Community-Based Long-Term Care for the Elderly: Evaluation Practice Reconsidered

Applebaum, R.A. , and C.D. Austin. A Guide to the Evaluation of Long-Term Care Case Management Programs. Seattle: University of Washington, Institute on Aging, 1986.

Austin, C.D. , J. Low , E.A. Roberts , and K. O'Connor. Case Management: A Critical Review. Seattle: University of Washington, Pacific Northwest Long-Term Care Gerontology Center, 1985 .

Benjamin, A.E., Jr. "Community-Based Long Term Care." In Long Term Care of the Elderly: Public Policy Issues. Edited by C. Harrington , R. J. Newcomer , C. L. Estes , and Associates. Beverly Hills, CA: Sage, 1985, 197-211.

Berkeley Planning Associates. Evaluation of Coordinated Community-Oriented Long-Term Care Demonstration Projects. Berkeley, CA, 1985.

*Birnbaum, H. , G. Gaumer , F. Pratter , and R. Burke. Nursing Home Without Walls: Evaluation of the New York State Long-Term Home Health Program. Contract No. 500-79-0052. Prepared for Health Care Financing Administration. Cambridge, MA: Abt Associates, 1984.

Braun, K.L. , and C.L. Rose. "Goals and Characteristics of Long-Term Care Programs: An Analytic Model." The Gerontologist 29 (February 1989): 51-58.

* Brown, T.E. , D. Blackman , R.M. Learner , and M.B. Witherspoon . South Carolina Community Long-Term Care Project: Report of Findings. Grant No. 11-P-97493/4. Prepared for Health Care Financing Administration. Spartanburg, SC: South Carolina State Health and Human Services Finance Commission, 1985.

Capitman, J.A. , B. Haskins , and J. Bernstein. "Case Management Approaches in Community-Oriented Long-Term Care Demonstrations." The Gerontologist 26 (August 1986): 398-404.

Carcagno, G.J. , R. Applebaum , J. Christianson , B. Phillips , and J. Will. The Evaluation of the National Long Term Care Demonstration: The Planning and Operational Experience of the Channeling Projects. Vol. 1. Princeton, NJ: Mathematica Policy Research, 1986.

Carcagno, G.J. , and P. Kemper. "An Overview of the Channeling Demonstration and Its Evaluation ." Health Services Research 23 (April 1988): 1-22.

Chen, H.T. , and P.H. Rossi. "Evaluating with Sense: A Theory-Driven Approach." Evaluation Review 7 (June 1983): 283-302.

Christianson, J.B. "The Effect of Channeling on Informal Caregiving." Health Services Research 23 (April 1988): 99-117.

Clark, T.A. "Documentation as Evaluation: Capturing Context, Process, Obstacles, and Success." Evaluation Practice 9 (February 1988): 21-31.

Cohen, E.S. "The Elderly Mystique: Constraints on the Autonomy of the Elderly With Disabilities." The Gerontologist 28 (1988 Supplement): 24-31.

Conrad, K.J. , P. Hanrahan , and S.L. Hughes. "The Use of Profiles and Models in Evaluating Program Environments ." In Evaluating Program Environments. Edited by K. J. Conrad and C. Roberts-Gray. San Francisco: Jossey-Bass , 1988, 25-43.

Cook, T. , and D. Campbell. Quasi-Experimentation. Chicago: Rand McNally, 1979.

Cronbach, L. Designing Evaluations of Educational and Social Programs. San Francisco: Jossey-Bass, 1982 .

Eckert, J.K. , and C. Beall. "Approaches to Measuring Functional Capacity Cross Culturally ." In New Methods for Old Age Research: Anthropological Alternatives . Edited by C. L. Fry and J. Keith. Chicago: Loyola University of Chicago, Center for Urban Policy , 1980, 27-56.

Eustis, N.N. , and S.K. Patten. "The Effectiveness of Long-Term Care." In Research Instruments in Social Gerontology. Vol. 3, Health Program Evaluation, and Demography. Edited by D. J. Mangen and W. A. Peterson. Minneapolis : University of Minnesota Press, 1984, 217-316.

