Among developed countries, the reported prevalence of juvenile idiopathic arthritis (JIA) varies from 16 to 150 per 100,000. Previous reviews have identified risks faced by children with chronic conditions and indicate a relationship between parent/family characteristics and child adaptation. This analysis provides a mixed-methods synthesis of 29 research reports addressing the intersection of family life and JIA. Data were extracted using a structured template, and effect sizes were calculated for reported relationships between variables. Results were coded using a scheme that differentiated types of family factors. Meta-analysis revealed a moderately strong positive relationship between parent and child psychological functioning, and a medium negative relationship between family conflict and child psychosocial well-being, and parental depression and child physical functioning. Thematic analysis of qualitative results identified parenting challenges related to pain management and regimen demands. Results indicate that interventions to enhance parenting competence and family relationships may improve caregiver and patient outcomes.
AchenbachT. M.EdelbrockC. (1983). Manual for the Child Behavior Checklist, Revised Child Behaviour Profile. Burlington: Department of Psychiatry, University of Vermont.
2.
AchenbachT. M.EdelbrockC. (1987). Manual for the Youth Self-Report, Revised Youth Self-Report Profile. Burlington: Department of Psychiatry, University of Vermont.
3.
AkikusaJ.AllenR. (2002). Reducing the impact of rheumatic diseases in childhood. Best Practice & Research Clinical Rheumatology, 16, 333-345. doi:10.1053/berh.2002.0232
4.
AldridgeM. D. (2008). How do families adjust to having a child with chronic kidney disease? A systematic review. Nephrology Nursing Journal, 35, 157-162.
5.
AndrewsN.ChaneyJ.MullinsL.WagnerJ.HommelK.JarvisJ. (2009). The differential effect of child age on the illness intrusiveness–parent distress relationship in juvenile rheumatic disease. Rehabilitation Psychology, 54, 45-50. doi:10.1037/a0014443
6.
AnthonyK.BrombergM.GilK.SchanbergL. (2011). Parental perceptions of child vulnerability and parent stress as predictors of pain and adjustment in children with chronic arthritis. Children’s Health Care, 40, 53-69. doi:10.1080/02739615.2011.537938
7.
AprilK.CavalloS.FeldmanD.NiA. (2012). The associations among economic hardship, caregiver psychological distress, disease activity, and health-related quality of life in children with juvenile idiopathic arthritis. Quality of Life Research, 21, 1185-1191. doi:10.1007/s11136-011-0033-2
8.
AustinJ. K.HubertyT. J. (1993). Development of the Child Attitude Toward Illness Scale. Journal of Pediatric Psychology, 18, 467-480. doi:10.1093/jpepsy/18.4.467
9.
BarbarinO. (1988). Family Relations Scale: Manual. Ann Arbor: Family Development Project, University of Michigan.
10.
BarlowJ. H.EllardD. (2006). The psychosocial well-being of children with chronic disease, their parents and siblings: An overview of the research evidence base. Child: Care, Health and Development, 32, 19-31. doi:10.1111/j.1365-2214.2006.00591.x
11.
BarlowJ. H.ShawK. L.WrightC. C. (2000). Development and preliminary validation of a self-efficacy measure for use among parents of children with juvenile idiopathic arthritis. Arthritis Care & Research, 13, 227-236. doi:10.1002/1529-0131(200008)13:4%3C227::AID-ANR7%3E3.0.CO;2-N
12.
BarlowJ. H.ShawK. L.WrightC. C. (2001). Development and preliminary validation of a children’s arthritis self-efficacy scale. Arthritis & Rheumatism, 45, 159-166. doi:10.1002/1529-0131(200104)45:2%3C159::AID-ANR169%3E3.0.CO;2-2
13.
BarlowJ. H.WrightC.ShawK.LuqmaniR.WynessI. (2002). Maternal stressors, maternal well-being and children’s well-being in the context of juvenile idiopathic arthritis. Early Child Development and Care, 172, 89-98. doi:10.1080=03004430290000762
BergeJ.PattersonJ. (2004). Cystic fibrosis and the family: A review and critique of the literature. Families, Systems, & Health, 22, 74-100. doi:10.1037/1091-7527.22.1.74
16.
