The Early Childhood Outcomes (ECO) Center was funded by the Office of Special Education Programs to promote the development and implementation of child and family outcome measures for infants, toddlers, and preschoolers with disabilities. An evidence-based process with extensive stakeholder input led to the identification of five outcomes by which the effectiveness of services for families could be assessed: (a) families understand their child's strengths, abilities, and special needs; (b) families know their rights and advocate effectively for their child; (c) families help their child develop and learn; (d) families have support systems; and (e) families are able to gain access to desired services and activities in their community. These outcomes provide a framework by which states and the federal government could document whether early intervention and preschool programs are providing demonstrable benefits for families, and provide the basis for developing measurement systems to determine the extent to which such benefits have been attained.
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References
1.
Administration for Children, Youth, and Families. (1998). Head Start program performance measures, second progress report. Washington, DC: Head Start Bureau, ACYF, U.S. Department of Health and Human Services.
2.
Affleck, G., & Tennen, H. (1993). Cognitive adaptation to adversity: Insights from parents of medically fragile infants. In P. R. Dokecki & R. M. Saner (Eds.), Ethics of dealing with persons with severe handicaps: Toward a research agenda (pp. 135-150). Baltimore: Brookes.
3.
Anderson, L.M., Shinn, C., Fullilove, M.T., Scrinshaw, S.C., Fielding, J.E., Normand, J., Carande-Kulis, V.G., & Task Force on Community Preventive Services. (2003). The effectiveness of early childhood development programs: A systematic review. American Journal of Preventive Medicine, 24(3 Suppl.), 32-46.
4.
Bailey, D.B. (2001). Evaluating parent involvement and family support in early intervention and preschool programs. Journal of Early Intervention, 24, 1-14.
5.
Bailey, D.B., & Bruder, M.B. (2004). Family outcomes of early intervention and preschool special education: Issues and considerations. ECO Center Technical report, SRI International, www.the-eco-center.org .
6.
Bailey, D.B., Buysse, V., Edmondson, R., & Smith, T.M. (1992). Creating family-centered services in early intervention: Perceptions of professionals in four states. Exceptional Children , 58, 298-309.
7.
Bailey, D.B., Hatton, D.D., & Skinner, M. (1998). Early developmental trajectories of males with fragile X syndrome. American Journal on Mental Retardation , 103, 29-39.
8.
Bailey, D.B., Hebbeler, K., Spiker, D., Scarborough, A., & Mallik, S. (2004). First experiences with early intervention: A national perspective. Pediatrics, 113, 887-896.
9.
Bailey, D.B., Hebbeler, K., Spiker, D., Scarborough, A., Mallik, S., & Nelson, L. (2005). 36-month outcomes in families of children who have disabilities and participated in early intervention. Pediatrics, 116, 1346-1352.
10.
Bailey, D.B., McWilliam, R.A., Darkes, L.A., Hebbeler, K., Simeonsson, R.J., Spiker, D., & Wagner, M. (1998). Family outcomes in early intervention: A framework for program evaluation and efficacy research. Exceptional Children, 64, 313-328.
11.
Bailey, D.B., & Powell, T. (2005). Assessing the information needs of families in early intervention. In M. J. Guralnick (Ed.), A developmental systems approach to early intervention: National and international perspectives (pp. 151-183). Baltimore: Brookes.
12.
Barnett, D., Clements, M., Kaplan-Estrin, M., & Fialka, J. (2003). Building new dreams: Supporting parents' adaptation to their child with special needs. Infants and Young Children , 16, 184-200.
13.
Blue-Banning, M., Summers, J.A., Frankland, H.C., Nelson, L.L., & Beegle, G. (2004). Dimensions of family and professional partnerships: Constructive guidelines for collaboration. Exceptional Children , 70, 167-184.
14.
Booth-LaForce, C., & Kelly, J.F. (2004). Child-care patterns and issues for families of preschool children with disabilities. Infants and Young Children , 17, 5-16.
15.
Brady, S., Peters, D., Gamel-McCormick, M., & Venuto, N. (2004). Types and patterns of professional-family talk in home-based early intervention. Journal of Early Intervention , 26, 146-159.
