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3.
E.Ashley, “The Precision Medicine Initiative: A New National Effort,”JAMA313, no. 21 (2015): 2119-2120.
4.
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5.
C. M.Hammack, K. M.Brelsford, and L. M.Beskow, “Thought Leader Perspectives on Participant Protections in Precision Medicine Research,”Journal of Law, Medicine & Ethics47, no. 1 (2019): 134-148.
6.
J.J.Arias, A.M.Tyler, B.J.Oster, and J.Karlawish, “The Proactive Patient: Long-Term Care Insurance Discrimination Risks of Alzheimer's Disease Biomarkers,”Journal of Law, Medicine & Ethics46, no. 2 (2018): 485-498.
7.
S.R.Morain, L.R.Fowler, and J.L.Roberts, “What to Expect When [Your Employer Suspects] You're Expecting,”JAMA Internal Medicine176, no. 11 (2016): 1597-1598.
8.
H.F.Lynch, S.G.Nicholls, M.Meyer, and H.A.Taylor, “Of Parachutes and Participant Protection: Moving Beyond Quality to Advance Effective Research Ethics Oversight,”Journal of Empirical Research on Human Research Ethics (2018), available at <https://journals.sagepub.com/doi/abs/10.1177/1556264618812625> (last visited January 31, 2019).
9.
E.A.Largent, “What's Trust Got to Do With It? Trust and the Importance of the Research–Care Distinction,”The American Journal of Bioethics15, no. 9 (2015): 22-24.
10.
L.Gelinas, J.Weissman, H. FernandezLynch, A.Gupta, R.Rozenblum, E.Largent, and I.G.Cohen, “Oversight of Patient Centered Outcomes Research: Recommendations from a Delphi Panel,”Annals of Internal Medicine169, no. 8 (2018): 559–563; E.A. Largent, S. Joffe, and F.G. Miller, “Can Research and Care Be Ethically Integrated?” Hastings Center Report 41, no. 4 (2011): 37-46.
