This study investigated the role of breast cancer survivors in a computer-mediated social support (CMSS) group for women with breast cancer. Applying a computer-aided content analytic method, the present study examined the differences in support provision between survivors and newly diagnosed patients. This study further investigated the impacts of survivor-provided social support on psychosocial adjustment of newly diagnosed patients. The results revealed that, compared with newly diagnosed patients, breast cancer survivors provided more emotional and informational support. Receiving emotional support from survivors contributed to an improvement in the quality of life and the depression of patients. The effects of survivor-provided informational support were not significant.
AlpersG. W.WinzelbergA. J.ClassenC.RobertsH.DevP.KoopmanC.Barr TaylorC. (2005). Evaluation of computerized text analysis in an Internet breast cancer support group. Computers in Human Behavior, 21, 361-376. doi:10.1016/j.chb.2004.02.008
2.
AshburyF. D.CameronC.MercerS. L.FitchM.NielsenE. (1998). One-on-one peer support and quality of life for breast cancer patients. Patient Education and Counseling, 35, 89-100. doi:10.1016/s0738-3991(98)00035-4
3.
BakerF.DennistonM.HafferS. C.LiberatosP. (2009). Change in health-related quality of life of newly diagnosed cancer patients, cancer survivors, and controls. Cancer, 115, 3024-3033. doi:10.1002/cncr.24330
4.
BarakA.Boniel-NissimM.SulerJ. (2008). Fostering empowerment in online support groups. Computers in Human Behavior, 24, 1867-1883. doi:10.1016/j.chb.2008.02.004
5.
BatenburgA.DasE. (2014). Emotional coping differences among breast cancer patients from an online support group: A cross-sectional study. Journal of Medical Internet Research, 16(2), e28. doi:10.2196/jmir.2831
6.
BellizziK. M.BlankT. O. (2006). Predicting posttraumatic growth in breast cancer survivors. Health Psychology, 25, 47-56. doi:10.1037/0278-6133.25.1.47
7.
BraithwaiteD. O.WaldronV. R.FinnJ. (1999). Communication of social support in computer-mediated groups for people with disabilities. Health Communication, 11, 123-151. doi:10.1207/s15327027hc1102_2
8.
BurgessC.CorneliusV.LoveS.GrahamJ.RichardsM.RamirezA. (2005). Depression and anxiety in women with early breast cancer: Five year observational cohort study. British Medical Journal, 330, 702-705. doi:10.1136/bmj.38343.670868.D3
9.
ButlerL. D.KoopmanC.ClassenC.SpiegelD. (1999). Traumatic stress, life events, and emotional support in women with metastatic breast cancer: Cancer-related traumatic stress symptoms associated with past and current stressors. Health Psychology, 18, 555-560. doi:10.1037/0278-6133.18.6.555
10.
BuunkB. P.CollinsR. L.TaylorS. E.VanYperenN. W.DakofG. A. (1990). The affective consequences of social comparison: Either direction has its ups and downs. Journal of Personality and Social Psychology, 59, 1238-1249. doi:10.1037/0022-3514.59.6.1238
11.
CalhounL. G.TedeschiR. G. (1990). Positive aspects of critical life problems: Recollections of grief. OMEGA: Journal of Death and Dying, 20, 265-272. doi:10.2190/qdy6-6pqc-kqwv-5u7k
12.
CameronC.AshburyF. D.IversonD. C. (1997). Perspectives on reach to recovery and CanSurmount: Informing the evaluation model. Cancer Prevention Control, 1, 102-107. Available from http://europepmc.org/
13.
CampbellH. S.PhaneufM. R.DeaneK. (2004). Cancer peer support programs—Do they work?Patient Education and Counseling, 55, 3-15. doi:10.1016/j.pec.2003.10.001
14.
ChenA. T. (2012). Exploring online support spaces: Using cluster analysis to examine breast cancer, diabetes and fibromyalgia support groups. Patient Education and Counseling, 87, 250-257. doi:10.1016/j.pec.2011.08.017
15.
