The aim of the phenomenological study described in this article was to depict the lived world of caring for a family member with chronic mental illness. Through two individual in-depth interviews, 14 participants were asked to describe their experience of caring for a son, daughter, or parent affected by chronic mental illness. The main themes emerging from the study related to temporality, the need to "live each day as it comes" without being able to make long-term plans, and to relationality, the need to "look at the world through the other's window," always aware of how the world responds, not only to oneself but also to the person with mental illness.
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References
1.
Anderson, E. A. , & Lynch, M. M. (1984). A family impact analysis: The deinstitutionalisation of the mentally ill. Family Relations, 33(1), 41-46.
2.
Anderson, J. M. , & Elfert, H. (1989). Managing chronic illness in the family: Women as caretakers. Journal of Advanced Nursing, 14, 735-743.
3.
Benner, P. (1994). The tradition and skill of interpretive phenomenology in studying health, illness, and caring practices. In P. Benner (Ed.), Interpretive phenomenology: Embodiment, caring, and ethics in health and illness (pp. 99-127). Thousand Oaks, CA: Sage.
4.
Bull, M. J. (1990). Factors influencing family caregiver burden and health. Western Journal of Nursing Research, 12(6), 758-771.
5.
Cantor, M. (1983). Strain among caregivers: A study of experience in the United States. The Gerontologist, 23, 597-604.
6.
Carmack, B. J. (1997). Balancing engagement and detachment in caregiving. IMAGE: Journal of Nursing Scholarship, 29(2), 139-143.
7.
Chesla, C. A. (1991). Parents' caring practices with schizophrenic offspring. Qualitative Health Research, 1(4), 446-468.
8.
Cook, J. A. (1988). Who "mothers" the chronically mentally ill?Family Relations, 37(1), 42-49.
9.
Coyne, J. C. , Kessler, R. C., Tal, M., Turnbull, J., Wortman, C. B., & Greden, J. F. (1987). Living with a depressed person. Journal of Consulting and Clinical Psychology, 55(3), 347-352.
10.
Crotty, P. , & Kulys, R. (1986). Are schizophrenics a burden to their families? Significant others' views. Health and Social Work, 11(3), 173-188.
11.
Fine, M. (1992). Community support services and their users: The first eighteen months (No. 100). SPRC Reports and Proceedings, Social Policy Research Center, Kensington, University of New South Wales, Australia.
12.
Gantt, A. B. , Goldstein, G., & Pinsky, S. (1989). Family understanding of psychiatric illness. Community Mental Health Journal, 25(2), 101-108.
13.
Grad, J. , & Sainsbury, P. (1963). Mental illness and the family. Lancet, 1, 544-547.
14.
Guberman, N. , Maheu, P., & Maille, C. (1992). Women as family caregivers: Why do they care?The Gerontologist, 32(5), 607-617.
15.
Hanson, J. G. , & Rapp, C. A. (1992). Families' perceptions of community mental health programs for their relatives with a severe mental illness. Community Mental Health Journal, 28(3), 181-197.
16.
Home Care Service of New South Wales . (1988). Community based care in the 1980s (Background Papers No. 8). New South Wales, Australia: Author.
17.
Human Rights and Equal Opportunity Commission . (1993). Human rights and mental illness: Report of the national inquiry into the human rights of people with mental illness (Vol. I). Canberra: Australian Government Publishing Service.
18.
Jacob, M. , Frank, E., Kupfer, D. J., & Carpenter, L. L. (1987). Recurrent depression: An assessment of family burden and family attitudes. Journal of Clinical Psychiatry, 48(10), 395-400.
19.
Jeon, Y H. (1995). The lived experience of caring for a family member with chronic mental illness: A phenomenological study. Unpublished master's thesis, University of Newcastle, New South Wales, Australia.
20.
Leong, Y.N.J. (1997). Needs of family carers of elderly people with dementia living in the community. Unpublished master's thesis, University of Newcastle, New South Wales, Australia.
21.
MacCarthy, B. , Lesage, A., Brewin, C. R., Brugha, T. S., Mangen, S., & Wing, J. K. (1989). Needs for care among the relatives of long-term users of day care. Psychological Medicine, 19(3), 725-736.
22.
Maurin, J. T. , & Boyd, C. B. (1990). Burden of mental illness on the family: A critical review. Archives of Psychiatric Nursing, 4(2), 99-107.
23.
McCausland, M. P. (1987). Deinstitutionalisation of the mentally ill: Oversimplification of complex issues. Advances in Nursing Science, 9(3), 24-33.
24.
Montgomery, R.J.V. , Gonyea, J. G., & Hooyman, N. R. (1985). Caregiving and the experience of subjective and objective burden. Family Relations, 34(1), 19-26.
25.
National Health Strategy . (1993). Help where help is needed: Continuity of care for people with chronic mental illness (Issue Paper No. 5). Melbourne, Australia: Author.
26.
Noh, S. , & Turner, R. J. (1987). Living with psychiatric patients: Implications for the mental health of family members. Social Science and Medicine, 25(3), 263-271.
27.
Nolan, M. R. , Grant, G., & Ellis, N. C. (1990). Stress in the eye of the beholder: Reconceptualising the measurement of carer burden. Journal of Advanced Nursing, 15, 544-555.
28.
Norbeck, J. S. , Chafetz, L., Skodol-Wilson, H., & Weiss, S. J. (1991). Social support needs of family caregivers of psychiatric patients from three age groups. Nursing Research, 40(4), 208-213.
29.
Parsons, K. (1997). The male experience of caregiving for a family member with Alzheimer's disease. Qualitative Health Research, 7(3), 391-407.
30.
Potasznik, H. , & Nelson, G. (1984). Stress and social support The burden experienced by the family of a mentally ill person. American Journal of Community Psychology, 12(5), 589-607.
31.
Rutman, D. (1996). Caregiving as women's work: Women's experiences of powerfulness and powerlessness as caregivers. Qualitative Health Research, 6(1), 90-111.
32.
Solomon, P. , Beck, S., & Gordon, B. (1988). Family members' perspectives on psychiatric hospitalization and discharge. Community Mental Health Journal, 24(2), 108-117.
33.
Solomon, P. , & Marcenko, M. O. (1992). Family members' concerns regarding community placement of their mentally disabled relative: Comparisons one month after release and a year later. Family Relations, 41(7), 341-347.
34.
Stern, P. N. (1991). Are counting and coding a cappella appropriate in qualitative research? In J. M. Morse (Ed.), Qualitative nursing: A contemporary dialogue (pp. 147-162). Newbury Park, CA: Sage.
35.
Thompson, R. , & Weisberg, S. (1990). Families as educational consumers: What do they want? What do they receive?Health and Social Work, 15(3), 221-227.
36.
van Manen, M. (1990). Researching lived experience: Human science for an action sensitive pedagogy. New YorkState University of New York Press.
