American Society of Human Genetics
. (1998). ASHG statement, professional disclosure of familial genetic information. American Journal of Human Genetics, 62, 474-483.
2.
American Society of Human Genetics
, & American College of Medical Genetics. (1995). Points to consider: Ethical, legal, and psychosocial implications of genetic testing in children and adolescents. American Journal of Human Genetics, 57(1), 233-241.
3.
Bachinski, L. L.
, & Roberts, R. (1996). Familial hypertrophic cardiomyopathy: Diagnostic and therapeutic implications of recent genetic studies. Molecular Medicine Today, 2(9), 387-393.
4.
Chapple, A.
, & May, C. (1996). Genetic knowledge and family relationships: Two case studies. Health and Social Care in the Community, 4(3), 166-171.
5.
Charron, P.
, Carrier, L., Dubourg, O., Tesson, F., Desnos, M., Richard, P., Bonne, G., Guicheney, P., Hainque, B., Bouhour, J. B., Mallet, A., Feingold, J., Schwartz, K., & Komajda, M. (1997). Penetrance of familial hypertrophic cardiomyopathy. Circulation Research, 80(2), 107-114.
6.
Collins, F. S.
(1997a). Molecular genetics in clinical practice 1, sequencing the human genome. Hospital Practice, 32(1), 35-43, 46-49, 53-54.
7.
Collins, F. S.
(1997b). Preparing health professionals for the genetic revolution [Editorial]. Journal of the American Medical Association, 278(15), 1285-1286.
8.
Collins, F.
, & Galas, D. (1993). A new five-year plan for the U.S. Human Genome Project. Science, 262, 43-46.
9.
Collins, F.
, & Jenkins, J. (1997). Implications of the Human Genome Project for the nursing profession. In F. R. Lashley (Ed.), The genetics revolution: Implications for nursing(pp. 9-11). Washington, DC: American Academy of Nursing.
10.
Feetham, S. L.
(1997). The genetics revolution: Outcomes and recommendations. In R. Lashley (Ed.), The genetics revolution: Implications for nursing (pp. 39-46). Washington, DC: American Academy of Nursing.
11.
Feetham, S. L.
(in press). Families and the genetic revolution: Implications for primary health care, education, and research. Families, Systems & Health.
12.
Fink, L.
, & Collins, F. S. (1997). The Human Genome Project: View from the National Institutes of Health. Journal of the American Medical Women’s Association, 52(1), 4-7, 15.
13.
Forissier, J. F.
, Carrier, L., Farza, H., Bonne, G., Bercovici, J., Richard, P., Hainque, B., Townsend, P. J., Yacoub, M. H., Faure, S., Dubourg, O., Millaire, A., Hagege, A. A., Desnos, M., Komajda, M., & Schwartz, K. (1996). Codon 102 of the cardiac troponin T gene is a putative hot spot for mutations in familial hypertrophic cardiomyopathy. Circulation, 94(12), 3069-3073.
14.
Hudson, K. L.
, Rothenberg, K .H., Andrews, L. B., Kahn, M. J., & Collins, F. S. (1995). Genetic discrimination and health insurance: An urgent need for reform. Science, 270(5235), 391-393.
15.
International Society of Nurses in Genetics
, & American Nurses Association. (1998). Statement on the scope of standards of genetics clinical nursing practice. Washington, DC: American Nurses Association Publishing.
16.
Lessick, M.
, & Williams, J. (1994). The Human Genome Project: Implications for nursing. MedSurg Nursing, 3(1), 49-58.
17.
McKenna, W. J.
, Spirito, P., Desnos, M., Dubourg, O., & Komajda, M. (1997). Experience from clinical genetics in hypertrophic cardiomyopathy: Proposal for new diagnostic criteria in adult members of affected families. Heart, 77(2), 130-132.
18.
National Institutes of Health
, & National Human Genome Research Institute. (1997). NHGRI home page [Online]. Available: http://www.nhgri.nih.gov
19.
Salkovskis, P. M.
, & Rimes, K. A. (1997). Predictive genetic testing: Psychological factors. Journal of Psychosomatic Research, 43(5), 477-487.
20.
Struewing, J. P.
, Hartge, P., Wacholder, S., Baker, S. M., Berlin, M., McAdams, M., Timmerman, M. M., Brody, L. C., & Tucker, M. A. (1997). The risk of cancer associated with specific mutations of BRCA1 and BRCA2 among Ashkenazi Jews. New England Journal of Medicine, 336(20), 1401-1408.
21.
Thomson, E.
(1997). Ethical, legal, social and policy issues in genetics. In F. R. Lashley (Ed.), The genetics revolution: Implications for nursing (pp. 15-25). Washington, DC: American Academy of Nursing.
22.
Wilfond, B. S.
, Rothenberg, K. H., Thomson, E. J., & Lerman, C. (1997). Cancer genetic susceptibility testing: Ethical and policy implications for future research and clinical practice. Journal of Law, Medicine & Ethics, 25, 243-251.
