Assistance dogs are a potential intervention for families of children on the autism spectrum to support participation. However, the lived experience of families with new assistance dogs has not previously been explored. This study described the expectations, benefits, and challenges of assistance dog ownership for families of children on the autism spectrum. Data were collected from four mothers through semi-structured interviews and photovoice prior to assistance dog placement and following 6 months of ownership. Findings indicated assistance dog ownership enhanced the child’s self-regulation and socialization, and increased participation in daily routines. Having an assistance dog also enhanced participation in family outings and activities. Challenges included the adjustment period and the lack of public awareness of autism assistance dogs.
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders: DSM-5. American Psychiatric Association.
2.
ApplebyR.WrightS.WilliamsL.StanleyM. (2022). Australian parents’ experiences of owning an autism assistance dog. Health & Social Care in the Community, 1–9. https://doi.org/10.1111/hsc.13805
BerryA.BorgiM.FranciaN.AllevaE.CirulliF. (2013). Use of assistance and therapy dogs for children with autism spectrum disorders: A critical review of the current evidence. Journal of Alternative and Complementary Medicine, 19(2), 73–80. https://doi.org/10.1089/acm.2011.0835
5.
BrockM. E.FreulerA.BaranekG. T.WatsonL. R.PoeM. D.SabatinoA. (2012). Temperament and sensory features of children with autism. Journal of Autism and Developmental Disorders, 42(11), 2271–2284. https://doi.org/10.1007/s10803-012-1472-5
6.
BurgoyneL.DowlingL.FitzgeraldA.ConnollyM.P BrowneJ.PerryI. J. (2014). Parents' perspectives on the value of assistance dogs for children with autism spectrum disorder: A cross-sectional study. British Medical Journal Open, 4(6), e004786. https://doi.org/10.1136/bmjopen-2014-004786
7.
BurrowsK. E.AdamsC. L.SpiersJ. (2008). Sentinels of safety: Service dogs ensure safety and enhance freedom and well-being for families with autistic children. Qualitative Health Research, 18(12), 1642–1649. https://doi.org/10.1177/1049732308327088
8.
CarlisleG. K. (2015). The social skills and attachment to dogs of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(5), 1137–1145. https://doi.org/10.1007/s10803-014-2267-7
9.
CarpenterC. (2017). Phenomenology and rehabilitation research. In LiamputtongP., (Ed.), Research methods in health: Foundations for evidence-based practice. (3rd. ed., pp. 157–176). Oxford University Press.
10.
CridlandE. K.JonesS. C.MageeC. A.CaputiP. (2014). Family-focused autism spectrum disorder research: A review of the utility of family systems approaches. Autism, 18(3), 213–222. https://doi.org/10.1177/1362361312472261
11.
LalS.JarusT.SutoM. J. (2012). A scoping review of the photovoice method: Implications for occupational therapy research. