Few studies exist on the benefits of online grief support for bereaved parents. We sought to learn from parents who lost a child to a brain or spinal cord tumor who participated in an online grief-support group. Eighteen bereaved parents and two professional facilitators participated in 20 monthly online groups, with chat room discussions analyzed for themes. Parents completed a 10-item survey evaluating reasons for participation and the group's effectiveness regarding coping following loss. Examples of chat room topics included the grief process or adjustment, negative social interactions, milestones or holidays, and sibling grief. Seventy-eight percent of eligible parents completed the survey. They endorsed online groups as effective for connecting with other bereaved parents and offering grief support, among other positive outcomes. Parents used online groups for a variety of reasons, including convenience, anonymity, and lack of local support. Parents' responses suggest that online support groups can be a convenient or effective grief-coping strategy for parents bereaved by cancer.
AhoA.PaavilainenE.KaunonenM. (2012) Mothers' experiences of peer support via an Internet discussion forum after the death of a child. Scandinavian Journal of Caring Sciences26(3): 417–426. doi:10.1111/j.1471-6712.2011.00929.
2.
AnderssonG.CarlbringP.BergerT.AlmlovJ.CuijpersP. (2009) What makes Internet therapy work?Cognitive Behaviour Therapy38: 55–60.
3.
BonannoG. A.KaltmanS. (2001) The varieties of grief experience. Clinical Psychology Review21: 705–734.
4.
BonannoG. A.ManciniA. D. (2006) Bereavement-related depression and PTSD: Evaluating interventions. In: BarbanelL.SternbergR. J. (eds) Psychological interventions in times of crisis, New York, NY: Springer, pp. 37–55.
5.
BonannoG. A.WortmanC. B.LehmanD. R.TweedR. G.HaringM.SonnegaJ.RandolfM. (2002) Resilience to loss and chronic grief. Journal of Personality and Social Psychology83: 1150–1164.
6.
BurkeL. A.NeimeyerR. A. (2012) Prospective risk factors for complicated grief: A review of the empirical literature. In: StroebeM. S.SchutH.van der BoutJ.BoelenP. (eds) Complicated grief: Scientific foundations for healthcare professionals, New York, NY: Routledge, pp. 145–161.
7.
BurkeL. A.NeimeyerR. A. (2014) Complicated spiritual grief I: Relation to complicated grief symptomatology following violent death bereavement. Death Studies38: 259–267. doi:10.1080/07481187.2013.829372.
8.
BurkeL. A.NeimeyerR. A.HollandJ. M.DennardS.OliverL.ShearK. M. (2014) Inventory of complicated spiritual grief scale. Death Studies38: 239–250. doi:10.1080/07481187.2013.810098.
9.
BurkeL. A.NeimeyerR. A.McDevitt-MurphyM. E. (2010) African American homicide bereavement: Aspects of social support that predict complicated grief, PTSD, and depression. Omega: Journal of Death and Dying61(1): 1–24. doi:10.2190/OM.61.1.a.
10.
BurkeL. A.NeimeyerR. A.YoungM. J.Piazza BoninB.DavisN. L. (2014) Complicated spiritual grief II: A deductive inquiry following the loss of a loved one. Death Studies38: 268–281. doi:10.1080/07481187.2013.829373.
11.
Centers for Disease Control and Prevention (2007) Trends in childhood cancer mortality—United States, 1990–2004. Morbidity and Mortality Weekly Report56(48): 1257–1261.
12.
CurrierJ. M.NeimeyerR. A.BermanJ. S. (2008) The effectiveness of psychotherapeutic interventions for the bereaved: A comprehensive quantitative review. Psychological Bulletin134: 648–661.
13.
DaviesR. (2004) New understandings of parental grief: Literature review. Journal of Advanced Nursing46(5): 506–513.
14.
DyregrovK. (2005) Experiences of social networks supporting traumatically bereaved. Omega: Journal of Death and Dying52(4): 339–358. doi:10.2190/CLAA-X2LW-JHQJ-T2DM.
15.
DyregrovK.NordangerD.DyregrovA. (2003) Predictors of psychosocial distress after suicide, SIDS, and accidents. Death Studies27: 143–165.
16.
FeigelmanW.GormanB. S.BealK.JordanJ. R. (2008) Internet support groups for suicide survivors: A new mode for gaining bereavement assistance. Omega: Journal of Death and Dying57(3): 217–243. doi:10.2190/OM.57.3.a.
17.