BieriD.ReeveR. A.ChampionG. D.AddicoatL.ZieglerJ. B. (1990). The Faces Pain Scale for the self-assessment of the severity of pain experienced by children: Development, initial validation, and preliminary investigation for ratio scale properties. Pain, 41, 139-150. doi:10.1016/0304-3959(90)90018-9
BraceM.SmithM.McCauleyE.SherryD. (2000). Family reinforcement of illness behavior: A comparison of adolescents with chronic fatigue syndrome, juvenile arthritis, and healthy controls. Journal of Developmental & Behavioral Pediatrics, 21, 332-339. doi:10.1097/00004703-200010000-00003
19.
BrittonC.MooreA. (2002a). Views from the inside, part 1: Routes to diagnosis—Families’ experience of living with a child with arthritis. British Journal of Occupational Therapy, 65, 374-380.
20.
BrittonC.MooreA. (2002b). Views from the inside, part 2: What the children with arthritis said, and the experiences of siblings, mothers, fathers and grandparents. British Journal of Occupational Therapy, 65, 413-419.
21.
BrittonC.MooreA. (2002c). Views from the inside, part 3: How and why families undertake prescribed exercise and splinting programmes and a new model of the families’ experience of living with juvenile arthritis. British Journal of Occupational Therapy, 65, 453-460.
22.
BrunsA.HilárioM.JenningsF.SilvaC.NatourJ. (2008). Quality of life and impact of the disease on primary caregivers of juvenile idiopathic arthritis patients. Joint Bone Spine, 75, 149-152. doi:10.1016/j.jbspin.2007.07.007
23.
CavalloS.FeldmanD.SwaineB.MeshefedjianG.MallesonN.DuffyC. (2009). Is parental coping associated with quality of life in juvenile idiopathic arthritis?Pediatric Rheumatology, 7(7). Retrieved from http://www.ped-rheum.com/content/7/1/7
24.
ChorpitaB. F.YimL.MoffittC.UmemotoL. A.FrancisS. E. (2000). Assessment of symptoms of DSM-IV anxiety and depression in children: A Revised Child Anxiety and Depression Scale. Behaviour Research and Therapy, 38, 835-855. doi:10.1016/S0005-7967(99)00130-8
25.
CohenM. (1999). Families coping with childhood chronic illness: A review of the literature. Families, Systems, & Health, 17, 149-164. doi:10.1037/h0089879
26.
ConnellyM.AnthonyK.SarniakR.BrombergM.GilK.SchanbergL. (2010). Parent pain responses as predictors of daily activities and mood in children with juvenile idiopathic arthritis: The utility of electronic diaries. Symptom Management, 39, 579-590. doi:10.1016/j.jpainsymman.2009.07.013
27.
ConnollyT. (2005). Family functioning and hope in children with juvenile rheumatoid arthritis. MCN: The American Journal of Maternal/Child Nursing, 30, 245-250. doi:10.1097/00005721-200507000-00008
28.
CousinoM.HazenR. (2013). Parenting stress among caregivers of children with chronic illness: A systematic review. Journal of Pediatric Psychology, 38, 809-828. doi:10.1093/jpepsy/jst049
29.
CuneoK.SchiaffinoK. (2002). Adolescent self-perceptions of adjustment to childhood arthritis: The influence of disease activity, family resources, and parent adjustment. Journal of Adolescent Health, 31, 363-371. doi:10.1016/S1054-139X(01)00324-X
30.
DavidJ.CooperC.HickeyL.LloydJ.DoreC.McCulloughC.WooP. (1994). The functional and psychological outcomes of juvenile chronic arthritis in young adulthood. British Journal of Rheumatology, 33, 876-881. doi:10.1093/rheumatology/33.9.876
31.