Fisher, B.J. "Illness Career Descent in Institutions for the Elderly." Qualitative Sociology 10 ( 1987): 132-45.

Green, L.W. , and F.M. Lewis. Measurement and Evaluation in Health Education and Health Promotion. Palo Alto, CA: Mayfield , 1986.

Greene, J.G. "Stakeholder Participation and Utilization in Program Evaluation." Evaluation Review 12 (April 1988 ): 91-116.

Greene, V.L. "Nursing Home Admission Risk and the Cost-Effectiveness of Community-Based Long-Term Care: A Framework for Analysis." Health Services Research 22, no. 5 (December 1987): 655-69.

Haber, D. "In-Home and Community-Based Long-Term Care Services: A Review of Recent AOA Projects Involving Self-Determination." Journal of Applied Gerontology 5 (July 1986): 37-50.

Hamm, L.V. , T.M. Kickham , and D.A. Cutler. "Research, Demonstrations, and Evaluations." In Long-Term Care: Perspectives from Research and Demonstrations. Edited by R. J. Vogel and H. C. Palmer. Rockville, MD: Aspen, 1985, 167-253.

Hedrick, S.C. , and T.S. Inui. "The Effectiveness and Cost of Home Care: An Information Synthesis." Health Services Research 20 (February 1986, Part II): 851-80.

Hennessy, C.H. 'Autonomy and Risk: The Role of Client Wishes in Community-Based Long-Term Care." The Gerontologist 20 (October 1989): 633-39.

"Risks and Resources: Service Allocation Decisions in a Consolidated Model of Long-Term Care." Journal of Applied Gerontology 6 (June 1987): 139-55.

Hennessy, C.H. , and J.K.M. Shen. "Sources of 'Unreliability' in Multidisciplinary Team Assessment of the Elderly." Evaluation Review 10 (April 1986): 178-92.

Hughes, S.L. "Apples and Oranges? A Review of Evaluations of Community-Based Long-Term Care." Health Services Research 20 (October 1985): 461-88.

Hughes, S.L. , L.M. Manheim , P.L. Edelman , and K.J. Conrad. "Impact of Long-Term Home Care on Hospital and Nursing Home Cost and Use." Health Services Research 22 (April 1987): 19-47.

Kane, R.A. "Long-Term Care." In Encyclopedia of Social Work. Vol. 2, 18th ed. Silver Spring, MD: National Association of Social Workers , 1987, 59-72.

"The Noblest Experiment of Them All: Learning from the National Channeling Evaluation" Health Services Research 23 (April 1988): 189-98.

Kane, R.A. , and R.L. Kane. Assessing the Elderly: A Practical Guide to Measurement . Lexington, MA: Lexington Books , 1981.

Long-Term Care: Principles, Programs, and Policies. New York: Springer, 1987.

"Relections on Quality Control." Generations 13 (Winter 1989): 63-68.

Kayser-Jones, J. S. Old , Alone , and Neglected : Care of the Aged in Scotland and the United States. Berkeley, CA: University of California Press, 1981.

Kemper, P. "Overview of the Findings." Health Services Research 23 (April 1988): 161-74.

Kemper, P. , R. Applebaum , and M. Harrigan. A Systematic Comparison of Community Care Demonstrations . Washington, DC: National Center for Health Services Research, 1987a.

"Community Care Demonstrations: What Have We Learned?" Health Care Financing Review 8 (Summer 1987b): 87-100.

Lawrence, J.E.S. "Engaging Recipients in Development Evaluation: The 'Stakeholder' Approach ." Evaluation Review 13 (June 1989): 243-56.

Lincoln, Y.S. , and E.G. Guba. "But Is It Rigorous?: Trustworthiness and Authenticity in Naturalistic Evaluation." In Evaluation Studies Review Annual . Edited by W. R. Shadish, Jr. and C. S. Reichardt. Beverly Hills, CA: Sage, 1987, 425-36.

Lösel, F. , and W.W. Wittman. "The Relationship of Treatment Integrity and Intensity to Outcome Criteria." In International Innovations in Evaluation Methodology. Edited by R. F. Conner and M. Hendricks. San Francisco : Jossey-Bass, 1989, 97-107.

