This study examined influences, factors, and processes associated with parental recognition and response to developmental concerns through interviews and focus groups with six Spanish- and 17 English-speaking parents of children aged 2 weeks to 4.5 years with developmental concerns. Results revealed that social support, perceptions of perceived threat (the child’s susceptibility to developmental problems and potential severity of the issue), evaluation of the benefits and barriers of seeking help, self-efficacy, and referral coordination influenced parents’ recognition and response to developmental concerns. Experiences and paths to services varied greatly, illustrating the lack of consistency within service systems. Understanding these influences in identification and intervention is the first step in addressing how to better support parents and their children.
BaileyD. B.HebbelerK.ScarboroughA.SpikerD.MallikS. (2004). First experiences with early intervention: A national perspective. Pediatrics, 113, 887-896.
2.
BatshawM. L. (2002). Children with disabilities (5th ed.). Washington, DC: Paul H. Brookes.
3.
BeninA. L.Wisler-ScherD. J.ColsonE.ShapiroE. D.HolmboeE. S. (2006). Qualitative analysis of mothers’ decision-making about vaccines for infants: The importance of trust. Pediatrics, 117, 1532-1541. doi:10.1542/peds.2005-1728
4.
BethellC.ReulandC.SchorE.AbrahmsM.HalfonN. (2011). Rates of parent-centered developmental screening: Disparities and links to services access. Pediatrics, 128, 146-155. doi:10.1542/peds.2010-0424
5.
BussingR.Koro-LjungbergM. E.GaryF.MasonD. M.GarvanC. W. (2005). Exploring help-seeking for ADHD symptoms: A mixed-methods approach. Harvard Review of Psychiatry, 13, 85-101. doi:10.1080/10673220590956465
6.
BussingR.ZimaB. T.GaryF. A.GarvanC. W. (2003). Barriers to detection, help-seeking, and service use for children with ADHD symptoms. The Journal of Behavioral Health Services & Research, 30, 176-189.
7.
ChampionV. L.SkinnerC. S. (2008). The Health Belief Model. In GlanzK.RimerB. K.ViswanathK. (Eds.), Health behavior and health education: Theory research, and practice (4th ed., pp. 45-62). San Francisco, CA: Jossey-Bass.
8.
CoulterM. L.WallaceT.LaudeM. (1993). Early intervention services in selected Florida counties: The provider perspective. Children’s Health Care, 22, 125-141. doi:10.1207/s15326888chc2202_4
9.
DanielK. L.PrueC.TaylorM. K.ThomasJ.ScalesM. (2009). “Learn the signs. Act early”: A campaign to help every child reach his or her full potential. Public Health, 123, e11-e16. doi:10.1016/j.puhe.2009.06.002
10.
FeatherstoneB.BroadhurstK. (2003). Engaging parents and carers with family support services: What can be learned from research on help-seeking?Child & Family Social Work, 8, 341-350. doi:10.1046/j.1365-2206.2003.00289.x
11.
FeredayJ.Muir-CochraneE. (2006). Demonstrating rigor using thematic analysis: A hybrid approach of inductive and deductive coding and theme development. International. Journal Of Qualitative Methods, 5(1), 80-92.
12.
FröjdS.MarttunenM.PelkonenM.von der PahlenB.Kaltiala-HeinoR. (2007). Adult and peer involvement in help-seeking for depression in adolescent population. Social Psychiatry and Psychiatric Epidemiology, 42, 945-952. doi:10.1007/s00127-007-0254-4
13.
Gance-ClevelandB. (2006). Family-centered care: Decreasing health disparities. Journal for Specialists in Pediatric Nursing, 11, 72-76. doi:10.1111/j.1744-6155.2006.00046.x
14.
GlascoeF. P. (1997). Parents’ concerns about children’s development: Prescreening technique or screening test?Pediatrics, 99, 522-528. doi:10.1542/peds.99.4.522
15.
GlascoeF. P. (2000). Evidence-based approach to developmental and behavioral surveillance using parents’ concerns. Child: Care, Health and Development, 26, 137-149. doi:10.1046/j.1365-2214.2000.00173.x
16.
GlascoeF. P. (2005). Screening for developmental and behavioral problems. Mental Retardation and Developmental Disabilities Research Reviews, 11, 173-179. doi:10.1002/mrdd.20068
17.
GoodeS.DiefendorfM.ColganS. (2011). The importance of early intervention for infants and toddlers with disabilities and their families. National Early Childhood Technical Assistance Center. Retrieved from http://www.nectac.org/~pdfs/pubs/importanceofearlyintervention.pdf
18.
GottliebB. H.BergenA. E. (2010). Social support concepts and measures. Journal of Psychosomatic Research, 69, 511-520.
19.
GuerreroA. D.RodriguezM. A.FloresG. (2011). Disparities in provider elicitation of parents’ developmental concerns for US children. Pediatrics, 128, 901-909. doi:10.1542/peds.2011-0030
20.
GulliverA.GriffithsK. M.ChristensenH. (2010). Perceived barriers and facilitators to mental health help-seeking in young people: A systematic review. BMC Psychiatry, 10(1), 113. doi:10.1186/1471-244X-10-113
21.
