Living After Stroke: A Qualitative Study About Loss and Grief of Stroke Survivors

Abstract

Introduction: Stroke survivors face significant challenges due to physical and cognitive limitations, leading to various losses that require a grieving process. Objectives: This study aims to (1) identify the specific losses experienced by stroke survivors; (2) describe their perception and experience of these losses; and (3) their adaptation process during the first three months post-hospital discharge. Method: Six stroke survivors were interviewed 3 months after discharge about their perceived losses, the impact on their lives and identity, emotional responses, and sources of support. Thematic analysis was used to interpret the data. Results: Loss of autonomy emerged as the primary concern, leading to secondary losses such as housing, employment, and social engagement. Negative emotions and challenges in identity reconstruction were prevalent, with a predominant focus on recovery. Conclusions: Stroke survivors struggled with accepting their losses within the initial 3 months, highlighting the critical role of healthcare professionals in supporting their adaptation process.