This study describes the experience of young adults' adaptation to living with the chronic sexually transmitted disease genital herpes. Interview data from 70 adults with a diagnosis of genital herpes were analyzed using constant comparative analysis. Findings from the study indicated that the process of adaptation to living with genital herpes involves regaining a valued sense of self. The process occurs in three stages. In the first stage, young adults strive to protect themselves from devaluation due to the stigmatization connected with the disease. In the second stage, they try to renew their sense of self by reaching out and balancing their lives. In the third stage, they adopt a management style that enables them to preserve their sense of self Implications for further research and for practice are suggested.
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References
1.
Aral, S. , & Holmes, H. (1991). Sexually transmitted diseases in the AIDS era. Scientific American, 264, 62-69.
2.
Aral, S. , VanderPlate, C., & Magder, L. (1988). Recurrent genital herpes: What helps adjustment?Sexually Transmitted Diseases, 15, 164-166.
3.
Bierman, S. (1983). A retrospective study of 375 patients with genital herpes simplex infections seen between 1973 and 1980. CUTIS, 31, 548-565.
4.
Blumer, H. (1969). Symbolic interactionism. Englewood Cliffs, NJ: Prentice-Hall.
5.
Brock, B. , Selke, S., Benedetti, J., Douglas, J., & Corey, L. (1990). Frequency of asymptomatic shedding of herpes simplex virus in women with genital herpes. Journal of the American Medical Association, 268, 418-420.
6.
Cannon, R. O. , Hook, E. W., Nahmias, A. J., Lee, F. K., Glasser, D., & Quinn, T. C. (1988, June). Association of herpes simplex virus type-2 with HIV infection in heterosexual patients attending sexually transmitted disease clinics. Paper presented at the Fourth International Conference on AIDS, Stockholm, Sweden.
7.
Charmaz, K. (1987). Struggling for a self: Identity levels of the chronically ill. Research in the Sociology of Health Care, 6, 283-321.
8.
Charmaz, K. (1991). Good days, bad days: The self in chronic illness and time. New Brunswick, NJ: Rutgers University Press.
9.
Chenitz, W. C. , & Swanson, J. M. (1986). From practice to grounded theory: Qualitative research in nursing. Menlo Park, CA: Addison-Wesley.
10.
Chenitz, W. C. , & Swanson, J. M. (1989). Counseling clients with genital herpes. Journal of Psychosocial Nursing, 27, 11-17.
11.
Corbin, J. , & Strauss, A. (1988). Unending work and care: Managing chronic illness at home. San Francisco: Jossey-Bass.
12.
Corey, L. (1988). First-episode, recurrent, and asymptomatic herpes simplex infections. Journal of the American Academy of Dermatology, 18(1, Part 2), 169-172.
13.
Corey, L. , & Holmes, K. (1983). Genital herpes simplex virus infections: Current concepts in diagnosis, therapy, and prevention. Annals of Internal Medicine, 98, 973-983.
14.
Dorsky, D. I. , & Crumpacker, C. S. (1987). Drugs five years later: Acyclovir. Annals of Internal Medicine, 107, 859-874.
15.
Drob, S. (1986). Psychosexual implications of genital herpes. Medical Aspects of Human Sexuality, 20, 97, 100, 102, 104.
16.
Drob, S. , Loemer, M., & Lifshutz, H. (1985). Genital herpes: The psychological consequences. British Journal of Medical Psychology, 58, 307-315.
17.
Erikson, E. (1963). Childhood and society (2nd ed.). New York: Norton.
18.
Feldblum, P. , & Fortney, J. (1988). Condoms, spermicides, and the transmission of human immunodeficiency virus: A review of the literature. American Journal of Public Health, 78, 52-54.
19.
Francoeur, R. (1982). Becoming a sexual person. New York: Wiley.
20.
Glaser, B. G. (1978). Theoretical sensitivity. Mill Valley, CA: Sociology Press.
21.
Glaser, B. G. , & Strauss, A. L. (1967). The discovery of grounded theory. Chicago: Aldine.
22.
Goffnan, E. (1963). Stigma. Englewood Cliffs, NJ: Prentice-Hall.
23.
Gussow, A. , & Tracy, G. (1968). Status, ideology, and adaptation to stigmatized illness: A study of leprosy. Human Organization, 27, 316-325.
24.
Hecht, M. (1952). Psychiatric aspects of dermatology. In L. Bellack (Ed.), Psychology of physical illness (pp. 187-199). New York: Grune & Stratton.
25.
Huber, J. , & Schneider, B. (1992). The social context of AIDS. Newbury Park, CA: Sage.