ChibA. (2013). The promise and peril of mHealth in developing countries. Mobile Media & Communication, 1, 69-75. doi:10.1177/2050157912459502
16.
ChibA.van VelthovenM. H.CarJ. (2015). mHealth adoption in low-resource environments: A review of the use of mobile healthcare in developing countries. Journal of Health Communication, 20, 4-34. doi:10.1080/10810730.2013.864735
17.
CohenS. (2004). Social relationships and health. American Psychologist, 59, 676-684. doi:10.1037/0003-066X.59.8.676
18.
CohenS.UnderwoodL. G.GottliebB. H. (2000). Social support measurement and intervention: A guide for health and social scientists. New York, NY: Oxford University Press.
19.
CohenS.WillsT. A. (1985). Stress, social support, and the buffering hypothesis. Psychological Bulletin, 98, 310-357. doi:10.1037/0033-2909.98.2.310
20.
CordovaM. J.CunninghamL. L. C.CarlsonC. R.AndrykowskiM. A. (2001). Posttraumatic growth following breast cancer: A controlled comparison study. Health Psychology, 20, 176-185. doi:10.1037/0278-6133.20.3.176
21.
CoulsonN. S.BuchananH.AubeeluckA. (2007). Social support in cyberspace: A content analysis of communication within a Huntington’s disease online support group. Patient Education and Counseling, 68, 173-178. doi:10.1016/j.pec.2007.06.002
22.
CummingG. (2009). Inference by eye: Reading the overlap of independent confidence intervals. Statistics in Medicine, 28, 205-220. doi:10.1002/sim.3471
23.
CuradoM. P. (2011). Breast cancer in the world: Incidence and mortality [Cáncer de mama en el mundo: incidencia y mortalidad]. Salud Pública de México, 53, 372-384. Available from http://www.scielosp.org/
24.
CutronaC. E.SuhrJ. A. (1994). Social support communication in the context of marriage: An analysis of couples’ supportive interactions. In BurlesonB. R.AlbrechtT. L.SarasonI. G. (Eds.), Communication of social support (pp. 113-135). Thousand Oaks, CA: SAGE.
25.
DavisC.WilliamsP.ParleM.RedmanS.TurnerJ. (2004). Assessing the support needs of women with early breast cancer in Australia. Cancer Nursing, 27, 169-174.
26.
DégliseC.SuggsL. S.OdermattP. (2012). SMS for disease control in developing countries: A systematic review of mobile health applications. Journal of Telemedicine and Telecare, 18, 273-281. doi:10.1258/jtt.2012.110810
27.
DennisC.-L. (2003). Peer support within a health care context: A concept analysis. International Journal of Nursing Studies, 40, 321-332. doi:10.1016/S0020-7489(02)00092-5
28.
DunnJ.StegingaS. K.RosomanN.MillichapD. (2003). A review of peer support in the context of cancer. Journal of Psychosocial Oncology, 21(2), 55-67. doi:10.1300/J077v21n02_04
29.
FalzonC.RadelR.CantorA.d’Arripe-LonguevilleF. (2015). Understanding narrative effects in physical activity promotion: The influence of breast cancer survivor testimony on exercise beliefs, self-efficacy, and intention in breast cancer patients. Supportive Care in Cancer, 23, 761-768. doi:10.1007/s00520-014-2422-x
FestingerL. (1954). A theory of social comparison processes. Human Relations, 7, 117-140. doi:10.1177/001872675400700202
33.
FrazierP.GreerC.GabrielsenS.TennenH.ParkC.TomichP. (2013). The relation between trauma exposure and prosocial behavior. Psychological Trauma, 5, 286-294. doi:10.1037/a0027255
34.
Giese-DavisJ.Bliss-IsbergC.CarsonK.StarP.DonaghyJ.CordovaM. J.. . . SpiegelD. (2006). The effect of peer counseling on quality of life following diagnosis of breast cancer: An observational study. Psycho-Oncology, 15, 1014-1022. doi:10.1002/pon.1037
35.