HalfonN.RegaladoM.SareenH.InkelasM.ReulandC. H. P.GlascoeF. P.OlsonL. M. (2004). Assessing development in the pediatric office. Pediatrics, 113(Supplement 5), 1926-1933.
22.
HalfonN.RussS.RegaladoM. (2004). Building a model system of developmental services in Orange County. UCLA Center for Healthier Children, Families and Communities. Retrieved from https://files.eric.ed.gov/fulltext/ED496844.pdf
23.
HeaneyC. A.IsraelB. A. (2008). Social networks and social support. In GlanzK.RimerB. K.ViswantthK. (Eds.), Health behavior and health education: Theory, research, and practice (4th ed., pp. 335-362). San Francisco, CA: Jossey-Bass.
24.
HermanB. (2007). CAPTA and early childhood intervention: Policy and the role of parents. Children & Schools, 29, 17-24. doi:10.1093/cs/29.1.17
25.
KellerJ.McDadeK. (2000). Attitudes of low-income parents toward seeking help with parenting: Implications for practice. Child Welfare, 79, 285-314.
26.
KerkorianD.McKayM.BannonW. M. (2006). Seeking help a second time: Parents’/caregivers’ characterizations of previous experiences with mental health services for their children and perceptions of barriers to future use. American Journal of Orthopsychiatry, 76, 161-166. doi:10.1037/0002-9432.76.2.161
27.
LeCompteM. D.SchensulJ. J. (1999). Designing and conducting ethnographic research (Vol. 1). Rowman Altamira.
28.
MandellD. S.NovakM. M.ZubritskyC. D. (2005). Factors associated with age of diagnosis among children with autism spectrum disorders. Pediatrics, 116, 1480-1486. doi:10.1542/peds.2005-0185
29.
MarshallJ.AdelmanA.KestenS. M.NataleR.ElbaumB. (2017). Parents’ experiences navigating early childhood service systems for their young children with mild language delays. Journal of Early Intervention, 39, 180-198. doi:10.1177/1053815117704958
30.
MarshallJ.CoulterM. L.GorskiP. A.EwingA. (2016). Parent recognition and responses to developmental concerns in young children. Infants & Young Children, 29, 102-115. doi:10.1097/IYC.0000000000000056
31.
MarshallJ.DooneE.SpykerM. (2018). Cultural models of child disability: Perspectives of parents in Malaysia. Disability & Rehabilitation, 20, 1-10. doi:10.1080/09638288.2018.1474497
32.
MarshallJ.KirbyR. S.GorskiP. A. (2016). Parent concern and enrollment in intervention services for young children with developmental delays: 2007 National survey of children’s health. Exceptional Children, 82, 251-268. doi:10.1177/0014402915585563
33.
McManusB. M.RosenbergS. A.RobinsonC. C. (2015). Identifying infants and toddlers at high risk for persistent delays. Maternal Child Health Journal, 20, 639-645. doi:10.1007/s10995-015-1863-2
34.
Pinto-MartinJ. A.DunkleM.EarlsM.FliednerD.LandesC. (2005). Developmental stages of developmental screening: Steps to implementation of a successful program. American Journal of Public Health, 95, 1928-1932. doi:10.2105/AJPH.2004.052167
RavivA.RavivA.Edelstein-DolevY.SilbersteinO. (2003). The gap between a mother seeking psychological help for her child and for a friend’s child. International Journal of Behavioral Development, 27, 329-337. doi:10.1080/01650250244000353
37.
RavivA.RavivA.PropperA.FinkA. S. (2003). Mothers’ attitudes toward seeking help for their children from school and private psychologists. Professional Psychology: Research and Practice, 34, 95-101. doi:10.1037/0735-7028.34.1.95
RosenstockI. M.StrecherV. J.BeckerM. H. (1988). Social learning theory and the Health Belief Model. Health Education & Behavior, 15, 175-183.
40.
SandN.SilversteinM.GlascoeF. P.GuptaV. B.TonnigesT. P.O’ConnorK. G. (2005). Pediatricians’ reported practices regarding developmental screening: Do guidelines work? Do they help?Pediatrics, 116, 174-179. doi:10.1542/peds.2004-1809
41.
SayalK. (2006). Annotation: Pathways to care for children with mental health problems. Journal of Child Psychology and Psychiatry, 47, 649-659. doi:10.1111/j.1469-7610.2005.01543.x
42.
SeligmanM.DarlingR. B. (2007). Ordinary families, special children: A systems approach to childhood disability (3rd ed.). New York, NY: Guilford Press.
TracyS. J. (2010). Qualitative quality: Eight “big-tent” criteria for excellent qualitative research. Qualitative Inquiry, 16, 837-851.
45.
TurnbullA. P.SummersJ. A.TurnbullR.BrothersonM. J.WintonP.RobertsR.. . . Stroup-RentierV. (2007). Family supports and services in early intervention: A bold vision. Journal of Early Intervention, 29, 187-206.
46.
TurnbullA. P.TurnbullH. R. (2001). Families, professionals, and exceptionality: Collaborating for empowerment (4th ed.). Upper Saddle River, NJ: Prentice Hall.
47.
TwymanK. A.MaximR. A.LeetT. L.UltmannM. H. (2009). Parents’ developmental concerns and age variance at diagnosis of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 3, 489-495. doi:10.1016/j.rasd.2008.10.002
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