Abstract
Dis ease refers to the state of being that leads one to investigate the easy assumptions and life norms that frame both conscious choice and unconscious behavior. Whereas disease reflects a medical model of diagnosis, treatment and cure, dis ease challenges dominant frames of reference and rejects simple solutions to complex and intractable challenges. This notion of dis ease, developed and documented in a blog written by the second author while living with Amyotrophic Lateral Sclerosis (ALS), is connected in this article to disability studies and Crip Theory in order to (1) illustrate individual and collective responses to dis ease; (2) argue tine elusiveness but absolute importance of critical consciousness in the practice of school leadership for social justice; and (3) offer possibilities for more fully understanding injustice, developing dichotomous awareness, connecting more authentically with others, and identifying more skillful, just action.
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