Global Burden of Disease Cancer Collaboration. (2015). The global burden of cancer 2013. JAMA Oncology, 1, 505-527. doi:10.1001/jamaoncol.2015.0735
36.
GottliebB. H.BergenA. E. (2010). Social support concepts and measures. Journal of Psychosomatic Research, 69, 511-520. doi:10.1016/j.jpsychores.2009.10.001
37.
GrayR.FitchM.DavisC.PhillipsC. (1997). A qualitative study of breast cancer self-help groups. Psycho-Oncology, 6, 279-289. doi:10.1002/(SICI)1099-1611(199712)6:4<279::AID-PON280>3.0.CO;2-0
38.
GremoreT. M.BaucomD. H.PorterL. S.KirbyJ. S.AtkinsD. C.KeefeF. J. (2011). Stress buffering effects of daily spousal support on women’s daily emotional and physical experiences in the context of breast cancer concerns. Health Psychology, 30, 20-30. doi:10.1037/a0021798
39.
GriesserA. C.VlastosG.MorelL.BeaumeC.SappinoA. P.HallerG. (2011). Socio-demographic predictors of high support needs in newly diagnosed breast cancer patients. European Journal of Cancer Care, 20, 466-474. doi:10.1111/j.1365-2354.2010.01190.x
40.
GurmanT. A.RubinS. E.RoessA. A. (2012). Effectiveness of mHealth behavior change communication interventions in developing countries: A systematic review of the literature. Journal of Health Communication, 17, 82-104. doi:10.1080/10810730.2011.649160
41.
GustafsonD. H.HawkinsR.PingreeS.McTavishF.AroraN. K.MendenhallJ.SalnerA. (2001). Effect of computer support on younger women with breast cancer. Journal of General Internal Medicine, 16, 435-445. doi:10.1046/j.1525-1497.2001.016007435.x
42.
GustafsonD. H.ShawB. R.IshamA.BakerT.BoyleM. G.LevyM. (2011). Explicating an evidence-based, theoretically informed, mobile technology-based system to improve outcomes for people in recovery for alcohol dependence. Substance Use & Misuse, 46, 96-111. doi:10.3109/10826084.2011.521413
43.
HanJ. Y.ShawB. R.HawkinsR. P.PingreeS.MctavishF.GustafsonD. H. (2008). Expressing positive emotions within online support groups by women with breast cancer. Journal of Health Psychology, 13, 1002-1007. doi:10.1177/1359105308097963
44.
HannahM. E.MidlarskyE. (2005). Helping by siblings of children with mental retardation. American Journal on Mental Retardation, 110, 87-99. doi:10.1352/0895-8017(2005)110<87:HBSOCW>2.0.CO;2
45.
Hanson FrostH.SumanV. J.RummansT. A.DoseA. M.TaylorM.NovotnyP.. . . EvansR. (2000). Physical, psychological and social well-being of women with breast cancer: The influence of disease phase. Psycho-Oncology, 9, 221-231.
46.
HarrisonJ. D.YoungJ. M.PriceM. A.ButowP. N.SolomonM. J. (2009). What are the unmet supportive care needs of people with cancer? A systematic review. Supportive Care in Cancer, 17, 1117-1128. doi:10.1007/s00520-009-0615-5
47.
HayesA. F.KrippendorffK. (2007). Answering the call for a standard reliability measure for coding data. Communication Methods and Measures, 1, 77-89. doi:10.1080/19312450709336664
48.
HelgesonV. S.CohenS.SchulzR.YaskoJ. (2000). Group support interventions for women with breast cancer: Who benefits from what?Health Psychology, 19, 107-114. doi:10.1037/0278-6133.19.2.107
49.
HelgesonV. S.GottliebB. H. (2000). Social support. In CohenS.UnderwoodL. G.GottliebB. H. (Eds.), Social support measurement and intervention: A guide for health and social scientists (pp. 221-245). New York, NY: Oxford University Press.
50.