Maddox, G.L. "An Information System for Planning and Evaluating Geriatric Care: The Duke Older Americans Resources and Services Program." In Collecting Evaluation Data: Problems and Solutions. Edited by L. Burstein , H. E. Freeman , and P. H. Rossi. Beverly Hills, CA: Sage, 1985, 247-62.

*Mathematica Policy Research. The Evaluation of the National Long Term Care Demonstration: Final Report. Princeton, NJ, 1986.

* Maurer, M. , N.L. Ross , Y. Bigos , M. Papagiannis , and T. Springfield. Final Report and Evaluation of the Florida Pentastar Project. Report E-84-7. Tallahassee: Florida Department of Health and Rehabilitative Services, 1984.

* Miller, L.S. , M.L. Clark , L.J. Walter , et al. The Comparative Evaluation of the Multipurpose Senior Services Project-1981-1982: Final Report. Grant No. 11-P-97553/9-04. Prepared for Health Care Financing Administration. University of California , Berkeley, MSSP Evaluation, 1984 .

Moos, R.H. 'Assessing the Program Environment: Implications for Program Evaluation and Design." In Evaluating Program Environments. Edited by K. J. Conrad and C. Roberts-Gray. San Francisco: Jossey-Bass, 1988, 7-23.

Nydegger, C.N. "Measuring Morale." In New Methods for Old Age Research: Anthropological Alternatives. Edited by C. L. Fry and J. Keith. Chicago: Loyola University of Chicago, Center for Urban Policy, 1980, 177-203.

Ory, M.G. "The Burden of Care: A Familial Perspective." Generations 10 (Fall 1985): 14-17.

Palmer, H.C. "The System of Provision." In Long-Term Care: Perspectives from Research and Demonstrations. Edited by R. V. Vogel and H. C. Palmer. Rockville, MD: Aspen , 1985a, 1-62.

. " The Alternatives Question." In Long-Term Care: Perspectives from Research and Demonstrations. Edited by R. J. Vogel and H. C. Palmer. Rockville, MD: Aspen , 1985b, 255-305.

Perkins, D.N.T. "Evaluating Social Interventions: A Conceptual Schema." Evaluation Quarterly 1 (November 1977): 639-56.

* Pinkerton, A. , and D. Hill. Long-Term Care Demonstration Project of North San Diego County: Final Report. Grant No. 95-P-97325/9-04. Prepared for Health Care Financing Administration. San Diego: Allied Home Health Association, 1984.

* Price, L.C. , H.M. Ripps , and D.M. Piltz. Third Year Evaluation of the Monroe County Long-Term Care Program, Inc. HCFA Grant No. 05-011-P90-130 and AOA Grant No. 2A-50A. Prepared for Health Care Financing Administration. Silver Spring, MD: Macro Systems, Inc., 1980.

Quadagno, J. , C. Simms , D.A. Squier , and G. Walker. "Long-Term Care Comimunity Services and Family Caregiving ." In Aging, Health, and Family. Edited by T. H. Brubaker. Newbury Park, CA: Sage, 1987, 116-28.

Rabin, D.L. , and P. Stockton. Long-Term Care for the Elderly: A Factbook. New York: Oxford University Press, 1987.

Rakowski, W. , and A.N. Dengiz. "A Health Belief Interview for Clinical Geriatrics" The Gerontologist 24 (April 1984 ): 120-23.

Rezmovic, E.L. "Assessing Treatment Implementation Among the Slings and Arrows of Reality." Evaluation Review 8 (April 1984): 187-204.

Roberts-Gray, C., and A. Scheirer. "Checking the Congruence Between a Program and Its Organizational Environment." In Evaluating Program Environments. Edited by K. J. Conrad and C. Roberts-Gray. San Francisco : Jossey-Bass, 1988, 63-82.

Rossi, P. , and H. Freeman. Evaluation: A Systematic Approach. 2d ed. Beverly Hills, CA: Sage, 1982.