26.
Inhom, M. C. (1986). Genital herpes: An ethnographic inquiry into being discreditable in American soiety. Medical Anthropology Quarterly, 17, 59-63.
27.
Johnson, R. E. , Nabmias, A. J., Magder, L. S., Lee, F. K., Brooks, C. A., & Snowden, C. B. (1989). A seroepidemiologic survey of the prevalence of herpes simplex virus 2 infection in the United States. New England Journal of Medicine, 321, 7-12.
28.
Jones, R. B. , & Wasserheit, J. N. (1991). Introduction to the biology and natural history of sexually transmitted diseases. In J. N. Wasserheit, S. O. Aral, & K. K. Holmes (Eds.), Research issues in human behavior and sexually transmitted diseases in the AIDS era (pp. 11-37). Washington, DC: American Society for Microbiology.
29.
Limandri, B. J. (1989). Disclosure of stigmatizing conditions: The discloser's perspective. Archives of Psychiatric Nursing, 2, 69-78.
30.
Luby, E. , & Gillespie, O. (1981). Psychological responses to genital herpes. The Helper, 3, 2-3.
31.
Luby, E. , & Klinge, V. (1985). Genital herpes: A pervasive psychosocial disorder. Archives of Dermatology, 121, 494-497.
32.
Manne, S. , & Sandler, I. (1984). Coping and adjustment to genital herpes. Journal of Behavioral Medicine, 7, 391-410.
33.
Mertz, G. J. , Coombs, R. W., Ashley, R., Jourden, J., Remington, M., Winter, C., Fohnlander, A., Guinan, M., Ducey, H., & Corey, L. (1988). Transmission of genital herpes in couples with one symptomatic and one asymptomatic partner: A prospective study. Journal of Infectious Diseases, 157, 1169-1177.
34.
Morse, J. M. , & Johnson, J. L. (1991). The illness experience. Newbury Park, CA: Sage.
35.
Schmid, G. (1990). Approach to the patient with genital ulcer disease. Medical Clinics of North America, 74, 1559-1572.
36.
Schneider, J. , & Conrad, P. (1983). Having epilepsy. Philadelphia: Temple University Press.
37.
Siegel, K. , & Krauss, B. (1991). Living with HIV infection: Adaptive tasks of seropositive gay men. Journal of Health and Social Behavior, 32, 17-32.
38.
Stagno, S. , & Whitley, R. J. (1990). Herpes virus infection in the neonate and children. In K. K. Holmes, P. Mardh, P. F. Sparling, P. J. Wiesner, W. Cates, S. M. Lemon, & W. E. Stamm (Eds.), Sexually transmitted diseases (pp. 863-887). New York: McGraw-Hill.
39.
Stamm, W. E. , Handsfield, H. H., Rompalo, A. M., Ashley, R. L., Roberts, P. L., & Corey, L. (1988). The association between genital ulcer disease and acquisition of HIV infection in homosexual men. Journal of the American Medical Association, 260, 1429-1433.
40.
Stone, K. M. , Grimes, D. A., & Magder, L. S. (1986). Primary prevention of sexually transmitted diseases: A primer for clinicians. Journal of the American Medical Association, 255, 763-766.
41.
Swanson, J. M. , & Chenitz, W. C. (1989). The prevention and management of genital herpes: A community health approach. Journal of Community Health Nursing, 6, 209-219.
42.
Swanson, J. M. , & Chenitz, W. C. (1990). Psychosocial aspects of genital herpes: A review of the literature. Public Health Nursing, 2, 96-100.
43.
Swanson, J. M. , Remy, L., Chenitz, W. C., Chastain, R., & Trocki, K. (in press). Illicit drug use in young adults with genital herpes. Public Health Nursing.
44.
Swinker, M. L. (1986). Clinical aspects of genital herpes. American Family Physician, 34, 127-132.
45.
Taylor, S. (1983). Adjustment to threatening events: A theory of cognitive adaptation. American Psychologist, 38, 1161-1173.
46.
VanderPlate, C. , & Aral, S. (1987). Psychosocial aspects of genital herpes virus infection. Health Psychology, 6, 57-72.
47.
Weitz, R. (1989). Uncertainty and the lives of persons with AIDS. Journal of Health and Social Behavior, 30, 270-281.
48.
Wermuth, L. , Ham, J., & Robbins, R. (1992). Women don't wear condoms: AIDS risk among sexual partners of IV drug users. In J. Huber & B. Schneider (Eds.), The social context of AIDS (pp. 72-94). Newbury Park, CA: Sage.