Howard-AndersonJ.GanzP. A.BowerJ. E.StantonA. L. (2012). Quality of life, fertility concerns, and behavioral health outcomes in younger breast cancer survivors: A systematic review. Journal of the National Cancer Institute, 104, 386-405. doi:10.1093/jnci/djr541
51.
HøybyeM. T.JohansenC.Tjornhoj-ThomsenT. (2005). Online interaction: Effects of storytelling in an Internet breast cancer support group. Psycho-Oncology, 14, 211-220. doi:10.1002/pon.837
52.
IkedaA.KawachiI.IsoH.IwasakiM.InoueM.TsuganeS. (2013). Social support and cancer incidence and mortality: The JPHC study cohort II. Cancer Causes & Control, 24, 847-860. doi:10.1007/s10552-013-0147-7
53.
KahnJ. G.YangJ. S.KahnJ. S. (2010). “Mobile” health needs and opportunities in developing countries. Health Affairs, 29, 252-258. doi:10.1377/hlthaff.2009.0965
54.
KimE.HanJ. Y.MoonT. J.ShawB. R.ShahD. V.McTavishF. M.GustafsonD. H. (2012). The process and effect of supportive message expression and reception in online breast cancer support groups. Psycho-Oncology, 21, 531-540. doi:10.1002/pon.1942
55.
KimJ.HanJ. Y.ShawB.McTavishF.GustafsonD. (2010). The roles of social support and coping strategies in predicting breast cancer patients’ emotional well-being: Testing mediation and moderation models. Journal of Health Psychology, 15, 543-552. doi:10.1177/1359105309355338
56.
KornblithA. B.HerndonJ. E.ZuckermanE.ViscoliC. M.HorwitzR. I.CooperM. R., & Leukemia Group, B. (2001). Social support as a buffer to the psychological impact of stressful life events in women with breast cancer. Cancer, 91, 443-454. doi:10.1002/1097-0142(20010115)91:2<443::aid-cncr1020>3.0.co;2-z
57.
KreuterM.BuskirkT.HolmesK.ClarkE.RobinsonL.SiX.MathewsK. (2008). What makes cancer survivor stories work? An empirical study among African American women. Journal of Cancer Survivorship, 2, 33-44. doi:10.1007/s11764-007-0041-y
58.
LeydonG. M.BoultonM.MoynihanC.JonesA.MossmanJ.BoudioniM.McPhersonK. (2000). Cancer patients’ information needs and information seeking behaviour: In depth interview study. British Medical Journal, 320, 909-913. doi:10.1136/bmj.320.7239.909
59.
LiebermanM. A.GoldsteinB. A. (2006). Not all negative emotions are equal: The role of emotional expression in online support groups for women with breast cancer. Psycho-Oncology, 15, 160-168. doi:10.1002/pon.932
60.
LiebermanM. A.RussoS. (2002). Self help groups and the Internet: Breast cancer newsgroups. International Journal of Self Help and Self Care, 1, 323-344.
61.
MacveanM. L.WhiteV. M.Sanson-FisherR. (2008). One-to-one volunteer support programs for people with cancer: A review of the literature. Patient Education and Counseling, 70, 10-24. doi:10.1016/j.pec.2007.08.005
62.
MakabeR.HullM. M. (2000). Components of social support among Japanese women with breast cancer. Oncology Nursing Forum, 27, 1381-1390. Available from http://europepmc.org/
63.
ManneS.OstroffJ.WinkelG.GoldsteinL.FoxK.GranaG. (2004). Posttraumatic growth after breast cancer: Patient, partner, and couple perspectives. Psychosomatic Medicine, 66, 442-454. doi:10.1097/01.psy.0000127689.38525.7d
64.
McQueenA.KreuterM. W. (2010). Women’s cognitive and affective reactions to breast cancer survivor stories: A structural equation analysis. Patient Education and Counseling, 81(Suppl. 1), S15-S21. doi:10.1016/j.pec.2010.08.015
65.
MeierA.LyonsE. J.FrydmanG.ForlenzaM.RimerB. K. (2007). How cancer survivors provide support on cancer-related Internet mailing lists. Journal of Medical Internet Research, 9(2), e12. doi:10.2196/jmir.9.2.e12
66.
