To investigate the psychometric properties of the Greek 13-item measure of patients’ satisfaction (FAMCARE-P13) in palliative care setting.
Methods:
A hundred patients completed the FAMCARE-P13. Exploratory factor analysis and confirmatory factor analysis (CFA) have been conducted. Two factors’ solution was revealed from CFA. The questionnaire was administered to an initial validation sample and then for test–retest in a sample of 40 patients 3 days later. The Rosenberg Self-Esteem Scale measuring global self-esteem has been also used as a gold standard for construct validity. Subscale and known groups validity have also been tested for FAMCARE-P13s’ validity.
Results:
A reduced 13-item version of our measure (FAMCARE-P13) possessed 2-factor structure with high reliability. Patient satisfaction was correlated with physical distress, communication and relationship with health-care providers, and caregiver satisfaction.
Conclusions:
We recommend the use of the Greek FAMCARE-P13 to assess care satisfaction of patients with advanced-stage cancer.
LoCBurmanDRodinGZimmermannC. Measuring patient satisfaction in oncology palliative care: psychometric properties of the FAMCARE-patient scale. Qual Life Res. 2009;18(6):747–752.
2.
AvisMBondMArthurA. Satisfying solutions? A review of some unresolved issues in the measurement of patient satisfaction. J Adv Nurs. 1995;22(2):316–322.
3.
HarrisLESwindleRWMungaiSMWeinbergerMTierneyWM. Measuring patient satisfaction for quality improvement. Med Care. 1999;37(12):1207–1213.
4.
World Health Organization. Quality Assurance in Health Care. Geneva, Switzerland: WHO; 1989.
5.
Institute of Medicine. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC: National Academy Press; 2001.
6.
PascoeGC. Patient satisfaction in primary health care: a literature review and analysis. Eval Program Plann. 1983;6(3-4):185–210.
7.
AlbrechtGHoogstratenJ. Satisfaction as a determinant of compliance. Community Dent Oral Epidemiol. 1998;26(2):139–146.
8.
McCrackenLMKlockAMingayDJAsburyJKSinclairDM. Assessment of satisfaction with treatment for chronic pain. J Pain Symptom Manag. 1997;14(5):292–299.
9.
WeaverMPatrickDLMarksonLEMartinDFredericIBergerM. Issues in the measurement of satisfaction with treatment. Am J Manag Care. 1997;3(4):579–594.
10.
AndersonRBHollenbergNKWilliamsGH. Physical symptoms distress index: a sensitive tool to evaluate the impact of pharmacological agents on quality of life. Arch Intern Med. 1999;159(7):693–700.
11.
BrodyDMillerSLermanCSmithDCaputoG. Patient perception of involvement in medical care: relationship to illness attitudes and outcomes. J Gen Intern Med. 1989;4(6):506–511.
12.
TaylorTR. Understanding the choices that patients make. J Am Board Fam Pract. 2000;13(2):124–133.
13.
Dunbar-JacobJErlenJASchlenkEARyanCMSereikaSMDoswellWM. Adherence in chronic disease. Annu Rev Nurs Res. 2000;18:48–90.
14.
JohnsenATPetersenMAPedersenLGroenvoldM. Symptoms and problems in a nationally representative sample of advanced cancer patients. Palliat Med. 2009;23(6):491–501.
15.
JohnsenATPetersenMAPedersenLHoumannLJGroenvoldM. Do advanced cancer patients in Denmark receive the help they need? A nationally representative survey of the need related to 12 frequent symptoms/problems. Psychooncology. 2013;22(8):1724–1730.
16.
AspinalFAddington-HallJHughesRHigginsonIJ. Using satisfaction to measure quality of palliative care: a review of the literature. J Adv Nurs. 2003;42(4):324–339.
17.
WareJESnyderMKWrightWRDaviesAR. Defining and measuring patient satisfaction with medical care. Eval Program Plann. 1983;6(3-4):247–263.
