Outlines a family-centered, culturally sensitive approach to working with young children with disabilities and their families
Get full access to this article
View all access options for this article.
References
1.
Aday, L. A., Aitken, M. J., & Wegener, D. H. (1988). Pediatric home care: Results of a national evaluation of programs for ventilator assisted children. Chicago: Pluribus Press, Inc., & University of Chicago, Center for Health Administration Studies.
2.
Ahmann, E. (1986). Home care for the high risk infant. A holistic guide to using technology. Rockville, MD: Aspen.
3.
Alexander, R., & Tompkins-McGill, P. (1987). Notes to the experts from the parent of a handicapped child. Social Work, 32, 361–362.
4.
Bailey, D. B. (1989). Issues and directions in preparing professionals to work with young handicapped children and their families. In J. J. Gallagher, P. L. Trohanis, & R. M. Clifford (Eds.), Policy implementation and PL 99–457: Planning for young children with special needs (pp. 97–132). Baltimore: Brookes.
5.
Bailey, D. B., & Simeonsson, R. (1985). Family needs survey. Chapel Hill: University of North Carolina, Frank Porter Graham, Child Development Center.
6.
Bailey, D. B., & Wolery, M. (1992). Teaching infants and preschoolers with disabilities (2nd ed.). New York: Merrill.
7.
Batavia, A. I., Dillard, D., & Phillips, B. (n.d.). How to avoid technology abandonment.Washington, DC: National Rehabilitation Hospital, REquest Rehabilitation Engineering Center.
8.
Batavia, A. I., & Hammer, G. (1989). Consumer criteria for evaluating assistive devices: Implications for technology transfer. In J. J. Presperin (Ed.), Proceedings of the 12th Annual Conference of the Rehabilitation Engineering Society of North America (pp. 194–195). Washington, DC: RESNA Press.
9.
Beckman-Bell, P. J. (1981). Child-related stress in families of handicapped children. Topics in Early Childhood Special Education, 1(3), 45–53.
10.
Behrmann, M. M. (1995). Assistive technology training. In K. F. Flippo, K. J. Inge, & J. M. Barcus (Eds.), Assistive technology. A resource for school, work, and community (pp. 211–222). Baltimore: Brookes.
11.
Behrmann, M. M., Jones, J. K., & Wilds, M. L. (1989). Technology intervention for very young children with disabilities. Infants and Young Children, 1, 66–77.
12.
Behrmann, M., & Lahm, L. (1983). Critical learning: Multiply handicapped babies get on-line. In M. M. Behrmann, & L. Lahm (Eds.), Proceedings of the National Conference on the Use of Microcomputers in Special Education (pp. 181–193). Reston, VA: Council for Exceptional Children.
13.
Beukelman, D. R., & Mirenda, P. (1992). Augmentative and alternative communication: Management of severe communication disorders in children and adults. Baltimore: Brookes.
14.
Blackstone, S. (1993). For consumers. Culture in the community. Augmentative Communication News, 6(2), 1–3.
15.
Blagojevic, B. (1995). Early childhood education and computer networking: Making connections. In J. L. Wright & D. D. Shade (Eds.), Young children: Active learners in a technological age (pp. 181–183). Washington, DC: National Association for the Education of Young Children.
16.
Bowe, F. G. (1995). Birth to five. Early childhood special education. New York: Delmar.
17.
Bradley, R. H., Parette, H. P., & VanBiervliet, A. (1995). Families of young technology-dependent children and the social worker. Social Work and Health Care, 21(1), 23–37.
18.
Brinker, R. P. (1992). Family involvement in early intervention: Accepting the unchangeable, changing the changeable, and knowing the difference. Topics in Early Childhood Special Education, 12, 307–332.
19.
Brinker, R. P., Seifer, R., & Sameroff, A. J. (1994). Relations among maternal stress, cognitive development, and early intervention in middle- and low-SES infants with developmental disabilities. American Journal on Mental Retardation, 98, 463–480.
20.
Brotherson, M. J., Cook, C. C., & Parette, H. P. (1996). A home-centered approach to assistive technology provision for young children with disabilities. Focus on Autism and Other Developmental Disabilities, 11, 86–95.
21.
Brotherson, M. J., Oakland, M. J., Secrist-Mertz, C., Litchfield, R., & Larson, K. (1995). Quality of life issues and families who make the decision to use a feeding tube for their child. Journal of the Association for Persons with Severe Handicaps, 20, 202–212.
22.