DekovicM.JanssensJ.Van AsN. (2003). Family predictors of antisocial behavior in adolescence. Family Process, 42, 223-235. doi:10.1111/j.1545-5300.2003.42203.x
32.
DeLongisA.FolkmanS.LazarusR. (1988). The impact of daily stress on health and mood: Psychological and social resources as mediators. Journal of Personality and Social Psychology, 54, 486-495. doi:10.1037/0022-3514.54.3.486
33.
DerogatisL. R. (1993). BSI Brief Symptom Inventory: Administration, scoring, and procedures manual (4th ed.). Minneapolis, MN: Clinical Psychometric Research.
34.
DerogatisL. R. (1994). Symptom Checklist-90-R: Administration, scoring, and procedures manual (3rd ed.). Minneapolis, MN: National Computer Systems.
35.
DerogatisL. R.MelisaratosN. (1983). The Brief Symptom Inventory: An introductory report. Psychological Medicine, 13, 595-605. doi:10.1017/S0033291700048017
36.
DevinsG. M.BinikY. M.HutchinsonT. A.HollombyD. J.BarréP. E.GuttmannR. D. (1983). The emotional impact of end-stage renal disease: Importance of patients’ perceptions of intrusiveness and control. International Journal of Psychiatry in Medicine, 13, 327-343. doi:10.2190/5DCP-25BV-U1G9-9G7C
37.
DrotarD. (1997). Relating parent and family functioning to psychosocial adjustment of children with chronic health conditions: What we have learned? What we need to know?Journal of Pediatric Psychology, 22, 149-165. doi:10.1093/jpepsy/22.2.149
38.
DuffyC.ArsenaultL.Watanabe DuffyK.PaquinJ.StrawczynskiH. (1993). Validity and sensitivity to change of the Juvenile Arthritis Quality-of-Life Questionnaire (JAQQ). Arthritis & Rheumatism, 36(9), S144.
39.
EpsteinN. B.BaldwinL. M.BishopD. S. (1983). The McMaster Family Assessment Device. Journal of Marital and Family Therapy, 9, 171-180. doi:10.1111/j.1752-0606.1983.tb01497.x
40.
FrieseS. (2012). Qualitative data analysis with Atlas.ti. Thousand Oaks, CA: SAGE.
41.
GoughD.ThomasJ.OliverS. (2012). Clarifying differences between review designs and methods. Systematic Reviews, 1, Article 28. doi:10.1186/2046-4053-1-28
42.
HainsworthK. R.DaviesW. H.KhanK. A.WeismanS. J. (2007). Development and preliminary validation of the Child Activity Limitations Questionnaire: Flexible and efficient assessment of pain-related functional disability. Journal of Pain, 8, 746-752. doi:10.1016/j.jpain.2007.05.005
43.
HarterS. (1982). The Perceived Competence Scale for children. Child Development, 53, 87-97. doi:10.2307/1129640
44.
HarterS. (1985). Manual for the Self-Perception Profile for Children. Denver, CO: University of Denver.
45.
HarterS. (1988). Manual for the Self-Perception Profile for Adolescents. Denver, CO: University of Denver.
46.
HavillN.LeemanJ.Shaw-KokotJ.KnaflK.CrandellJ.SandelowskiM. (2014). Managing large-volume literature searches in research synthesis studies. Nursing Outlook, 62, 112-118. doi:10.1016/j.outlook.2013.11.002
47.
HelgesonV.JanickiD.LernerJ.BarbarinO. (2003). Brief report: Adjustment to juvenile rheumatoid arthritis: A family systems perspective. Journal of Pediatric Psychology, 28, 347-353. doi:10.1093/jpepsy/jsg024
48.
HenryD.TolanP.Gorman-SmithD. (2005). Cluster analysis in family psychology research. Journal of Family Psychology, 19, 121-132. doi:10.1037/0893-3200.19.1.121
49.
