In this article, the social economic practices related to perinatal death, based on Rando’s model of complicated mourning and on an analysis of interactions with social institutions identified in the literature as relevant to perinatal death, are examined. Data are reported from semistructured interviews with 22 individuals who lost children to perinatal death. Parents’ stories indicate that they were not provided with material social supports that normally would be provided to individuals in the case of a “real” birth or death. Family and community gestures, workplace measures, and medical and legal supports were either discouraged or actively withheld. This lack of financial and material support creates an informal social economy of perinatal death that conveys clear messages to parents regarding their rights and claims to support. It is evident that these practices contribute to feelings of non-legitimacy and to complicated mourning.
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References
1.
Aries, P. (1985). Images of man and death. Cambridge, MA: Harvard University Press.
2.
Charmaz, K. (1980). The social reality of death: Death in contemporary America. Reading, MA: Addison-Wesley.
3.
Cook, J. A. , & Wimberly, D. W. (1983). If I should die before I wake: Religious commitment and adjustment to the death of a child. Journal for the Scientific Study of Religion, 22(3), 222-238.
4.
DeFrain, J. (1991). Learning about grief from normal families: SIDS, stillbirth and miscarriage. Journal of Marital and Family Therapy, 17(3), 215-232.
5.
Doka, K. H. (1987). Silent sorrow: Grief and the loss of significant others. Death Studies, ll, 455-469.
6.
Doka, K. H. (1989). Disenfranchised grief. In K. J. Doka (Ed.), Disenfranchised grief: Recognizing hidden sorrow (pp. 1-13). Lexington, MA: Lexington.
7.
Fowlkes, M. R. (1991). The morality of loss: The social construction of mourning and melancholia. Contemporary Psychoanalysis, 27(3), 529-551.
8.
Glaser, B. G. , & Strauss, A. L. (1967). The discovery of grounded theory: Strategies for qualitative research. New York: Aldine de Gruyter.
9.
Hagan-Arnold, J. , & Bushman-Gemma, P. (1983). A child dies: A portrait of family grief. Rockville, MD: Aspen.
10.
Hai, D. M. , & Sullivan, D. H. (1982-1983). The silent sympathy: A study of attitudes toward spontaneous abortion. International Quarterly of Community Health Education, 3(1), 79-91.
11.
Huberman, A. M. , & Miles, M. B. (1998). Data management and analysis methods. In N. K. Denzin & Y. S. Lincoln (Eds.), Collecting and interpreting qualitative methods (pp. 179-210). Thousand Oaks, CA: Sage.
12.
Layne, L. L. (1990). Motherhood lost: Cultural dimensions of miscarriage and stillbirth in America. Women & Health, 16(3/4), 69-89.
13.
Layne, L. L. (1992). Of fetuses and angels: Fragmentation and integration in narratives of pregnancy loss. Knowledge and Society: The Anthropology of Science and Technology, 9, 29-58.
14.
Letherby, G. (1993). The meanings of miscarriage. Womens’ Studies International Forum, 16(2), 165-180.
15.
Littlewood, J. (1993). The denial of death and rites of passage in contemporary societies. In D. Clark (Ed.), The sociology of death: Theory, culture, practice (pp. 69-84). Oxford, England: Blackwell.
16.
Lovell, A. (1983). Some questions of identity: Late miscarriage, stillbirth and perinatal loss. Social Science and Medicine, 17(11), 755-761.
17.
Malacrida, C. (1997). Perinatal death: Helping parents find their way. Journal of Family Nursing, 3(2), 130-148.
18.
Malacrida, C. (1998). Mourning the dreams: How parents create meaning from miscarriage, stillbirth and early infant death. Edmonton, Alberta, Canada: Qual Institute Press.
19.
Malcolm, N. E. , & Wooten, B. L. (1984). A beginning. Toronto, Canada: Women’s College Hospital.
20.
Miller, W. L. , & Crabtree, B. F. (1998). Clinical research. In N. K. Denzin & Y. S. Lincoln (Eds.), Strategies of qualitative research (pp. 292-314). Thousand Oaks, CA: Sage.
21.
Mulkay, M. (1993). Social death in Britain. In D. Clark (Ed.), The sociology of death: Theory, culture, practice (pp. 31-50). Oxford, England: Blackwell.
22.
Oakley, A. , McPherson, A., & Roberts, H. (1984). Miscarriage. Glasgow, Scotland: Fontana.
23.
Panuthos, C. , & Romero, K. (1987). Ended beginnings: Healing childbearing losses. South Hadley, MA: Bergen and Garvey.
24.
Rajan, L. , & Oakley, A. (1993). No pills for heartache: The importance of social support for women who suffer pregnancy loss. Journal of Reproductive and Infant Psychology, 11(2), 75-87.
25.
Rando, T. A. (1984). Grief, death and dying: Clinical interventions for caregivers. Champaign, IL: Research Press.
26.
Rando, T. A. (1992). The increasing prevalence of complicated mourning: The onslaught is just beginning. Omega, 26(1), 43-49.
27.
Rando, T. A. (1993). Treatment of complicated mourning. Champaign, IL: Research Press.
28.
Rappaport, C. (1981). Helping parents when their newborn infants die: Social Work implications. Social Work in Health Care, 6(3), 57-67.
29.
Reinharz, S. (1988). Controlling women’s lives: A cross-cultural interpretation of miscarriage accounts. Research in the Sociology of Health Care, 7, 3-37.
30.
Smart, L. S. (1992). The marital helping relationship following pregnancy loss and infant death. Journal of Family Issues, 13(1), 81-98.
31.
Strauss, A. , & Corbin, J. (1994). Grounded theory methodology: An overview. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (pp. 273-285) Thousand Oaks, CA: Sage.
32.
Taner Leff, P. (1987). Here I am, Ma: The emotional impact of pregnancy loss on parents and health-care professionals. Family Systems Medicine, 5(1), 105-111.
33.
Videka-Sherman, L. , & Lieberman, M. (1985). The effects of self-help and psychotherapy intervention on child loss: The limits of recovery. American Journal of Orthopsychiatry, 55(1), 70-82.
