National experts have recommended that children with life-limiting illnesses receive integrated palliative and medical care. These programs offer a variety of services, including music therapy. Using survey data from parents whose were enrolled in Florida’s Partners in Care: Together for Kids (PIC:TFK) program, this study investigates parents’ experiences with music therapy. About 44% of children with life-limiting illnesses and 17% of their siblings used music therapy. For children who used music therapy, multivariate results suggest that their parents were 23 times as likely to report satisfaction with the overall PIC:TFK program (P < .05) versus parents whose children did not use music therapy. Pediatric palliative care programs should include music therapy, although recruiting licensed music therapists may be challenging.
Periyakoil V. , Hallenbeck J.Identifying and managing preparatory grief and depression at the end of life. Am Fam Physician. http://www.aafp.org/afp/20020301/883.html. Accessed on April 1, 2009.
2.
Clements-Cortes A.The use of music in facilitating emotional expression in the terminally ill. Amer J Hosp Pall Med. 2004;21(4):255-260.
3.
O’Kelly J.Music therapy in palliative care: Current perspectives. Int J Pall Nurs. 2002;8(3):130-136.
4.
Lee C.Transcription of an improvisation from a session with a client living with HIV. In: Lee C, ed. Lonely Waters. Oxford: Sobell Publications;1996.
5.
Horne-Thompson A., Grocke D.The effect of music therapy on anxiety in patients who are terminally ill. J Pall Med. 2008;11(4):582-590.
6.
Renz M., Schutt Mao M., Cerny T.Spirituality, psychotherapy and music in palliative cancer care: research projects in psycho-oncology at an oncology center in Switzerland. Support Care Cancer. 2005;13(12):961-966.
7.
Hilliard R.Music therapy in hospice and palliative care: A review of the empirical data . Evd Based Compl Alter Med. 2005;2(2):173-178.
8.
Gallagher L. , Lagman R., Walsh D., Davis M., Legrand S.The clinical effects of music therapy in palliative medicine. Support Care Cancer. 2006;14(8):859-686.
9.
Freeman L., Caserta M., Lund D., Rossa S., Dowdy A., Partenheimer A.Music thanatology: Prescriptive harp music as palliative care for the dying patient. Am J Hosp Pall Care. 2006;23(2):100-104.
10.
Magill L., Berenson S.The conjoint use of music therapy and reflexology with hospitalized advanced stage cancer patients and their families. Pall Support Care . 2008;6(3):289-296.
11.
O’Callaghan C., Hiscock R.Interpretive subgroup analysis extends modified grounded theory research findings in oncologic music therapy. J Music Ther. 2007;44(3): 256-281.
12.
Hilliard R.The effects of music therapy on the quality and length of life of people diagnosed with terminal cancer. J Music Therap. 2003 ;40(2):113-137.
13.
Lindenfelser K., Grocke D., McFerran K.Bereaved parents’ experiences of music therapy with their terminally ill child. J Music Ther. 2008;45(3):330-348.
14.
Desquiotz-Sunnen N.Singing for preterm born infants music therapy in neonatology. Bull Soc Sci Med Grand Duche Luxemb. 2008;1:131-143.
15.
McSherry M. , Kehoe K., Carroll J., Kang T., Rourke M.Psychosocial and spiritual needs of children living with a life-limiting illness. Pediatr Clin North Am . 2007;54(5):609-629.
16.
Donnelly J. , Huff S., Lindsey M., McMahon K., Schumacher J.The needs of children with life-limiting conditions: a healthcare-provider-based model. Am J Hosp Pall Care. 2005;22(4):259-267.
17.
Rahi J., Manaras I., Tuomainen H., Hundt G.Meeting the needs of parents around the time of diagnosis of disability among their children: evaluation of a novel program for information, support, and liaison by key workers. Pediatrics. 2004;114(4):e477-e482.
18.
MacDonald H. , Callery P.Parenting children requiring complex care: a journey through time. Child Care Health Dev. 2008;34(2):e207-e213.
19.
Stein A., Forrest G., Woolley H., Baum J.Life threatening illness and hospice care. Arch Dis Child . 1990;65(4):468.
20.
Field M, Behrman R, eds. When Children Die: Improving Palliative Care and End-of-Life Care for Children and their Families. Washington, DC: National Academy Press; 2002.
21.
Statistical Analysis Software for Professionals, Release 9. http://www.stata.com/products/overview.html. Accessed January 2009.
22.
American Academy of Pediatrics: Committee on Bioethics and Committee on Hospital Care.Palliative Care for Children. Pediatrics. 2000;106(2 pt 1):351-357.
23.
Mansky P., Wallerstedt D.Complementary medicine in palliative care and cancer symptom management. Cancer J. 2006;12(5):425-431.
24.
Demmer C., Sauer J.Assessing complementary therapy services in a hospice program. Am J Hosp Pall Care. 2002;19(5):306-314.
25.
Giuliano A. , Mokuau N., Hughes C., et al. Participation of minorities in cancer research: the influence of structural, cultural, and linguistic factors. Ann Epi. 2000; 10 (8):S22-S34.
26.
Boulware L. , Cooper L., Ratner L., LaVeist T., Powe N.Race and trust in the health care system. Public Health Rep. 2003;118(4):366-367.
27.
Moran J.Seriously Ill Children’s Coordinated Health Care Plan Introduced [Press Release]. http://moran.house.gov/apps/list/press/va08_moran/CHIPACC.shtml . Accessed January 2009.
28.
Huang I., Shenkman E., Leite W., Knapp C., Thompson L., Revicki D.Measurement invariance was not found in adolescents’ quality of life rated by parents and adolescents. J Clin Epi.2009;60(3):337-346.
