Relief of spiritual distress is a part of good palliative care. This literature review examines journal articles and texts dealing with patient spiritual issues at the end of life to see what constitutes spiritual care, why such issues are felt to be part of healthcare, and how, when, and by whom they should be explored. It also looks at the anticipated outcomes of addressing spiritual distress. This review also notes recommendations in the literature regarding prerequisite skills and attributes of those providing spiritual care and some tools for spiritual assessment and guidance.
World Health Organization: Cancer Pain Relief and Palliative Care: Report of a WHO Expert Committee. Technical report series 804. Geneva: World Health Organization, 1990.
2.
Woodruff R: Palliative Medicine: Symptomatic and Supportive Care for Patients with Advanced Cancer and AIDS (3rd ed.). Melbourne: Oxford University Press, 1999.
3.
Cherny NI, Coyle N, Foley KM: Suffering in the advanced cancer patient: A definition and taxonomy. J Palliat Care. 1994; 10(2): 57-70.
4.
Saunders C: The philosophy of terminal care. In Saunders C (ed.): The Management of Terminal Malignant Disease (2nd ed.). Baltimore: Arnold, 1984, pp. 232-241.
5.
Ferris FD, Cummings I (eds.): Canadian Palliative Care Association Standards Committee: Palliative care—towards a consensus in standardized principles of practice (first phase working document). Ottawa: Canadian Palliative Care Association, 1995, p. 12.
6.
Cummings I: The interdisciplinary team. In Doyle D, Hanks G, McDonald N (eds.) Oxford Text of Palliative Medicine (2nd ed.) Oxford: Oxford University Press, 1999, pp. 19-30.
7.
Cassell EJ: The nature of suffering and the goals of medicine. N Engl J Med. 1982; 306(11): 639-645.
8.
Fields H, Martin J: Pain: pathophysiology and management. In Braunwald E, Fauci AS, Kasper DL, et al. (eds.): Harrison’s Principles of Internal Medicine (15th ed.). New York: McGraw-Hill, 2000, p. 55.
9.
Whipp M: Spirituality and the scientific mind: A dilemma for doctors. In Cobb M, Robshaw V (eds.): The Spiritual Challenge of Health Care. Edinburgh: Churchill Livingstone, 1998, 137-150.
10.
Ross L: The spiritual dimension: Its importance to patients’ health, well-being and quality of life and its implications for nursing practice. Int J Nurs Stud. 1995; 32: 457-468.
11.
International Work Group on Death, Dying and Bereavement: Assumptions and principles of spiritual care. In Corr CA, Morgan JD, Wass H. Statements on Death, Dying and Bereavement. Toronto: International Work Group on Death, Dying and Bereavement at King’s College, 1994.
Moberg DO: Religion and aging. In Ferraro KF (ed.): Gerontology: Perspectives and Issues (2nd ed.). New York: Springer, 1997, pp. 193-220.
15.
Onions CT: Spirituality. In The Shorter Oxford English Dictionary on Historical Principles3rd ed.). Oxford: Clarendon Press, 1973.
16.
James W: The Varieties of Religious Experience: A Study in Human Nature. London: Longmans, Green, 1902.
17.
Kellehear A: Spirituality and palliative care: a model of needs. Palliat Med. 2000; 14: 149-155.
18.
Cohen SR, Mount BM: Quality of life in terminal illness: Defining and measuring subjective well-being in the dying. J Palliat Care. 1992; 8: 40-45.
19.
Byock IR: The nature of suffering and the nature of opportunity at the end of life. Clin Geriatr Med. 1996; 12(2): 237-252.
20.
Reed P: The re-enchantment of health care: a paradigm of spirituality. In Cobb M, Robshaw V (eds.): The Spiritual Challenge of Health Care. Edinburgh: Churchill Livingstone, 1998, pp. 35-55.
21.
Frankl VE: Man’s Search for Meaning. London: Hodder and Stoughton, 1987.
22.
Walter T: The ideology and organisation of spiritual care: Three approaches. Palliat Med. 1997; 11: 21-30.
23.
Speck P: The meaning of spirituality in illness. In Cobb M, Robshaw V (eds.): The Spiritual Challenge of Health Care. Edinburgh: Churchill Livingstone, 1998, pp. 21-33.
24.
Markham I: Spirituality and the world faiths. In Cobb M, Robshaw V (eds.): The Spiritual Challenge of Health Care. Edinburgh: Churchill Livingstone, 1998, pp. 73-87.
25.
Rumbold B: Spirituality and Palliative Care: Social and Pastoral Perspectives. South Melbourne: Oxford University Press, 2002, p. 15.
26.
Steinhauser KE, Christakis NA, Clipp EC, et al.: Factors considered important at the end of life by patients, family, physicians and other care providers. JAMA. 2000; 284(19): 2476-2482.
27.
King M, Speck P, Thomas A: The effect of spiritual beliefs on outcome from illness. Soc Sci Med. 1997; 48(9): 1291-1299.
28.