Brown, L., Nietupski, J., & Hamre-Nietupski, S. (1976). The criterion of ultimate functioning. In M. A. Thomas (Ed.), Hey, don't forget about mel (pp. 2–15). Reston, VA: Council for Exceptional Children.
23.
Burkhart, L. J. (1982). More homemade battery devices for severely handicapped children with suggested activities. College Park, MD: Author.
24.
Butler, C. (1988). High tech tots: Technology for mobility, manipulation, communication, and learning in early childhood. Infants and Young Children, 1, 66–73.
25.
Caldwell, T. H., Sirvis, B., Todaro, A. W., & Accouloumre, D. S. (1991). Special health care in the school. Reston, VA: Council for Exceptional Children.
26.
Campbell, P. H., Strickland, B., & La Forme, C. (1992). Enhancing parent participation in the Individualized Family Service Plan. Topics in Early Childhood Special Education, 11, 112–124.
27.
Center for Special Education Technology. (1990). Tech use guide. Using computer technology. Preschool children. Reston, VA: Author.
28.
Chan, S. (1992). Families with Asian roots. In E. W. Lynch & M. J. Hanson (Eds.), Developing cross-culture competence. A guide for working with children and their families (pp. 181–257). Baltimore: Brookes.
29.
Church, G., & Glennen, S. (1992a). Assistive technology program development. In G. Church & S. Glennen (Eds.), The handbook of assistive technology (pp. 1–26). San Diego: Singular.
30.
Church, G., & Glennen, S. (1992b). The assistive technology handbook. San Diego: Singular.
31.
Condry, S. (1989). A literature review of topics concerning children who are technology-supported and their families. Lawrence, KS: Beach Center on Families and Disability.
32.
Cross, T. L., Bazron, B. J., Dennis, K. W., & Isaacs, M. R. (1989). Towards a culturally competent system of care. Washington, DC: CASSP Technical Assistance Center.
33.
Curtin, T. R., Elliott, B. G., Ferguson, C. L., Fiore, T. A., Tashjian, M. D., Wine, J. S., & Winfield, D. (1992). National evaluation of state grants for technology-related assistance for individuals with disabilities program. Final report. Project profiles and matrices (Vol. 4). Research Triangle Park, NC: Research Triangle Institute.
34.
Doernberg, N. L. (1978). Some negative effects on family integration of health and educational services for young handicapped children. Rehabilitation Literature, 39, 107–110.
35.
Dokecki, P. R., & Heflinger, C. A. (1989). Strengthening families of young children with handicapping conditions: Mapping backward from the “street level.” In J. J. Gallagher, P. L. Trohanis, & R. M. Clifford (Eds.), Policy implementation and PL 99–457: Planning for young children with special needs (pp. 59–84). Baltimore: Brookes.
36.
Douglas, H. B., & Hoffman, H. (1978). Socialemotional development. In F. P. Connor, G. G. Williamson, & J. M. Siepp (Eds.), Program guide for infants and toddlers with neuromotor and other developmental disabilities (pp. 247–270). New York: Teachers College Press.
37.
Dunst, C., Trivette, C., & Deal, A. (1988). Enabling and empowering families. Cambridge, MA: Brookline.
38.
Education of the Handicapped Act Amendments of 1986, 20 U.S.C. $sT 1400 et seq.
39.
Fewell, R. (1986). The measurement of family functioning. In L. Bichman & D. Weatherford (Eds.), Evaluating early intervention programs for severely handicapped children and their families (pp. 263–307). Austin, TX: PRO-ED.
40.
Franklin, K. (1991). Assistive technology: Where are we? Where are we going?Journal of Vocational Rehabilitation, 1(2), 6–7.
41.
Frasier, B. A., McGregor, G., Kangas, K., & Arango, G. A. (1994). Physical characteristics assessment checklist for computer access. Wauconda, IL: Don Johnston Developmental Equipment, Inc.
42.
Friedrich, W., Wilturner, L. T., & Cohen, D. S. (1985). Coping resources and parenting mentally retarded children. American Journal of Mental Deficiency, 90, 130–139.
43.
Gallimore, R., Weisner, T. S., Bernheimer, L. P., Guthrie, D., & Nihira, K. (1993). Family responses to young children with developmental delays: Accommodation activity in ecological and cultural context. American Journal on Mental Retardation, 98, 185–206.
44.
Galvin, J. C. (1990). Evaluation of assistive technology. Washington, DC: REquest Rehabilitation Engineering Center.
45.
Garner, J. B., & Campbell, P. H. (1987). Technology for persons with severe disabilities: Practical and ethical considerations. The Journal of Special Education, 21, 122–132.
46.