16.
Brooks-Gunn, J., Berlin, L.J., & Fuligni, A.S. (2000). Early childhood intervention programs: What about the family? In J. P. Shonkoff & S. J. Meisels (Eds.), Handbook of early childhood intervention, second edition (pp. 549-588). Cambridge, UK: Cambridge University Press.
17.
Bruder, M.B. (2001). Infants and toddlers: Outcomes and ecology. In M. J. Guralnick (Ed.), Early childhood inclusion: Focus on change (pp. 203-228). Baltimore: Brookes.
18.
Bruder, M.B. (2005). Service coordination and integration in a developmental systems approach to early intervention. In M. J. Guralnick (Ed.), A developmental systems approach to early intervention (pp. 29-58). Baltimore: Brookes.
19.
Carpenter, B. (2001). Families in context: Emerging tends in early intervention and family support. London: David Fulton Publishers.
20.
Clare, L., Garnier, H., & Gallimore, R. (1998). Parents' developmental expectations and child characteristics: Longitudinal study of children with developmental delays and their families. American Journal on Mental Retardation , 103(2), 117-129.
21.
Council on Quality Leadership. (2004). Personal outcome measures for families with young children. Towson, MD: The Council on Quality and Leadership.
22.
Crnic, K., & Stormshak, E. (1997). The effectiveness of providing social support for families of children at risk. In M. Guralnick (Ed.), The effectiveness of early intervention (pp. 209-226). Baltimore: Brookes.
23.
Diamond, K.E., & Kontos, S. (2004). Families' resources and accommodations: Toddlers with Down syndrome, cerebral palsy, and developmental delay. Journal of Early Intervention, 26, 253-265.
24.
Dunst, C.J. (1999). Placing parent education in conceptual and empirical context. Topics in Early Childhood Special Education, 19, 141-172.
25.
Dunst, C.J. (2001). Participation of young children with disabilities in community learning activities. In M. J. Guralnick (Ed.), Early childhood inclusion: Focus on change (pp. 307-333). Baltimore: Brookes.
26.
Dunst, C.J., & Trivette, C.M. (1997). Early intervention with young at-risk children and their families. In R. Ammerman & M. Hersen (Eds.), Handbook of prevention and treatment with children and adolescents: Intervention in the real world (pp. 157-180). New York: Wiley.
Early Childhood Outcomes and Indicators Focus Group. (2003). OSEP early childhood outcomes and indicators focus group. Washington, DC: Office of Special Education Programs, U.S. Department of Education.
29.
Early Childhood Research Institute on Measuring Growth and Development. (1998). Family outcomes in a growth and development model. (Technical Report no. 7). Minneapolis, MN: Center for Early Education and Development, University of Minnesota .
30.
Federal Register, (2003). Research and Innovation to Improve Services and Results for Children with Disabilities: Center on Outcomes for Infants, Toddlers, and Preschoolers with Disabilities , 68Fed. Reg. pp. 44318-44321 (July 28, 2003).
31.
Gallimore, R., Weisner, T.S., Bernheimer, L.P., Guthrie, D., & Nihira, K. (1993). Family responses to young children with developmental delays: Accommodation activity in ecological and cultural context. American Journal on Mental Retardation, 98, 185-206.
32.
Girolametto, L.E., Pearce, P., & Weitzman, E. (1996). Interactive focused stimulation for toddlers with expressive vocabulary delays. Journal of Speech and Hearing Research, 39, 1274-1283.
33.
Goodman, S. H. & Gottlieb, I. H. (Eds.). (2002). Children of depressed parents: Mechanisms of risk and implications for treatment (pp. 59-88). Washington, DC: American Psychological Association.
34.
Gorey, K.M. (2001). A meta-analytic affirmation of the short- and long-term benefits of educational opportunity. School Psychology Quarterly, 16, 9-30.
35.
Guralnick, M.J. (1998). Effectiveness of early intervention for vulnerable children. A developmental perspective. American Journal on Mental Retardation, 102, 319-345.
36.