HerzerM.GodiwalaN.HommelK.DrsicollK.MitchelM.CrosbyL.. . . ModiA. (2010). Family functioning in the context of pediatric chronic conditions. Journal of Developmental & Behavioral Pediatrics, 31, 26-34. doi:10.1097/DBP.0b013e3181c7226b
50.
HoweS.LevinsonJ.ShearE.HartnerS.McGirrG.SchulteM.LovellD. (1991). Development of a disability measurement tool for juvenile rheumatoid arthritis. The juvenile arthritis functional assessment report for children and their parents. Arthritis & Rheumatism, 34, 873-880. doi:10.1002/art.1780340713
51.
HsiehH.ShannonS. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15, 1277-1288. doi:10.1177/1049732305276687
52.
IobstE.NaborsL.BrunnerH.PrechtB. (2007). Pain, fatigue, family functioning, and attitude toward illness in children with juvenile rheumatic diseases. Journal of Developmental and Physical Disabilities, 19, 135-144. doi:10.1007/s10882-006-9028-2
53.
JonesF.RodgerS.BroderickS.De MonteR. (2009). Living with juvenile idiopathic arthritis: Parents’ experiences of treatment regimens and home exercise programmes. British Journal of Occupational Therapy, 72, 249-258. doi:10.1177/030802260907200603
54.
KingA.WoldB.Tudor-SmithC.HarelY. (1996). The health of youth. A cross-national survey. WHO Regional Publications European Series, 69, 1-222.
55.
KnaflK.LeemanJ.HavillN.CrandellJ.SandelowskiM. (2015). Delimiting family in syntheses of research on childhood chronic conditions and family life. Family Process, 54, 173-184. doi:10.1111/famp.12101
KovacsM. (1992). Children’s Depression Inventory. New York, NY: Multi-Health Systems.
58.
LeBovidgeJ.LavigneJ.DonenbergG.MillerS. (2003). Psychological adjustment of children and adolescents with chronic arthritis: A meta-analytic review. Journal of Pediatric Psychology, 28, 29-39. doi:10.1093/jpepsy/28.1.29
59.
LempersJ. D.Clark-LempersD.SimonsR. L. (1989). Economic hardship, parenting, and distress in adolescence. Child Development, 60, 25-39. doi:10.2307/1131068
60.
LewandowskiA.PalermoT.StinsonJ.HandleyS.ChambersC. (2010). Systematic review of family functioning in families of children and adolescents with chronic pain. Journal of Pain, 11, 1027-1038. doi:10.1016/j.jpain.2010.04.005
61.
MalhiP.SinghS. (2002). Effect of parental distress and family support on the psychological adaptation of children with juvenile rheumatoid arthritis. Studia Psychologica, 44, 253-259.
62.
MandaraJ. (2003). The typological approach in child and family psychology: A review of theory, method, and research. Clinical Child and Family Psychology Review, 6, 129-146. doi:10.1023/A:1023734627624
63.
McClellanC.CohenL. (2007). Family functioning in children with chronic illness compared to healthy controls: A critical review. Journal of Pediatrics, 150, 221-223. doi:10.1016/j.jpeds.2006.11.063
64.
McCubbinH. I.McCubbinM. A.PattersonJ. M.CaubleA. E.WilsonL. R.WarwickW. (1983). CHIP. Coping Health Inventory for Parents: An assessment of parental coping patterns in the care of the chronically ill child. Journal of Marriage and Family, 45, 359-370. doi:10.2307/351514
65.
McCubbinH. I.PattersonJ. (1983). Stress: The Family Inventory of Life Events and Changes. In FilsingerE. (Ed.), Marriage and family assessments: A sourcebook for family therapy (pp. 275-297). Thousand Oaks, CA: SAGE.
66.
McGrathP. A.SeifertC. E.SpeechleyK. N.BoothJ. C.StittL.GibsonM. C. (1996). A new analogue scale for assessing children’s pain: An initial validation study. Pain, 64, 435-443. doi:10.1016/0304-3959(95)00171-9
67.