Governor's Task Force on Technology and Disabilities. (1987). A final report of the task force on technology and disabilities. Albany: State of New York.
47.
Haddad, A. (1992). The long-term implications of caring for a ventilator-dependent child at home. Home Healthcare Nurse, 10, 10–11, 57.
48.
Hansen, C. E., & Perlman, L. G. (1989). Technology: A vital tool for persons with disabilities. Journal of Rehabilitation, 55, 18–21.
49.
Hanson, M. J., & Hanline, M. F. (1990). Parenting a child with a disability: A longitudinal study of parental stress and adaptation. Journal of Early Intervention, 14, 234–248.
50.
Hanson, M. J., & Lynch, E. W. (1995). Early intervention. Implementing child and family services for infants and toddlers who are at risk or disabled (2nd ed.). Austin, TX: PRO-ED.
51.
Harris, P. (1988). Sometimes pediatric home care doesn't work. American Journal of Nursing, 88, 851–854.
52.
Hayward, B. J., Curtin, T. R., Elliott, B. G., Tashjian, M. D., & Wine, J. S. (1992). National evaluation of state grants for technology-related assistance for individuals with disabilities program. Final report. Executive summary (Vol. 1). Research Triangle Park, NC: Research Triangle Institute.
53.
Hayward, B. J., & Elliott, B. J. (1992). National evaluation of state grants for technology-related assistance for individuals with disabilities program. Final report. Perspectives of consumers: Findings from focus groups (Vol. 2). Research Triangle Park, NC: Research Triangle Institute.
54.
Hofmann, A. C. (1993). The many faces of funding. Mill Valley, CA: Phonic Ear.
55.
Holder-Brown, L., & Parette, H. P. (1992). Children with disabilities who use assistive technology: Ethical considerations. Young Children, 47, 73–77.
56.
Individuals with Disabilities Education Act Amendments of 1991, 20 U.S.C. $sT 1400–1485.
57.
Issue Team on Technology for People with Disabilities. (1986). Abilities and technology. Governor's report on technology for people with disabilities. St. Paul: State of Minnesota.
58.
Lamb, H. R. (1980). Therapist case managers: More than brokers of services. Hospital and Community Psychiatry, 31, 762–764.
59.
Lewis, R. B. (1993). Special education technology. Classroom applications. San Diego: Brooks/Cole.
60.
Linestone, H. A., & Turoff, M. A. (Eds.). (1989). The Delphi method. Reading, MA: Addison-Wesley.
61.
Male, M. (1994). Technology for inclusion (2nd ed.). Boston: Allyn & Bacon.
62.
Mann, W. C., & Lane, J. P. (1991). Assistive technology for persons with disabilities. The role of occupational therapy. Rockville, MD: American Occupational Therapy Association.
63.
Maple, F. F. (1977). Shared decision making. Beverly Hills, CA: Sage.
64.
McBride, S. L., Brotherson, M. J., Joanning, H., Whiddon, D., & Demmit, A. (1993). Implementation of family-centered services: Perceptions of families and professionals. Journal of Early Intervention, 17, 414–430.
65.
McGonigel, M. J., Kaufmann, R. K., & Johnson, B. H. (1991). Guidelines and recommended practices for the individualized family service plan (2nd ed.). Bethesda, MD: Association for the Care of Children's Health.
66.
Meadow-Orlans, K. P. (1994). Stress, support, and deafness: Perceptions of infants' mothers and fathers. Journal of Early Intervention, 18, 91–102.
67.
Morris, M. W. (1990). Assistive technology funding. A user friendly workbook. Washington, DC: RESNA.
68.
Murphy, K. E. (1988a). Psychosocial model of discharge and home care planning. Chicago: University of Illinois at Chicago, Division of Services for Crippled Children.
69.
Murphy, K. E. (1988b). Thinking about setting up the home environment. Chicago: University of Illinois at Chicago, Division of Services for Crippled Children.
70.
National Information Center for Children and Youth with Disabilities. (1991). Related services for schoolage children with disabilities. NICHCY News Digest, 1, 1–24.
71.
Office of Technology Assessment. (1982). Technology and handicapped people. New York: Springer.
72.
Parette, H. P. (1990). Use of technological assistance and families of young children with disabilities. Psychological Reports, 67, 1–2.
73.
Parette, H. P. (1995). Augmentative and alternative communication (AAC) assessment and prescriptive practices for young children with disabilities: Preliminary examination of state practices. Technology and Disability, 4, 215–231.
74.
Parette, H. P., & Angelo, D. H. (1996). Augmentative and alternative communication impact on families: Trends and future directions. The Journal of Special Education, 30, 77–98.