MeyerA.CoroiuA.KornerA. (2015). One-to-one peer support in cancer care: A review of scholarship published between 2007 and 2014. European Journal of Cancer Care, 24, 299-312. doi:10.1111/ecc.12273
67.
MeyerowitzB. E. (1980). Psychosocial correlates of breast cancer and its treatments. Psychological Bulletin, 87, 108-131. doi:10.1037/0033-2909.87.1.108
68.
NamkoongK.ShahD. V.HanJ. Y.KimS. C.YooW.FanD.GustafsonD. H. (2010). Expression and reception of treatment information in breast cancer support groups: How health self-efficacy moderates effects on emotional well-being. Patient Education and Counseling, 81(Suppl.), S41-S47.
69.
NgH. Y.GrivaK.LimH. A.TanJ. Y.MahendranR.GrivaK.BlockA. (2016). The burden of filial piety: A qualitative study on caregiving motivations amongst family caregivers of patients with cancer in Singapore. Psychology & Health, 31, 1293-1310. doi:10.1080/08870446.2016.1204450
70.
OwenJ. E.KlapowJ. C.RothD. L.TuckerD. C. (2004). Use of the Internet for information and support: Disclosure among persons with breast and prostate cancer. Journal of Behavioral Medicine, 27, 491-505. doi:10.1023/B:JOBM.0000047612.81370.f7
71.
PérezM.SefkoJ. A.KsiazekD.GollaB.CaseyC.MargenthalerJ. A.. . . JeffeD. B. (2014). A novel intervention using interactive technology and personal narratives to reduce cancer disparities: African American breast cancer survivor stories. Journal of Cancer Survivorship, 8, 21-30. doi:10.1007/s11764-013-0308-4
72.
PetosaR. L.SmithL. H. (2014). Peer mentoring for health behavior change: A systematic review. American Journal of Health Education, 45, 351-357. doi:10.1080/19325037.2014.945670
73.
RadloffL. S. (1977). The CES-D scale. Applied Psychological Measurement, 1, 385-401. doi:10.1177/014662167700100306
74.
ReichM.LesurA.Perdrizet-ChevallierC. (2008). Depression, quality of life and breast cancer: A review of the literature. Breast Cancer Research and Treatment, 110, 9-17. doi:10.1007/s10549-007-9706-5
75.
RinehartM. E. (1994). The reach to recovery program. Cancer, 74(Suppl. 1), 372-375. doi:10.1002/cncr.2820741324
76.
RubensteinE. L. (2015). “They are always there for me”: The convergence of social support and information in an online breast cancer community. Journal of the Association for Information Science and Technology, 66, 1418-1430. doi:10.1002/asi.23263
77.
RuttenL. J. F.AroraN. K.BakosA. D.AzizN.RowlandJ. (2005). Information needs and sources of information among cancer patients: A systematic review of research (1980–2003). Patient Education and Counseling, 57, 250-261. doi:10.1016/j.pec.2004.06.006
78.
Sanson-FisherR.GirgisA.BoyesA.BonevskiB.BurtonL.CookP., & Supportive Care Review, G. (2000). The unmet supportive care needs of patients with cancer. Cancer, 88, 226-237. doi:10.1002/(SICI)1097-0142(20000101)88:1<226::AID-CNCR30>3.0.CO;2-P
79.
SharfB. F. (1997). Communicating breast cancer on-line: Support and empowerment on the Internet. Women & Health, 26, 65-84. doi:10.1300/J013v26n01_05
80.
SiegelR. L.MillerK. D.JemalA. (2015). Cancer statistics, 2015. CA: A Cancer Journal for Clinicians, 65, 5-29. doi:10.3322/caac.21254
81.
Silverman-DresnerT. (1990). Self-help groups for women who have had breast cancer. Imagination, Cognition and Personality, 9, 237-243. doi:10.2190/14gd-87a3-g7w6-7jre
82.
