The study described in this article examined the lived experience of mothers who provide care for their children with End Stage Renal Disease (ESRD). A total of 32 mothers participated in interviews, and 8 were observed in their natural setting for a prolonged period. Findings illuminated unique meanings about maternal caregiving that were individually constructed by each caregiving mother. These meanings appeared to be related to previous maternal life experiences and future expectations for mothers’ lives. Implications call for sufficiently flexible resources that allow mothers to renegotiate care in ways that are consistent with unique maternal meanings and needs.
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