18.
ChandPGabrielTWallaceCLNelsonCM. Inpatient palliative care consultation: describing patient satisfaction. Permanente J. 2013;17(1):53–55.
19.
HenriksenKMEHellerNFinucaneAMOxenhamD. Is the patient satisfaction questionnaire an acceptable tool for use in a hospice inpatient setting? A pilot study. BMC Palliat Care. 2014;13:27. doi:101186/1472-684X-13-27.
20.
KristjansonLJ. Validity and reliability testing of the FAMCARE scale: measuring family satisfaction with advanced cancer care. Soc Sci Med. 1993;36(5):693–701.
21.
LoCBurmanDHalesSSwamiNRodinGZimmermannC. The FAMCARE-Patient scale: measuring satisfaction with care of outpatients with advanced cancer. Eur J Cancer. 2009;45(18):3182–1388.
22.
RosenbergM. Conceiving the Self. Malabar, FL: Krieger Malabar; 1986.
23.
RosenbergM. Society and the Adolescent Self-Image. University Press, Princeton, NJ: Princeton; 1965.
24.
OkenMMCreechRHTormeyDC. Toxicity and response criteria of the Eastern Cooperative Oncology Group. Am J Clin Oncol. 1982;5(6):649–655.
25.
MechanicDMeyerS. Concepts of trust among patients with serious illness. Soc Sci Med. 2000;51(5):657–668.
SalmonPYoungB. Dependence and caring in clinical communication: the relevance of attachment and other theories. Patient Educ Couns. 2009;74(3):331–338.
28.
HallMADuganEZhengBMishraAK. Trust in physicians and medical institutions: what is it, can it be measured, and does it matter?Milbank Q. 2001;79(4):613–639.
29.
HolwerdaNSandermanRPoolG. Do patients trust their physician? The role of attachment style in the patient-physician relationship within one year after a cancer diagnosis. Acta Oncol. 2013;52(1):110–117.
30.
ThompsonDCiechanowskiPS. Attaching a new understanding to the patient–physician relationship in family practice. J Am Board Fam Med. 2003;16(3):219.
31.
DozierMCueKLBarnettL. Clinicians as caregivers: role of attachment organization in treatment. J Consult Clin Psych. 1994;62(4):793–799.
32.
DykeJT. The association of attachment, object relations and interpersonal functioning with the working alliance in college counselling. Diss Abstr Int Sect A Human Soc Sci. 1996;57(A-4):1499.
33.
EagleMN. Clinical implications of attachment theory. Psychoanal Inq. 2003;23(1):27–54.
34.
SatterfieldWALyddonWJ. Client attachment and the working alliance. Couns Psychol Q. 1998;11(1):407–415.
35.
BennettJKFuertesJNKeitelMPhillipsR. The role of patient attachment and working alliance on patient adherence, satisfaction, and health-related quality of life in lupus treatment. Patient Educ Couns. 2011;85(1):53–59.
36.
MartinLRJahngKHGolinCEDiMatteoMR. Physician facilitation of patient involvement in care: correspondence between patient and observer reports. Behav Med. 2003;28(4):159–164.
37.
DiMatteoMR. The role of effective communication with children and their families in fostering adherence to pediatric regimens. Patient Educ Couns. 2004;55(3):339–344.
38.
GuptaDRodeghierMLisCG. Patient satisfaction with service quality as a predictor of survival outcomes in breast cancer. Support Care Cancer. 2014;22:129–134. doi:101007/s00520-013-1956-7.
39.
GuptaDMarkmanMRodeghierMLisCG. The relationship between patient satisfaction with service quality and survival in pancreatic cancer. Patient Prefer Adherence. 2012;6:765–772. doi:102147/PPAS37900.
40.
TanAZimmermannCRodinG. Interpersonal processes in palliative care: an attachment perspective on the patient–clinician relationship. Palliat Med. 2005;19(2):143–150.
