Abstract
Background
Bereavement care in hospice and palliative care settings commonly includes sending letters or cards to bereaved family members and holding memorial services; however, this practice varies widely across facilities and has not been explored in past research in the Japanese context.
Objective
This study examines the current practices and bereaved family members’ evaluations of letters, cards, and memorial services in hospice and palliative care units in Japan.
Methods
A nationwide retrospective survey was conducted as part of the J-HOPE4 study using self-administered questionnaires mailed to the bereaved family members of patients who died in participating palliative care units.
Results
Among the 563 respondents, 59.9% had received letters and cards. The most positively evaluated content included expressions of appreciation for care during hospitalization, concern for the family’s life after discharge, and messages reflecting the patient’s personality. The actual and preferred sending times were largely aligned. Only 9% attended memorial services; the key reasons included the desire to meet or talk with clinicians and expectations of emotional comfort. Respondents preferred services that involved opportunities to interact with staff and events that offered emotional support.
Conclusion
Bereaved family members value individualized letters and cards that acknowledge the patient and family context. Although participation in memorial services was low, attendees sought emotional processing and reconnection from clinicians. These findings highlight the importance of individualized relationship-based bereavement support in palliative care.
Get full access to this article
View all access options for this article.
References
Supplementary Material
Please find the following supplemental material available below.
For Open Access articles published under a Creative Commons License, all supplemental material carries the same license as the article it is associated with.
For non-Open Access articles published, all supplemental material carries a non-exclusive license, and permission requests for re-use of supplemental material or any part of supplemental material shall be sent directly to the copyright owner as specified in the copyright notice associated with the article.