75.
Parette, H. P., & Brotherson, M. J. (1996). Family participation in assistive technology assessment for young children with disabilities. Education and Training in Mental Retardation and Developmental Disabilities, 31(1), 29–43.
76.
Parette, H. P., Heiple, G., Rudolph, D., & Dunn, N. (1995). Keyboard Kids: A curriculum for teaching young children with disabilities basic computing skills. Closing the Gap, 14(4), 14–15, 32–33.
77.
Parette, H. P., & VanBiervliet, A. (1990a). Assistive technology inservice… A module of instruction for professionals. Little Rock: University of Arkansas Press.
78.
Parette, H. P., & VanBiervliet, A. (1990b). Schoolage children with disabilities and technology needs. Journal of Special Education Technology, 10, 198–206.
79.
Parette, H. P., & VanBiervliet, A. (1991). Rehabilitation technology issues for infants and young children with disabilities: A preliminary examination. Journal of Rehabilitation, 57, 27–36.
80.
Pfrommer, M. C. (1984). Utilization of technology: Consumer perspective. In C. Smith (Ed.), Discovery ′84: Technology for disabled persons. Conference papers (pp. 237–242). Menomonie: University of Wisconsin—Stout, Stout Vocational Rehabilitation Institute, Materials Development Center.
81.
Quade, E. S. (1982). Analysis for public policy decisions. New York: Elsevier, North-Holland.
82.
RESNA. (1989). Technology related assistance for individuals with disabilities. Summaries of 1989 successful grant applications awarded under P.L. 100–407. Washington, DC: Author.
83.
RESNA Technical Assistance Project. (1992). Technology and the individualized education program. Arlington, VA: RESNA.
84.
RESNA Technical Assistance Project. (1994). Technology and the individualized education program: A primer for parents and professionals. Technology and Disability, 3, 100–108.
85.
Rosin, P., Whitehead, A., Tuchman, L., Jesian, G., & Begun, A. (1993). Partnerships in early intervention. A training guide on family-centered care, team building, and service coordination. Madison: University of Wisconsin—Madison, Waisman Center.
86.
Rutter, M. (1972). Maternal deprivation reassessed. Middlesex: Penguin.
87.
Rutter, M. (1979). Maternal deprivation 1972–1978: New findings, new concepts, new approaches. Child Development, 50, 283–305.
88.
Sharp, V. (1996). Computer education for teachers (2nd ed.). Madison, WI: Brown & Benchmark.
89.
Shelton, T. L., Jeppson, E. S., & Johnson, B. H. (1987). Family-centered care for children with special health care needs. Washington, DC: Association for the Care of Children's Health.
90.
Slentz, K. L., & Bricker, D. (1992). Family-guided assessment for IFSP development: Jumping off the family assessment bandwagon. Journal of Early Intervention, 16, 11–19.
91.
Smith-Lewis, M. (1992). What is mental retardation? Perceptions from the African American community. Unpublished manuscript, Hunter College, New York.
92.
Stein, L. I., & Test, M. A. (1980). Alternative to mental hospital treatment, I: Conceptual, model, treatment program, and clinical evaluation. Archives of General Psychiatry, 37, 392–397.
93.
Stewart, L. (1994). Family-centered care. In M. Krajicek & R. Tompkins (Eds.), The medically fragile infant (pp. 37–47). Austin, TX: PRO-ED.
94.
Technology-Related Assistance for Individuals with Disabilities Act of 1988, 29 U.S.C. $sT 2201 et seq.
95.
Trivette, C., Deal, A., & Dunst, C. (1986). Family needs, sources of support, and professional roles: Critical elements of family systems assessment and intervention. Diagnostique, 11, 246–267.
96.
VanBiervliet, A., Parette, H. P., & Bradley R. H. (1991). Infants with disabilities and their families: A conceptual model for technology assessment. In J. J. Presperin (Ed.), Thirteenth Annual RESNA National Conference Proceedings (pp. 219–221). Washington, DC: RESNA.
97.
Vanderheiden, G. C., & Dolan, T. R. (1985). Promises and concerns of technological intervention for children with disabilities. In Health Resources and Services Administration, Developmental Handicaps (Ed.), Developmental handicaps: Prevention and treatment III. A cooperative project between university affiliated facilities and state MCH/CC programs (pp. 23–42). Rockville, MD: Office for Maternal and Child Health Services. (ERIC Document Reproduction Service No. ED 276 194)
98.
Wiseman, P. (1994, July). The Internet snares more business. USA Today, p. B1.