Restricted accessResearch articleFirst published online 2020-4
In My Hours of Need,I Was Robbed of My Family,Friends,Beliefs,and Education. A Mother’s Narrative on Her 14-Year-Old Daughter’s 9-Month Journey From Ill Health to Death
The study utilized a highly qualitative, narrative, and free associative methodological approach to give a mother’s perspective of her teenage daughter’s 9-month journey from diagnosis of cancer to her death. Cancer is a unique chronic illness that impacts both physically and psychologically. The key findings of this study show that medical treatment alone is not enough and that professionals must understand the impact that cancer and the treatment have on the quality of life for the child and how the phrase surviving cancer has different meanings. It highlights the importance that family, friends, beliefs, and education have on supporting a teenager and the consequences of denying that access to all stakeholders.
BellK.Ristovski-SlijepcevicS. (2013) Cancer survivorship: Why labels matter. Journal of Clinical Oncology31(4): 409–411.
2.
BleyerW. (2002) Cancer in older adolescents and young adults: Epidemiology, diagnosis, treatment, survival and importance of clinical trials. Medical and Pediatric Oncology38(1): 1–10.
3.
BraunV.ClarkeV. (2006) Using thematic analysis in psychology. Qualitative Research in Psychology3: 77–101.
CanningS.BuntonP.Talbot RobinsonL. (2014) Psychological, demographic, illness and treatment risk factors for emotional distress amongst paediatric oncology patients prior to reaching 5-year survivorship status. Psycho-Oncology23: 1283–1291. doi:10.1002/pon.3563.
6.
Castellano-TejedorC.Pérez-CampdepadrósM.CapdevilaL.Blasco-BlascoT. (2016) Surviving cancer: The psychosocial outcomes of childhood cancer survivors and its correlates. Journal of Health Psychology21(7): 1491–1502.
7.
DarcyL.BjörkM.EnskärK.KnutssonS. (2014) The process of striving for an ordinary, everyday life, in young children living with cancer, at six months and one year post diagnosis. European Journal of Oncology Nursing18: 605–612.
8.
DavidsonR.MillsM. E. (2005) Cancer patients’ satisfaction with communication, information and quality of care in a UK region. European Journal of Cancer Care14(1): 83–90.
9.
DecinqueN.MonterossoL.DaddG.SidhuR.MacphersonR.AounS. (2006) Bereavement support for families following the death of a child from cancer experience of bereaved parents. Journal of Psychosocial Oncology24(2): 65–83.
10.
DwyerS. C.BuckleJ. L. (2009) The space between: On being an insider-outsider in qualitative research. International Journal of Qualitative Methods8(1): 54–63.
11.
GermannJ. N.LeonardD.StuenziT. J.PopR. B.StewartS. M.LeaveyP. J. (2016) Hoping is coping: A guiding theoretical framework for promoting coping and adjustment following pediatric cancer diagnosis. Journal of Pediatric Psychology40(9): 846–855. doi:10.1093/jpepsy/jsv027.
12.
Goldie, P. (2011). Grief: A narrative account. Ratio, 24, 119–137.
13.
GrayD. E. (2009) Doing research in the real world, London, England: SAGE.
14.
HollwayW.JeffersonT. (2008) The free association narrative interview method. In: GivenLisa M. (ed.) The SAGE encyclopedia of qualitative research methods, Sevenoaks, CA: Sage, pp. 296–315.
15.
JoubertL. B.WanA. H. Y.BhattS.ChanC. L. W. (2015) An exploratory study of social capital and cancer survivorship: Meaning and interpersonal relationships among Chinese with cancer. Illness, Crisis & Loss23: 33–44. doi:10.2190/IL.23.1.d.
16.
KissaneD. W.WatsonM. (2011) Handbook of psychotherapy in cancer care, Hoboken, NJ: WileyAvailable from ProQuest Ebook Central.
SnyderC. R. (2002) Hope theory: Rainbows in the mind. Psychological Inquiry13(4): 249–275.
21.
WolfeJ.GrierH. E.KlarN.LevinS. B.EllenbogenJ. M.Salem-SchatzS.WeeksJ. C. (2000) Symptoms and suffering at the end of life in children with cancer. The New England Journal of Medicine342(5): 326–333.
