BeresfordB.1995. Expert opinions: A national survey of parents caring for a severely disabled child. Bristol, UK: Policy Press.
2.
CalleryP.1997. Paying to participate: Financial, social and personal costs to parents of involvement in their children's care in hospital. Journal of Advanced Nursing25:746-52.
3.
DobsonB., and MiddletonS.. 1998. Paying to care: The cost of childhood disability. York, UK: Joseph Rowntree Foundation.
4.
DrakefordM.1998. Last rights? Funerals, poverty and social exclusion. Journal of Social Policy 27 (4):507-24.
5.
HindmarchC.2000. On the death of a child. Abingdon, UK: Radcliffe Medical Press.
6.
KaganC., LewisS., and HeatonP.. 1998. Caring to work: Accounts of working parents of disabled children. London: Family Policy Studies Centre.
7.
KirkS.1999a. Caring for children with specialized health needs in the community: The challenges for primary care. Health and Social Care in the Community7:350-57.
8.
KirkS.1999b. Families' experiences of caring at home for a technology-dependent child: Areview of the literature. Child: Care, Health and Development24:101-14.
9.
LewisJ., and MeredithB.. 1988. Daughters who care. London: Routledge.
10.
McLaughlinE., and RitchieJ.. 1994. Legacies of caring: The experiences and circumstances of excarers. Health and Social Care2:241-53.
11.
Oddfellows. 2000. Survey of funeral costs in Britain, 2000. Manchester, UK: Manchester Unity Friendly Society.
12.
Office for National Statistics.1998. Office for National Statistics 1998 mortality statistics: Cause, Series DH2 No. 25. London: The Stationery Office.
13.
SloperP.1996. Needs and responses of parents following the diagnosis of childhood cancer. Child: Care, Health and Development22:187-202.
14.
WhileA., CitroneC., and CornishJ.. 1996. Bereaved parents' views of caring for a child with a life-limiting incurable disorder. London: Kings College.
