Veldink JH, Wokke JH, van der Wal G, et al.: Euthanasia and physician-assisted suicide among patients with amyotrophic lateral sclerosis in the Netherlands. N Engl J Med. 2002; 346(21): 1638-1644.
2.
Ganzini L, Johnston WS, McFarland BH, et al.: Attitudes of patients with amyotrophic lateral sclerosis and their care givers toward assisted suicide. N Engl J Med. 1998; 339(14): 967-973.
3.
Albert SM, Del Bene ML, Rabkin JG, et al.: The decision to hasten death in people with ALS. Amyotroph Lateral Scler Other Motor Neuron Disord. 2003; 4(Supp 1): 39.
4.
Albert SM, Murphy PM, Del Bene ML, et al.: A prospective study of palliative care in ALS: Choice, timing, outcomes. J Neurol Sci. 1999; 169: 108-113.
5.
Annas GJ: The promised end: Constitutional aspects of physician-assisted suicide. N Engl J Med. 1996; 335: 683-687.
6.
Borasio GD, Walsh D: Palliative Care in Amyotrophic Lateral Sclerosis. New York: Oxford University Press, 2000.
7.
Horn RC III, Keeler G: Who’s Right? (Whose Right?): Seeking Answers and Dignity in the Debate Over the Right to Die, Sanford, FL: DC Press, 2001.
8.
Field MJ, Cassel CK (eds.): Approaching Death: Improving Care at the End of Life. Washington, DC: National Academic Press, 1997.
9.
Ganzini L, Johnston WS, Silveira MJ: The final month of life in patients with ALS. Neurology. 2002; 59(3): 428-431.
10.
Ganzini L, Silveira MJ, Johnston WS: Predictors and correlates of interest in assisted suicide in the final month of life among ALS patients in Oregon and Washington. J Pain Symptom Manage. 2002; 24(3): 312-317.
11.
Johnston W, Bascom P: Physicians’ Role in PAS Discussions. Virtual Mentor (Ethics Journal of the American Medical Association). 2004; 6(8). Available online at www.amaassn.org/ama/pub/category/12713.html%23. Last accessed October 27, 2004.
12.
Miller RG, Anderson FA Jr, Bradley WG, et al.: The ALS patient care database: Goals, design, and early results. ALS C.A.R.E. Study Group. Neurology. 2000; 54(1): 53-57.
13.
Miller RG, Rosenberg JA, Gelinas DF, et al.: Practice parameter: The care of the patient with amyotrophic lateral sclerosis (an evidence-based review). Muscle Nerve. 1999; 22(8): 1104-1118.
14.
Mitsumoto H: Patient choices in ALS: Life-sustaining treatment versus palliative care?Neurology. 1999; 53(2): 278-283.
15.
Moss AH, Oppenheimer EA, Casey P, et al.: Patients with amyotrophic lateral sclerosis receiving long-term mechanical ventilation: Advance care planning and outcomes. Chest. 1996; 110(1): 249-255.