* Sainer, J.S. , R.S. Brill , A. Horowitz , M. Weinstein , J. Dono , and N. Korniloff. Delivery of Medical and Social Services to the Homebound Elderly: A Demonstration of Intersystem Coordination. HCFA Grant No. 95-P-97492 and AOA Grant No. 90-AM-2187. Prepared for Health Care Financing Administration and Administration on Aging. New York: New York City Department for the Aging, 1984.

Scheirer, M.A. "Program Participants' Positive Perceptions: Psychological Conflict of Interest in Social Program Evaluation." Evaluation Quarterly 2 (February 1978): 53-70.

* Seidl, F. , R. Applebaum , C. Austin , and K. Mahoney. Delivering In-Home Services to the Aged and Disabled—The Wisconsin Experiment. Grant No. 11-P-255549/5-05. Prepared for the Health Care Financing Administration. Madison: Fay McBeath Institute, University of Wisconsin, 1980.

Delivering In-Home Services to the Aged and Disabled: The Wisconsin Experiment . Lexington, MA: Lexington Books , 1983.

Shadish, W. , and R. Epstein. "Patterns of Program Evaluation Among Members of the Evaluation Research Society and Evaluation Network." Evaluation Review 11 (October 1987): 555-90.

* Shealey, M.J. , B.C. Hicks , and J.L. Quinn. Triage: Coordinated Delivery of Services to the Elderly, Final Report. Grant No. HS02563. Prepared for National Center for Health Services Research. Plainville, CT: Triage, Inc., 1979.

* Skellie, A. , F. Favor , C. Tudor , and R. Strauss. Alternative Health Services, Final Report. Grant No. 11-P-90334/4-05 . Prepared for Health Care Financing Administration. Atlanta, GA: Georgia Department of Medical Assistance, 1982.

*Sklar, B. W., and L. J. Weiss. Project OPEN: Final Report. Grant No. 95-P-97231/9-04. Prepared for Health Care Financing Administration. San Francisco: Mount Zion Hospital and Medical Center, 1983.

Tobin, S.S. , and R. Toseland. "Models of Services for the Elderly." In Handbook of Gerontological Services. Edited by A. Monk. New York: Van Nostrand Reinhold, 1985, 549-67.

U. S. General Accounting Office. Constraining National Health Care Expenditures: Achieving Quality Care At An Affordable Cost. Washington, DC, 1985.

Weiss, C.H. "Toward the Future of Stakeholder Approaches in Evaluation." In Evaluation Studies Review Annual. Edited by R. Conner , D. Altman , and C. Jackson. Beverly Hills, CA: Sage 1984, 255-68.

Weissert, W.G. "Seven Reasons Why It Is So Difficult to Make Community-Based Long-Term Care Cost-Effective." Health Services Research 20 (October 1985): 423-33.

"The National Channeling Demonstration: What We Knew, Know Now, and Still Need to Know." Health Services Research 23 (April 1988): 175-97.

Weissert, W.G. , C.M. Cready , and J.E. Pawelak. "The Past and Future of Home-and Community-Based Long-Term Care." The Milbank Memorial Fund Quarterly 66 (1988): 309-88.

Werner, J. , and A. Hoffman. Understanding the Nature of Elderly Client Coping: Implications for Home Care Practice. Seattle: University of Washington, Institute on Aging, 1986.

White, M. , and M. Grisham. The Structure and Processes of Case Management in California's Multipurpose Senior Services Project. Berkeley, CA: University of California, Berkeley, MSSP Evaluation, 1982.

Zawadski, R.T. "The Long Term Care Demonstrations: What Are They and Why They Came into Being." In Community-Based Systems of Long Term Care. Edited by R. T. Zawadski. Home Health Services Quarterly 4 (Fall/Winter 1983, Special issue): 5-19.

* Zawadski, R.T. , J. Shen , C. Yordi , and J.C. Hansen. On Lok's Community Care Organization for Dependent Adults: A Research and Demonstration Project (1978-1983): Final Report. HCFA Grant No. 95-P-97293 and AOA Grant No. 18-P-00156/9. Prepared for Health Care Financing Administration. San Francisco: On Lok, 1984.