Restricted accessResearch articleFirst published online 2011-5
Quality of Life for Children With Life-Limiting and Life-Threatening Illnesses: Description and Evaluation of a Regional,Collaborative Model for Pediatric Palliative Care
The care of children in the U.S. with life-limiting illnesses is inadequate. Misallocated resources, flawed assumptions and models of care, and a lack of appropriate professional education foster a costly, inefficient system that falls short of its true potential. This article details the evolution of a regional, shared approach to address these issues, the District of Columbia Pediatric Palliative Care Collaboration (DCPPCC), and includes its evolution, preliminary clinical results, and assessment of barriers encountered.
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