Guralnick, M.J. (1999). Family and child influences on the peer-related social competence of young children with developmental delays. Mental Retardation and Developmental Disabilities Research Reviews, 5, 21-29.
37.
Hauser-Cram, P., Warfield, M.E., Shonkoff, J.P., & Krauss, M.W. (2001). Children with disabilities: A longitudinal study of child development and parental well-being. Monographs of the Society for Research in Child Development. Serial No. 266, 66(3).
38.
Henderson, L.W., Aydlett, L.A., & Bailey, D.B. (1993). Evaluating family needs surveys: Do standard measures of reliability and validity tell us what we want to know? Journal of Psychoeducational Assessment, 11, 208-219.
39.
Hernandez-Reif, M., Field, T., Del-Pino, N., & Diego, M. (2000). Less exploring by mouth occurs in newborns of depressed mothers. Infant Mental Health Journal, 21, 204-210.
40.
Individuals with Disabilities Education Act of 2004, Pub. L. No 108-446, U.S.C. 20, 1400 et seq.
41.
Iversen, M.D., Shimmel, J.P., Ciacera, S.L., & Prabhakar, M. (2003). Creating a family-centered approach to early intervention services: Perceptions of parents and professionals. Pediatric Physical Therapy, 15, 23-32.
42.
Jones, N.A., Fields, T., & Davalos, M. (2000). Right frontal EEG asymmetry and lack of empathy in preschool children of depressed mothers. Child Psychiatry and Human Development, 30, 189-204.
43.
Kaiser, A.P., & Hancock, T.B. (2003). Teaching parents new skills to support their young children's development. Infants and Young Children, 16, 9-21.
44.
Keogh, B.K., Garnier, H.E., Bernheimer, L.P., & Gallimore, R. (2000). Models of child-family interactions for children with developmental delays: Child-driven or transactional? American Journal on Mental Retardation, 105(1), 32-46.
45.
Landry, S., Smith, K., Swank, P., Assel, M., & Vellet, S. (2001). Does early responsive parenting have a special importance for children's development or is consistency across early childhood necessary? Developmental Psychology, 37(3), 387-403.
46.
Lanners, T., & Mombaerts, D. (2000). Evaluation of parents' satisfaction with early intervention services within and among European countries: Construction and applications of a new parent satisfaction scale. Infants and Young Children, 12, 61-70.
47.
Mahoney, G., Kaiser, A., Girolametto, L., Mac-Donald, J., Robinson, C., Safford, P., & Spiker, D. (1999). Parent education in early intervention: A call for a renewed focus. Topics in Early Childhood Special Education , 19, 131-140.
48.
McCollum, J.A., & Hemmeter, M.L. (1997). Parent-child interaction intervention when children have disabilities. In M. J. Guralnick (Ed.), The effectiveness of early intervention (pp. 549-578). Baltimore: Brookes.
49.
McCubbin, H.I., Thompson, E.A., Thompson, A.I., & McCubbin, M.A. (1993). Family schema, paradigms, and paradigm shifts: Components and processes of appraisal in family adaptation to crises. In A. P. Turnbull, et al., (Eds.), Cognitive coping, families, and disability (pp. 239-256). Baltimore: Brookes.
50.
McWilliam, R.A., Tocci, L., & Harbin, G. (1998). Family-centered services: Service providers' discourse and behavior. Topics in Early Child hood Special Education , 18, 206-221.
51.
Mobayed, K., Collins, B., Strangis, D., Schuster, J., & Hemmeter, M. (2000). Teaching parents to employ mand-model procedures to teach their children requesting. Journal of Early Intervention , 23, 165-179.
52.
Odom, S.L., Brantlinger, E., Gersten, R., Horner, R.H., Thompson, B., & Harris, K.R. (2005). Research in special education: Scientific methods and evidence-based practices. Exceptional Children, 71, 137-148.
53.
Odom, S.L., & Wolery, M. (2003). A unified theory of practice in early intervention/early childhood special education: Evidence-based practices. Journal of Special Education, 37, 164-173.
54.
Osofsky, J.D., & Thompson, M.D. (2000). Adaptive and maladaptive parenting: Perspectives on risk and protective factors. In J. P. Shonkoff & S. J. Meisels (Eds.), Handbook of early childhood intervention . Cambridge, UK: Cambridge University Press.
