The authors studied the perception, attitudes, and beliefs about deafness and disability in 9 Hispanic families with deaf children. In-depth interviews were conducted, focusing on the families' experiences in adjusting to the child's hearing loss and emphasizing, in particular, concepts of causation of deafness; communication with the deaf child; and perceptions of the accessibility of services. Most parents expressed positive or neutral feelings about deafness. Concepts of causation varied, with some parents attributing deafness to divine will, others to heredity or physical insult. Many parents reported that their extended families and communities stigmatized the deaf child. Most families were satisfied with the services available. Parents' appraisals of the children's receptive and expressive abilities for oral language were profoundly contradictory. These interviews provide valuable insight into the belief systems and needs of this minority group. Increased awareness of these needs and concerns is necessary to improve services for Hispanic deaf children and their families.
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References
1.
Alvirez, D. , & Bean, F. D. (1976). The Mexican-American family. In C. H. Mindel & R. N. Haberstein (Eds.), Ethnic families in America (pp. 271-291). New York. Elsevier.
2.
Americans With Disabilities Act of 1990. PL101-336, 42 U.S.C.A. § 12101 et seq.
3.
Arnold, B. R. (Ed.). (1987). Disability, rehabilitation, and the Mexican-American. Edinburg, TX: Pan American University.
4.
Becerra, R. M. , & Zambrana, R. E. (1985). Methodological approaches to research on Hispanics. Social Work Research and Abstracts, 21(2), 4249.
5.
Bennett, A. T. (1989). Hispanic families and children in the special education intake process. New York: The Lexington Center.
6.
Carlisle, D. C. (1984). The hearing-impaired Hispanic child: Sociolinguistic considerations. In G. Delgado (Ed.), The Hispanic deaf Issues and challenges for bilingual special education (pp. 58-68). Washington, DC: Gallaudet College Press.
7.
Chaikind, S. (1992). Children and the ADA The promise of tomorrow. Exceptional Parent (AM Guide), M8-M10.
8.
Cohen, L. (1979). Culture, disease and stress among Latino immigrants. Washington, DC: Smithsonian Institution.
9.
Cohen, O. , Fischgrund, J., & Redding, R. (1990). Deaf children from ethnic, linguistic and racial minority backgrounds: An overview. Americans Annals of the Deaf, 135(2), 67-73.
10.
Cordero v. Pennsylvania Department of Education and the Commonwealth of Pennsylvania, 795 F. Supp. 1352 (M.D. Pa. 1992).
11.
Corson, H. (1973). Comparing deaf children of oral deafparents and deafparents using manual communication with deafchildren of hearing parents on academic, social and communication functioning. Unpublished doctoral dissertation University of Cincinnati, OH.
12.
Cross, T. L. , & Benjamin, M. P. (1989). Toward a culturally competent system of care (CASSP monograph). Washington, DC: National Institute of Mental Health.
13.
Cruz, D. (1979). Outreach problems in Puerto Rico. In G. Dixon & C. Bridges (Eds.), On being Hispanic and disabled: The special challenges of an underserved population, conference report (pp. 33-34). Washington, DC: Partners of the Americas.
14.
Downey, W. S. (1989). Public Law 99457 and the clinical pediatrician. Clinical Pediatrics, 29(3), 158-161.
15.
Federal Individuals With Disabilities Education Act, 20 U.S.C. §§ 1400 et seq.
16.
Fischgrund, J. E. , Cohen, O. P., & Clarkson, R. L. (1988). Hearing impaired children in Black and Hispanic families. Volta Review, 89(5), 59-67.
17.
Glazer, N. , & Moynihan, D. P. (1963). Beyond the melting pot. Cambridge, MA: MIT Press.
18.
Kirk, J. , & Miller, M. L. (1986). Reliability and validity in qualitative research. Newbury Park, CA: Sage.
19.
Kleinman, A. (1980). Patients and healers in the context of culture. Berkeley: University of California Press.
20.
Lafitte, J. (1983). Counseling and rehabilitation in process. In The special rehabilitation and research needs of disabled Hispanic persons (pp. 51-58). Edinburg, TX: National Institute of Handicapped Research and President's Committee on Employment of the Handicapped.
21.
Luterman, D. (1979). Counseling parents of hearing impaired children. Boston: Little, Brown.
22.
Meadow-Orlans, K. , & Steinberg A. (1993). Effects of infant hearing loss and maternal support on mother-infant interactions at 18 months. Journal of Applied Developmental Psychology, 14, 407-426.
23.
Mindel, E. D. , & Vernon, M. (1971). They grow in silence. Silver Spring, MD: National Association of the Deaf.
24.
Moores, D. F. (1978). Educating the deaf: Psychology, principles, and practices. Boston: Houghton Mifflin.
25.
Moses, K. L. (1985). Infant deafness and parental grief-Psychosocial early intervention. In F. Powell, J. Finitzo-Hieber, S. Friel-Patti, & D. Henderson (Eds.), Education of the hearing impaired child (pp. 85-102). San Diego, CA: College-Hill.
26.
Noshpitz, J. D. (Ed.). (1997). The handbook of child and adolescent psychiatry (Vol. 4). New York: John Wiley.
27.
Padden, C. (1980). The deaf community and the culture of deaf people. In C. Baker & R. Battison (Eds.), Sign language and the deaf community (pp. 89-103). Silver Spring, MD: National Association of the Deaf.
28.
Rivera, O. A. (1983). Vocational rehabilitation process and Hispanic culture. In The special rehabilitation and research needs of disabled Hispanic persons. Washington, DC: National Institute of Handicapped Research and the President's Committee on Employment of the Handicapped.
29.
Rodriguez, O. , & Santiviago, M. (1991). Hispanic deaf adolescents: A multicultural minority. The Volta Review, 93(5), 89-97.
30.
Rolland, J. S. (1994). Families, illness, and disability. New York: Basic Books.
31.
Sabogal, F. , Main, G., Otero-Sabogal, R., Main, B. V., & Perez-Stable, E. J. (1987). Hispanic familism and acculturation: What changes and what doesn't?Hispanic Journal of Behavioral Sciences, 9(4), 397-412.
32.
Schlesinger, H. S. , & Meadow, K. P. (1972). Sound and sign: Childhood deafness and mental health. Berkeley: University of California Press.
33.
Seligman, M. , & Darling, R. (1989). Ordinary families: Special children. New York: Guilford.
34.
Spector, R. E. (1985). Cultural diversity in health and illness. New York: Appleton-Century-Crofts.
35.
Stein, R. C. (1983). Hispanic parents' perspectives and participation in their children's special education program: Comparisons by program and race. Learning Disability Quarterly, 6, 432-439.
36.
Steinberg A. (1997). Deafness. In J. D. Noshpitz (Ed.), The handbook of child and adolescent psychiatry (Vol. 4). New York: John Wiley.
37.
Szapocznick, J. , & Kurtines, W. (1980). Acculturation. Boulder, CO: Westview.
38.
Triandis, H. C. , Main, G., Betancourt, H., Lisansky, J., & Chang, B. (1982). Dimensions of familism among Hispanic and mainstream Navy recruits (Tech. Rep. No. 14). Champaign: University of Illinois, Department of Psychology.
39.
U.S. Bureau of the Census . (1990). The Hispanic population in the United States (Series P-20, No. 444). Washington, DC: U.S. Government Printing Office.
