This article describes both ideological and theoretical studies of support systems available to handicapped, low-birth weight, and high-risk newborns and their families within the hospital setting. Attention is focused on the time-frame immediately following the birth of the infant. Medical, social service, and educational/ developmental factors influencing the family-unit are addressed. The article discusses extant strengths and weaknesses in each system from a parent's as well as a professional's perspective, along with models of "best practice" and an overview of implications for viable support.
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References
1.
Als, H. (1982). Toward a synactive theory of development : Promise for the assessment and support of infant individuality. Infant Mental Health Journal, 3, 229-243.
2.
Amick, J.H. (1984, June). Support for parents of babies in special care units. Midwives Chronicle and Nursing Notes, 170-175.
3.
Barnard, K.E., & Eyers, S.J. (1979). Child health assessment, part 2: The first year of life. (DHEW Pub. No. HRA 79-25). Hyattsville, MD: U.S. Department of Health, Education, and Welfare.
4.
Benfield, G.D., Leib, S.A., & Renter, J. (1976). Response of parents after referral of the critically ill newborn to a regional center. The New England Journal of Medicine, 294, 975-978.
5.
Berrera, M., Jr., Sandler, I.N., & Ramsay, T.B. (1981). Preliminary development of a scale of social support: Studies on college students. American Journal of Community Psychology, 9, 435-447.
6.
Brazelton, T.B. (1973). Neonatal Behavioral Assessment Scale (Clinics in Developmental Medicine No. 50). Philadelphia: J.B. Lippincott Co.
7.
Brazelton, TB (1979). Behavioral competence of the newborn infant. Seminars in Perinatology, 3, 35-44.
8.
Brazelton, T.B., Tronick, E., Adamson, L., Als, H., & Wise, S. (1975). Early mother-infant reciprocity. Ciba Foundation Symposium (p. 33). New York: Associated Scientific Publishers.
9.
Caplan, G. (1974). Support systems and community mental health: Lectures on concept development. New York: Behavioral Publications.
10.
Cobb, S. (1976). Social support as a moderator of life stress. Psychosomatic Medicine, 38, 300-313.
11.
Cole, J.G. (1981). The role of educational specialists in NICU's . In D. Gilderman, D. Taylor-Hershel, P. Prestridge , & J. Anderson (Eds.), The health care/education relationship (p. 55). New Orleans: TADS /WESTAR.
12.
Cunningham, C.C., Morgan, P.A., & McGucken, R.B. (1984). Down's syndrome: Is dissatisfaction with disclosure of diagnosis inevitable? Developmental Medicine and Child Neurology, 26, 33-39.
13.
Fleischman, A.R. (1986). The immediate impact of the birth of a low birth-weight infant on the family. Zero to Three, 6(4), 1-5.
14.
Fortier, LM, & Wanlass, R.L. (1984). Family crisis following the diagnosis of a handicapped child. Family Relations, 33, 13-24.
15.
Fox, M.A. (1975). The handicapped family. The Lancet , 8, 400-401.
16.
Garrand, S., Sherman, N., Rentchler, D., & Jung, A.L. (1978). A parent-to-parent program. Family and Community Health, 1, 103-113.
17.
Gilmore, D.W., & Oates, R.K. (1977). Counseling about Down's syndrome: The parents' viewpoint. Medical Journal of Australia, 2, 600-603.
18.
Grant, P. (1978). Meeting the psychosocial needs of high-risk families . Family and Community Health, 1, 91-102.
19.
Guralnick, M.J., Richardson, H.B., Jr. , & Heiser, K.E. (1982). A curriculum in handicapping conditions for pediatric residents. Exceptional Children, 48, 338-346.
20.
Hallinan, P.M. (1976). Working with parents of handicapped children: The role of the medical profession. New Zealand Medical Joumal , 84, 322-324.
21.
Halpern, R., & Parker-Crawford, F. (1982). Young handicapped children and their families: Patterns of interaction with human service institutions . Infant Mental Health Joumal, 3, 51-61.
Liptak, G.S., Hulka, B.S., & Cassel, J.C. (1977). Effectiveness of physician-mother interactions during infancy. Pediatrics, 60, 186-192.
24.
Lucas, P.J., & Lucas, A.M. (1980). Down's syndrome : Breaking the news to Irish parents . Journal of the Irish Medical Association, 73, 248-252.
25.
McCarton, C.M. (1986). The long-term impact of low birth weight infants on the family. Zero to Three, 8, 6-11.
26.
Murdoch, J.C. (1983). Immediate post-natal management of the mothers of Down's syndrome and spina bifida children in Scotland 1971-1981. Joumal of Mental Deficiencies Research, 28, 67-72.
27.
Nugent, J.K. (1981). The Brazelton neonatal behavioral assessment scale: Implications for intervention. Pediatric Nursing, 7, 18-21.
28.
Pearlin, LI, & Schooler, C. (1978). The structure of coping. Journal of Health and Social Behavior, 19, 2-21.
29.
Pueschel, S.M. (1985). Changes of counseling practices at the birth of a child with Down syndrome. Applied Research in Mental Retardation , 6, 99-108.
30.
Solnit, A.J., & Stark, M.H. (1961). Mourning the birth of a defective child. Psychoanalytical Study of Children, 16, 523 -537.
31.
Swanson, J.E. (1981). Building relationships between the medical and educational communities : What is, what was, and what might be. In D. Gilderman, D. Taylor-Hershel , P. Prestridge, & J. Anderson (Eds.), The health care/educational relationships (pp. 21-29). New Orleans: TADS /WESTAR.
32.
Taylor, D. (1982). Counseling the parents of handicapped children . British Medical Joumal, 284, 976-978.
33.
Weber, G., & Parker, T. (1981). A study of family and professional views of the factors affecting family adaptation to a disabled child. In N. Stinnett, J. DeFrain , & K. King (Eds.), Family strengths 3: Roots of well-being (pp. 379-395). Omaha: University of Nebraska Press.