55.
Park, J., Hoffman, L., Marquis, J., Turnbull, A.P., Poston, D., Mannan, H., Wang, M., & Nelson, L.C. (2003). Toward assessing family outcomes of service delivery: Validation of a family quality of life survey. Journal of Intellectual Disability Research, 47, 367-384.
56.
Patterson, J.M. (1993). The role of family meanings in adaptation to chronic illness and disability. In A. P. Turnbull , et al., (Eds.), Cognitive coping, families, and disability (pp. 221-238). Baltimore: Brookes.
57.
Patterson, J.M., & Leonard, B.J. (1994). Caregiving and children. In E. Kahana, D. E. Biegel & M. L. Wykle (Eds.), Family caregiving across the lifespan. Thousand Oaks, CA : Sage Publications.
58.
Poston, D., Turnbull, A., Park, J., Mannan, H., Marquis, J., & Wang, M. (2003). Family quality of life: A qualitative inquiry . Mental Retardation, 41, 313-328.
59.
Ramey, C.T., & Ramey, L.T. (1998). Early intervention and experience. American Psychologist, 53, 109-120.
60.
Roberts, R.N., Innocenti, M.S., & Goetze, L.D. (1999). Emerging issues from state level evaluations of early intervention programs. Journal of Early Intervention , 22, 152-163.
61.
Sameroff, A.J., & Fiese, B.H. (2000). Transactional regulation: The developmental ecology of early intervention. In J. P. Shonkoff & S. J. Meisels (Eds.), Handbook of early childhood intervention (2nd edition), pp. 135-159. Cambridge: Cambridge University Press.
62.
Skinner, D., Bailey, D., Correa, V., & Rodriguez, P. (1999). Narrating self and disability: Latino parents' constructions of identity vis-à-vis their child with special needs. Exceptional Children, 65, 481-495.
63.
Spiker, D., Boyce, G., & Boyce, L. (2002). Parent-child interactions when young children have disabilities. International Review of Research in Mental Retardation, 25, 35-70.
64.
Summers, J.A., Poston, D.J., Turnbull, A.P., Marquis, J., Hoffman, L., Mannan, H., & Wang, M. (2005). Conceptualizing and measuring family quality of life. Journal of Intellectual Disability Research, 49, 777-783.
65.
Thompson, L., Lobb, C., Elling, R., Herman, S., Jurkiewicz, T., & Hulleza, C. (1997). Pathways to family empowerment: Effects of family-centered delivery of early intervention services. Exceptional Children , 64, 99-113.
66.
Trivette, C.M., & Dunst, C.J. (2004). Evaluating family based practices: Parenting experiences scale. Young Exceptional Children, 7(3), 12-19.
67.
Trivette, C.M., Dunst, C.J., Boyd, K., & Hamby, E.W. (1996). Family-oriented program models, helpgiving practices, and parental control appraisals. Exceptional Children, 62, 237-248.
68.
Turnbull, A., Blue-Banning, M., Behr, S., & Kerns, G. (1986). Family research and intervention: A value and ethical examination. In P. R. Dokecki & R. M. Saner (Eds.), Ethics of dealing with persons with severe handicaps: Toward a research agenda (pp. 119-140). Baltimore: Brookes.
69.
Turnbull, A., Turnbull, R., Agusta, J., Erwin, E., Fjuiura, G., Singer, G., & Soodak, L. (2006). Support of families and family life across the lifespan. In C. Lakin & A. Turnbull (Eds.), National goals & research for people with intellectual and developmental disabilities (pp. 217-256). Washington, DC: American Association on Mental Retardation .
70.
Wendland-Carro, J., Piccinini, C., & Stuart Millar, W. (1999). The role of an early intervention on enhancing the quality of mother-infant interaction. Child Development, 70(3), 713-721.
71.
Woods, J., Kashinath, S., & Goldstein, H. (2004). Effects of embedding caregiver-implemented teaching strategies in daily routines on children's communication outcomes. Journal of Early Intervention, 26, 175-193.