StantonA. L.Danoff-BurgS.CameronC. L.CameronC. L.SniderP. R.KirkS. B. (1999). Social comparison and adjustment to breast cancer: An experimental examination of upward affiliation and downward evaluation. Health Psychology, 18, 151-158. doi:10.1037/0278-6133.18.2.151
83.
StaubE.VollhardtJ. (2008). Altruism born of suffering: The roots of caring and helping after victimization and other trauma. American Journal of Orthopsychiatry, 78, 267-280. doi:10.1037/a0014223
84.
SullivanC. F. (2003). Gendered cybersupport: A thematic analysis of two online cancer support groups. Journal of Health Psychology, 8, 83-103. doi:10.1177/1359105303008001446
85.
SuttonL. B.ErlenJ. A. (2006). Effects of mutual dyad support on quality of life in women with breast cancer. Cancer Nursing, 29, 488-498.
86.
TausczikY. R.PennebakerJ. W. (2010). The psychological meaning of words: LIWC and computerized text analysis methods. Journal of Language and Social Psychology, 29, 24-54. doi:10.1177/0261927x09351676
87.
TaylorS. E.LobelM. (1989). Social comparison activity under threat: Downward evaluation and upward contacts. Psychological Review, 96, 569-575. doi:10.1037/0033-295X.96.4.569
88.
TigheM.MolassiotisA.MorrisJ.RichardsonJ. (2011). Coping, meaning and symptom experience: A narrative approach to the overwhelming impacts of breast cancer in the first year following diagnosis. European Journal of Oncology Nursing, 15, 226-232. doi:10.1016/j.ejon.2011.03.004
89.
TorreL. A.BrayF.SiegelR. L.FerlayJ.Lortet-TieulentJ.JemalA. (2015). Global cancer statistics, 2012. CA: A Cancer Journal for Clinicians, 65, 87-108. doi:10.3322/caac.21262
90.
UssherJ.KirstenL.ButowP.SandovalM. (2006). What do cancer support groups provide which other supportive relationships do not? The experience of peer support groups for people with cancer. Social Science & Medicine, 62, 2565-2576. doi:10.1016/j.socscimed.2005.10.034
91.
van Uden-KraanC. F.DrossaertC. H.TaalE.ShawB. R.SeydelE. R.van de LaarM. A. (2008). Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis, or fibromyalgia. Qualitative Health Research, 18, 405-417. doi:10.1177/1049732307313429
92.
VivarC. G.McQueenA. (2005). Informational and emotional needs of long-term survivors of breast cancer. Journal of Advanced Nursing, 51, 520-528.
93.
VogelB. A.BengelJ.HelmesA. W. (2008). Information and decision making: Patients’ needs and experiences in the course of breast cancer treatment. Patient Education and Counseling, 71, 79-85. doi:10.1016/j.pec.2007.11.023
94.
WaltherJ.BoydS. (2002). Attraction to computer-mediated social support. In LinC. A.AtkinD. (Eds.), Communication technology and society: Audience adoption and uses (pp. 153-188). Cresskill, NJ: Hampton Press.
95.
WeissT. (2004). Correlates of posttraumatic growth in married breast cancer survivors. Journal of Social and Clinical Psychology, 23, 733-746. doi:10.1521/jscp.23.5.733.50750
96.
WinzelbergA. J.ClassenC.AlpersG. W.RobertsH.KoopmanC.AdamsR. E.. . . TaylorC. B. (2003). Evaluation of an Internet support group for women with primary breast cancer. Cancer, 97, 1164-1173. doi:10.1002/cncr.11174
97.
WoodJ. V.TaylorS. E.LichtmanR. R. (1985). Social comparison in adjustment to breast cancer. Journal of Personality and Social Psychology, 49, 1169-1183. doi:10.1037/0022-3514.49.5.1169
98.
WrightK. B. (2016). Communication in health-related online social support groups/communities: A review of research on predictors of participation, applications of social support theory, and health outcomes. Review of Communication Research, 4, 65-87. doi:10.12840/issn.2255-4165.2016.04.01.010