McNeillT. (2004). Fathers’ experience of parenting a child with juvenile rheumatoid arthritis. Qualitative Health Research, 14, 526-545. doi:10.1177/1049732303262374
68.
MedeirosM. M. C.FerrazM. B.QuaresmaM. R.RodriguesM.MenezesA. P. (1998). Adaptation and validation of the Caregiver Burden Scale to Brazilian cultural milieu. Brazilian Journal of Rheumatology, 38, 193-199.
69.
MoherD.LiberatiA.TetzlaffJ.AltmanD.GroupT. P. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA Statement. Journal of Clinical Epidemiology, 62, 1006-1012. doi:10.1016/j.jclinepi.2009.06.005
70.
MoosR. H.MoosB. S. (1994). Family Environment Scale manual (3rd ed.). Palo Alto, CA: Consulting Psychologists Press.
71.
MullinsL. L.ChaneyJ. M.HartmanV. L.OlsonR. A.YoullL. K.ReyesS.BlackettP. (1995). Child and maternal adaptation to cystic fibrosis and insulin-dependent diabetes mellitus: Differential patterns across disease states. Journal of Pediatric Psychology, 20, 173-186. doi:10.1093/jpepsy/20.2.173
72.
OlsonD. H.PortnerJ.BellR. Q. (1982). FACES II: Family adaptability and cohesion evaluation scales. Minneapolis: Family Social Science, University of Minnesota.
73.
PalermoT. M.LewandowskiA. S.LongA. C.BurantC. J. (2008). Validation of a self-report questionnaire version of the Child Activity Limitations Interview (CALI): The CALI-21. Pain, 139, 644-652. doi:10.1016/j.pain.2008.06.022
74.
PalermoT. M.ValenzuelaD.StorkP. P. (2004). A randomized trial of electronic versus paper pain diaries in children: Impact on compliance, accuracy, and acceptability. Pain, 107, 213-219. doi:10.1016/j.pain.2003.10.005
75.
PetersonC. C.PalermoT. M. (2004). Parental reinforcement of recurrent pain: The moderating impact of child depression and anxiety on functional disability. Journal of Pediatric Psychology, 29, 331-341. doi:10.1093/jpepsy/jsh037
76.
PoznanskiE. O.GrossmanJ. A.BuchsbaumY.BanegasM.FreemanL.GibbonsR. (1984). Preliminary studies of the reliability and validity of the Children’s Depression Rating Scale. Journal of the American Academy of Child Psychiatry, 23, 191-197. doi:10.1097/00004583-198403000-00011
77.
PoznanskiE. O.MokrosH. B. (1996). Children’s Depression Rating Scale–Revised (CDRS-R) manual. Los Angeles, CA: Western Psychological.
78.
PrakkenB.AlbaniS.MartiniA. (2011). Juvenile idiopathic arthritis. The Lancet, 377, 2138-2149. doi:10.1016/S0140-6736(11)60244-4
79.
ProcidanoM. E.HellerK. (1983). Measures of perceived social support from friends and from family: Three validation studies. American Journal of Community Psychology, 11, 1-24. doi:10.1007/BF00898416
80.
RamseyR.RyanJ.BonnerM.FedeleD.MullinsL.JarvisJ.ChaneyJ. (2013). The mediating role of children’s causal attributions in the parent distress-child depressive symptom association in juvenile rheumatic diseases. Journal of Developmental and Physical Disabilities, 25, 285-296. doi:10.1007/s10882-012-9306-0
81.
RaoN. (1971). Manual for the Parent Child Relationship Scale. Agra India: National Psychological Corporation.
82.
RavelliA.MartiniA. (2007). Juvenile idiopathic arthritis. The Lancet, 369, 767-778. doi:10.1016/S0140-6736(07)60363-8
83.
ReidG. J.GilbertC. A.McGrathP. J. (1998). The Pain Coping Questionnaire: Preliminary validation. Pain, 76, 83-96. doi:10.1016/S0304-3959(98)00029-3
84.
