of supported employment: A call for reinvestment. Journal of Disability Policy Studies, 5(2), 1–24.
21.
MarshD. (1992). Families and mental retardation: New directions in professional practice. New York: Praeger.
22.
McCubbinH. (1991a). FIRA-G family index of regenerativity and adaptation general. In McCubbinH. I. & ThompsonA. I. (Eds.), Family assessment inventories for research and practice (pp. 295–312). Madison, WI: University of Wisconsin.
23.
McCubbinH. (1991b). FIRA-M family index of regenerativity and adaptation military. In McCubbinH. I. & ThompsonA. 1. (Eds.), Family assessment inventories for research and practice (pp. 315–338). Madison, WI: University of Wisconsin.
24.
McCubbinH., & PattersonJ. (1983). The family stress process: The Double ABC-X model of adjustment and adaptation. In McCubbinH. I., SussmanM. B. & PattersonJ. M. (Eds.), Social stress and the family: Advances and developments in family stress theory and research (pp. 7–37). New York: Hawarth Press.
25.
McCubbinH., JoyC., CaubleA., ComeauJ., PattersonJ., & NeedleR. (1980). Family stress and coping: A decade review. Journal of Marriage and the Family, 42, 855–871.
26.
McCubbinH., ThompsonA., PirnerP., & McCubbinM. (1988). Family types and family strengths. Edina, MN: Bellweather Press.
27.
McCubbinM., & HuangS. (1989). Family strengths in the care of handicapped children: Targets for intervention. Family Relations, 38, 436–443.
28.
McCubbinM., & McCubbinH. (1987). Family stress theory and assessment: The T-Double ABCX model of adjustment and adaptation. In McCubbinH. I. & ThompsonA. I. (Eds.), Family assessment inventories for research and practice (pp. 3–32). Madison, WI: University of Wisconsin.
29.
McCubbinM., & McCubbinH. (1991). Family stress theory and assessment: The Resiliency Model of Family Stress, Adjustment and Adaptation. In McCubbinH. I. & ThompsonA. I. (Eds.), Family assessment inventories for research and practice (pp. 3–32). Madison, WI: University of Wisconsin.
30.
McCubbinM., McCubbinH., & ThompsonA. (1991). Family hardiness index. In McCubbinH. I. & ThompsonA. I. (Eds.), Family assessment inventories for research and practice (pp. 127–133). Madison, WI: University of Wisconsin.
31.
McLindenS. (1990). Mothers and fathers reports of the effects of a young child with special needs on the family. Journals of Early Intervention, 14, 249–259.
32.
McShaneR. (1987). An analysis of the effects of chronic illness, family stress, coping and resources for management on family adaptation (Doctoral dissertation, University of Wisconsin Madison, 1987). Dissertation Abstracts International, 48(9), 277.
33.
NeugartenB. (1976). Adaptation and the life cycle. The Counseling Psychologist, 6(1), 16–20.
34.
OlsonD., McCubbinH., BarnesH., LarsenA., MuxenM., & WilsonM. (1983). Families: What makes them work. Beverly Hills, CA: Sage Publications.
35.
OrrR., CameronS., & DayD. (1991). Coping with stress in children who have mental retardation: An evaluation of the Double ABCX model. American Journal on Mental Retardation, 95, 444–450.
36.
PattersonJ., BuddJ., GoetzD., & WarwickW. (1993). Family correlates of a 10-year pulmonary health trend in cystic fibrosis. Pediatrics, 91, 383–389.
37.
PattersonJ., McCubbinH., & WarwickW. (1990). The impact of family functioning on health changes in children with cystic fibrosis. Social Science and Medicine, 31, 159–164.
38.
PerainoJ. (1992). Post-21 follow-up studies: How do special education graduates fare? In WehmanP. (Ed.), Life beyond the classroom: Transition strategies for young people with disabilities (pp. 21–43). Baltimore: Paul H. Brookes Publishing.
39.
RevellW., WehmanP., KregelJ., WestM., & RayfieldR. (1994). Supported employment for persons with severe disabilities: Positive trends in wages, models and funding. Education and Training in Mental Retardation and Development Disabilities, 29, 256–264.
40.
RuckerR., & BrowderD. (1993). From sheltered to integrated employment: Current public practice and future directions. In Consensus validation conference: Supported employment for people with severe mental retardation: Resource Papers. Washington, DC: National Institute on Disability and Rehabilitation Research.
41.
RuschF., JohnsonJ., & HughesC. (1990). Analysis of co-worker involvement in relation to level of disability versus placement approach among supported employees. Journal of the Association of Persons with Severe Handicaps, 15(1), 32–39.
42.
SchillingR., SchinkerS., & KirkhamM. (1985). Coping with a handicapped child: Differences between mothers and fathers. Social Science and Medicine, 21, 857–863.
43.
SchroederL., SjoquistD., & StephanP. (1986). Understanding regression analysis: An introductory guide. Newbury Park, CA: Sage Publications.
44.
ShaferM., RiceM., MetzlerH., & HaringM. (1989). A survey of nondisabled employees attitudes toward supported employees with mental retardation. Journal of the Association for Persons with Severe Handicaps, 14, 137–146.
45.
SPSS Inc. (1992). SPSS for Windows base system user's guide. Chicago, IL: SPSS Inc.
46.
SuezleM., & KeenanV. (1981). Changes in family support networks over the life cycle of mentally retarded persons. American Journal of Mental Deficiency, 86, 267–274.
47.
ThorinE., & IrvinI. (1992). Family stress associated with transition to adulthood of young people with severe disabilities. Journal of the Association of Persons with Severe Handicaps, 17, 31–39.
48.
TurnbullA., SummersJ., & BrothersonM. (1986). Family life cycle: Theoretical and empirical implications and future directions for families with mentally retarded members. In GallagherJ. & VietzeP. (Eds.), Families of handicapped persons: Research, programs, and policy issues (pp. 45–66). Baltimore: Paul H. Brookes.
49.
WehmanP., & KregelJ. (1992). Supported employment: Growth and impact. In WehmanP., SaleP. & ParentW. (Eds.), Supported employment strategies for integration of workers with disabilities (pp. 3–28). Boston: Andover Medical Publishers.
50.
WehmanP., & KregelJ. (in press). At the crossroads: Supported employment ten years later. Journal of the Association of Persons with Severe Handicaps.
51.
WehmanP., SaleP., & ParentW. (1992). Supported employment: Strategies for integration of workers with disabilities. Boston: Andover Medical Publishers.
52.
WiklerL. (1986). Periodic stresses of families of older mentally retarded children: An exploratory study. American Journal of Mental Deficiency, 90, 703–706.
53.
WiklerL., WasowM., & HatfieldE. (1981). Chronic sorrow revisited: Parents vs. professional depiction of the adjustment of parents of mentally retarded children. American Journal of Orthospychiatry, 51, 63–70.