HollandJ. M.NeimeyerR. A.BoelenP. A.PrigersonH. G. (2009) The underlying structure of grief: A taxometric investigation of prolonged and normal reactions to loss. Journal of Psychopathology and Behavioral Assessment31: 190–201.
18.
HollanderE. (2001) Cyber community in the valley of the shadow of death. Journal of Loss and Trauma6: 135–146.
19.
Institute of Medicine. (2003). Care and caring from diagnosis through death and bereavement. In M. J. Field & R. E. Behrman (Eds.), When children die: Improving palliative and end-of-life care for children and their families. Washington, DC: The National Academies Press.
20.
LaaksoH.Paunonen-IllmonenM. (2002) Mothers' experience of social support following the death of a child. Journal of Clinical Nursing11: 176–185.
21.
LiJ.PrechtD.MortensenP.OlsenJ. (2003) Mortality in parents after death of a child in Denmark: A nationwide follow-up study. The Lancet361(9355): 363–367. doi:10.1016/S0140-6736(03)12387-2.
22.
LichtenthalW. G.CurrierJ. M.NeimeyerR. A.KeeseeN. J. (2010) Sense and significance: A mixed methods examination of meaning making after the loss of one's child. Journal of Clinical Psychology66(7): 791–812.
23.
LichtenthalW. G.NeimeyerR. A. (2012) Directed journaling to facilitate meaning-making. In: NeimeyerR. A. (ed.) Techniques in grief therapy: Creative strategies for counseling the bereaved, New York, NY: Routledge, pp. 165–168.
24.
NeimeyerR. A.CurrierJ. M. (2009) Grief therapy: Evidence of efficacy and emerging directions. Current Directions in Psychological Science18: 252–256.
25.
PrigersonH. G.FrankE.KaslS.ReynoldsC.AndersonB.ZubenkoG. S.KupferD. J. (1995) Complicated grief and bereavement related depression as distinct disorders. American Journal of Psychiatry152: 22–30.
26.
PrigersonH. G.HorowitzM. J.JacobsS. C.ParkesC. M.AslanM.GoodkinK.MaciejewskiP. K. (2009) Prolonged grief disorder: Psychometric validation of criteria proposed for DSM-V and ICD-11. PLoS Medicine6(8): 1–12.
27.
RobinsonD.RobinsonM. (2000) Ethical issues in Internet counseling. Counseling Psychology Quarterly13: 249–257.
28.
ShearM. K.SimonN.WallM.ZisookS.NeimeyerR.DuanN.KeshaviahA. (2011) Complicated grief and related bereavement issues for DSM-5. Depression and Anxiety28: 103–117.
29.
SilvermanP. R. (1972) Widownhood and preventative intervention. The Family Coordinator21: 95–102.
30.
StroebeM. S.Van Der HouwenK.SchutH. (2008) Bereavement support, intervention, and research on the Internet: A critical review. In: StroebeM. S.HanssonR. O.SchutH.StroebeW. (eds) Handbook of bereavement research and practice: Advances in theory and intervention, Washington, DC: American Psychological Association, pp. 551–574.
31.
van der HouwenK.SchutH.van den BoutJ.StroebeM.StroebeW. (2010) The efficacy of a brief Internet-based self-help intervention for the bereaved. Behaviour Research and Therapy48(5): 359–367. doi:10.1016/j.brat.2009.12.009.
32.
van der HouwenK.StroebeM.SchutH.StroebeW.van den BoutJ. (2010) Online mutual support in bereavement: An empirical examination. Computers in Human Behavior26(6): 1519–1525. doi:10.1016/j.chb.2010.05.019.
33.
VanderwerkerL. C.PrigersonH. G. (2004) Social support and technological connectedness as protective factors in bereavement. Journal of Loss and Trauma9: 45–57.
34.
VicaryA. M.FraleyR. C. (2010) Student reactions to the shootings at Virginia Tech and Northern Illinois University: Does sharing grief and support over the Internet affect recovery?Personal and Social Psychology Bulletin36: 1555–1563.
35.
WagnerB. (2013) Internet-based bereavement interventions and support. In: StroebeM. S.SchutH.van der BoutJ.BoelenP. (eds) Complicated grief: Scientific foundations for healthcare professionals, New York, NY: Routledge, pp. 235–247.
36.
WagnerB.KnaevelsrudC.MaerckerA. (2006) Internet-based treatment for complicated grief: A randomized controlled trial. Death Studies30: 429–453.
37.
WaldronV.LavittM.KelleyD. (2000) The nature and prevention of harm in technology-medicated self-help settings: Three exemplars. Journal of Technology in Human Services17: 267–293.