ReidG. J.McGrathP.LangB. (2005). Parent–child interactions among children with juvenile fibromyalgia, arthritis, and healthy controls. Pain, 113, 201-210. doi:10.1016/j.pain.2004.10.018
85.
ReynoldsC. R.RichmondB. O. (2000). Revised Children’s Manifest Anxiety Scale: Manual. Los Angeles, CA: Western Psychological Services.
86.
RobertsC.FeethamS. (1982). Assessing family functioning across three areas of relationships. Nursing Research, 31, 231-235.
87.
RodenburgR.MeijerA.DekovicM.AldenkampA. (2006). Family predictors of psychopathology in children with epilepsy. Epilepsia, 47, 601-614. doi:10.1111/j.1528-1167.2006.00475.x
88.
RupertoN.RavelliA.PistorioA.MalattiaC.CavutoS.Gado-WestL.. . . MartiniA. (2001). Cross-cultural adaptation and psychometric evaluation of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ) in 32 countries. Review of the general methodology. Clinical and Experimental Rheumatology, 19(4, Suppl. 23), S1-S9.
89.
RuthN.PassoM. (2012). Juvenile idiopathic arthritis: Management and therapeutic options. Therapeutic Advances in Musculoskeletal Disease, 4, 99-110. doi:10.1177/1759720X11413630
90.
RyanJ.RamseyR.FedeleD.MullinsL.ChaneyJ.JarvisJ. (2010). A longitudinal examination of the parent–child distress relationship in children with juvenile rheumatic disease. Rehabilitation Psychology, 55, 286-291. doi:10.1037/a0020182
91.
SacksJ.HelmickC.LuoY.IlowiteN.BowersS. (2007). Prevalence of and annual ambulatory health care visits for pediatric arthritis and other rheumatologic conditions in the United States in 2001-2004. Arthritis Care & Research, 57, 1439-1445. doi:10.1002/art.23087
92.
SällforsC.HallbergI. (2003). A parental perspective on living with a chronically ill child: A qualitative study. Families, Systems & Health, 21, 193-204. doi:10.1037/1091-7527.21.2.193
93.
SandelowskiM.LeemanJ.KnaflK.CrandellJ. L. (2013). Text-in-context: A method for extracting findings in mixed-methods mixed research synthesis studies. Journal of Advanced Nursing, 69, 1428-1437. doi:10.1111/jan.12000
94.
SandelowskiM.VoilsC.BarrosoJ. (2006). Defining and designing mixed research synthesis studies. Research in the Schools, 13, 29-49.
95.
SandelowskiM.VoilsC.LeemanJ.CrandellJ. (2012). Mapping the mixed methods-mixed research synthesis terrain. Journal of Mixed Methods Research, 6, 317-331. doi:10.1177/1558689811427913
96.
SnyderC. R.HozaB.PelhamW. E.RapoffM.WareL.DanovskyM.. . . StahlK. J. (1997). The development and validation of the Children’s Hope Scale. Journal of Pediatric Psychology, 22, 399-421. doi:10.1093/jpepsy/22.3.399
97.
SpielbergerC. D.GorsuchR. L.LusheneR.VaggP. R.JacobsG. A. (1983). Manual for the State-Trait Anxiety Inventory. Palo Alto, CA: Consulting Psychologists Press.
TongA.JonesJ.CraigJ.Singh-GrewalD. (2012). Children’s experiences of living with juvenile idiopathic arthritis: A thematic synthesis of qualitative studies. Arthritis Care & Research, 64, 1392-1404. doi:10.1002/acr.21695
100.
VandvikI. (1990). Mental health and psychosocial functioning in children with recent onset of rheumatic disease. Journal of Child Psychology and Psychiatry, 31, 961-971. doi:10.1111/j.1469-7610.1990.tb00837.x
101.
VarniJ. W.SeidM.KurtinP. S. (1999). Pediatric health-related quality of life measurement technology: A guide for health care decision makers. Journal of Clinical Outcomes Management, 6(4), 33-34.
102.