Cobb M: Assessing spiritual needs: an examination of practice. In Cobb M, Robshaw V, (eds.): The Spiritual Challenge of Health Care. Edinburgh: Churchill Livingstone, 1998, pp. 105-118.
29.
Yalom ID: Existential Psychotherapy. New York: Basic Books, 1980.
30.
Twycross R, Barton J, Clench P, et al.: Mud and Stars: The Impact of Hospice Experience on the Church’s Ministry of Healing. Oxford: Sobell Publications, 1991.
31.
Small N: Spirituality and hospice care. In Cobb M, Robshaw V (eds.): The Spiritual Challenge of Health Care. Edinburgh: Churchill Livingstone, 1998, pp. 167-182.
32.
Neuberger J: Spiritual care, health care, what’s the difference? In Cobb M, Robshaw V (eds.): The Spiritual Challenge of Health Care. Edinburgh: Churchill Livingstone, 1998, 7-20.
33.
Hay MW: Principles in building spiritual assessment tools. Am J Hosp Care. 1989; 6(5): 25-31.
34.
Kellehear A: Spiritual care in palliative care: Whose job is it? In Rumbold B (ed.): Spirituality and Palliative Care: Social and Pastoral Perspectives. South Melbourne: Oxford University Press, 2002, pp. 166-178.
35.
Jacobs M: Faith as ‘the space between.’ In Cobb M, Robshaw V (eds.): The Spiritual Challenge of Health Care. Edinburgh: Churchill Livingstone, 1998, pp. 57-71.
36.
Millard R: Facing the situation. In Rumbold B (ed.): Spirituality and Palliative Care: Social and Pastoral Perspectives. South Melbourne: Oxford University Press, 2002, pp. 97-115.
Peck MS: Psychiatry’s predicament. In Further Along the Road Less Travelled. The Unending Journey towards Spiritual Growth. Riverside, NJ: Simon and Schuster, 1993, p. 38.
39.
Ross L: The nurse’s role in spiritual care. In Cobb M, Robshaw V (eds.): The Spiritual Challenge of Health Care. Edinburgh: Churchill Livingstone, 1998, 121-135.
40.
Wright MC: The essence of spiritual care: A phenomenological enquiry. Palliat Med. 2002; 16: 125-132.
41.
Johnson A: The notion of spiritual care in professional practice. In Cobb M, Robshaw V (eds.): The Spiritual Challenge of Health Care. Edinburgh: Churchill Livingstone, 1998, pp. 151-166.
42.
Rumbold B: Spiritual dimensions in palliative care. In Hodder P, Turley A (eds.): The Creative Options of Palliative Care. Brunswick, Victoria: Melbourne City Mission, 1989, pp. 110-127.
43.
Peck MS: Denial of the Soul: Spiritual and Medical Perspectives on Euthanasia and Mortality. New York: Harmony Books, 1997, pp. 160-189.
44.
Byock IR: Dying Well: Peace and Possibilities at the End of Life. New York: Riverhead Books, 1997.
45.
Taylor EJ, Amanta M, Highfield M: Spiritual care practices of oncology. Oncol Nurs Forum. 1995; 22(1): 31-39.
46.
Jenkins B: Offering spiritual care. In Rumbold B (ed.): Spirituality and Palliative Care: Social and Pastoral Perspectives. South Melbourne: Oxford University Press, 2002, 116-149.
47.
Cobb M: The Dying Soul. Buckingham: Open University Press, 2001.
48.
Hamilton DG: Believing in patients’ beliefs: Physician attunement to the spiritual dimension as a positive factor in patient healing and health. Am J Hosp Palliat Care. 1998; 15(5): 276-279.
49.
Puchalski C: Toolkit of instruments to measure end of life care. The George Washington Institute for Spirituality and Health. Available online at www.gwu.edu/%7Ecicd/toolkit/toolkit.htm. Accessed October 12, 2005.
50.
Emblem JD, Halstead L: Spiritual needs and interventions: Comparing the views of patients, nurses and chaplains. Clin Nurse Spec. 1993; 7(4): 175-182.
51.
Stoll RI: Guidelines for spiritual assessment. Am J Nurs. 1979; 79(9): 1574-1577.
52.
NHS Executive Northern and Yorkshire Chaplains and Pastoral Care Committee 1995: Framework for spiritual, faith and related pastoral care. Leeds, UK: University of Leeds Institute of Nursing, 1998.
53.
Fowler J: Stages of Faith. San Francisco: Harper and Row, 1981.
54.
Frank A: The Wounded Storyteller: Body, Illness, and Ethics. Chicago: University of Chicago Press, 1995.
55.
Speck P: Spiritual issues in palliative care. In Doyle D, Hanks GWC, McDonald N (eds.): Oxford Textbook of Palliative Medicine. Oxford: Oxford University Press, 1993, pp. 517-525.
56.
Walter T: Spirituality in palliative care: Opportunity or burden?Palliat Med. 2002; 16(2): 133-139.
Hockey J: Dying the way we live. In Rumbold B (ed.): Spirituality and Palliative Care: Social and Pastoral Perspectives. South Melbourne: Oxford University Press, 2002, pp. 51-63.