VarniJ. W.ThompsonK.HansonV. (1987). The Varni/Thompson Pediatric Pain Questionnaire, I: Chronic musculoskeletal pain in juvenile rheumatoid arthritis. Pain., 28, 27-38. doi:10.1016/0304-3959(87)91056-6
103.
VuorimaaH.TammK.HonkanenV.KomulainenE.KonttinenY.SantavirtaN. (2009). Parents and children as agents of disease management in JIA. Child: Care, Health and Development, 35, 578-585. doi:10.1111/j.1365-2214.2009.00981.x
104.
VuorimaaH.TammK.HonkanenV.KomulainenE.KonttinenY.SantavirtaN. (2011). Pain in juvenile idiopathic arthritis: A family matter. Children’s Health Care, 40, 34-52. doi:10.1080/02739615.2011.537937
105.
WagnerJ.ChaneyJ.HommelK.PageM.MullinsL.WhiteM.JarvisJ. (2003). The influence of parental distress on child depressive symptoms in juvenile rheumatic diseases: The moderating effective of illness intrusiveness. Journal of Pediatric Psychology, 28, 453-462. doi:10.1093/jpepsy/jsg036
106.
Waite-JonesJ.MadillA. (2008). Fathers’ experiences of having a child with juvenile idiopathic arthritis. Psychology & Health, 23, 585-601. doi:10.1080/08870440802036911
107.
WalkerL. S.GreeneJ. W. (1991). The Functional Disability Inventory: Measuring a neglected dimension of child health status. Journal of Pediatric Psychology, 16, 39-58.
108.
WalkerL. S.LevyR. L.WhiteheadW. E. (2006). Validation of a measure of protective parent responses to children’s pain. The Clinical Journal of Pain, 22, 712-716. doi:10.1097/01.ajp.0000210916.18536.44
109.
WalkerL. S.ZemanJ. L. (1992). Parental response to child illness behavior. Journal of Pediatric Psychology, 17, 49-71.
110.
WallanderJ.VarniJ. (1998). Effects of pediatric chronic physical disorders on child and family adjustment. Journal of Child Psychology and Psychiatry, 39, 29-46. doi:10.1111/1469-7610.00302
111.
WareJ.SherbourneC. (1992). The MOS 36-Item Short-Form Health Survey (SF-36). I. Conceptual framework and item selection. Medical Care, 30, 473-483. doi:10.1097/00005650-199206000-00002
112.
WatsonD.ClarkL. A.TellegenA. (1988). Development and validation of brief measures of positive and negative affect: The PANAS scales. Journal of Personality and Social Psychology, 54, 1063-1070. doi:10.1037/0022-3514.54.6.1063
113.
WhiteM.ChaneyJ.MullinsL.WagnerJ.HommelK.AndrewsN.JarvisJ. (2005). Children’s perceived illness uncertainty as a moderator in the parent-child distress in juvenile rheumatic diseases. Rehabilitation Psychology, 50, 223-231. doi:10.1037/0090-5550.50.3.224
114.
WilkinsonN.JacksonG.Gardner-MedwinJ. (2003). Biologic therapies for juvenile arthritis. Archives of Disease in Childhood, 88, 186-191. doi:10.1136/adc.88.3.186
115.
World Health Organization Division of Mental Health. (1994). A user’s guide to the Self-Reporting Questionnaire (SRQ). Geneva, Switzerland: World Health Organization.
116.
WrightL. M.LeaheyM. (2013). Nurses and families: A guide to family assessment and intervention. Philadelphia, PA: F.A. Davis.
117.
YadavA.YadavT. (2013). A study of school adjustment, self-concept, self-esteem, general well-being and parent child relationship in juvenile idiopathic arthritis. The Indian Journal of Pediatrics, 80, 199-206. doi:10.1007/s12098-012-0804-y
118.
ZigmondA. S.SnaithR. P. (1983). The Hospital Anxiety and Depression Scale. Acta Psychiatrica Scandinavica, 67, 361-370. doi:10.1111/j.1600-0447.1983.tb09716.x
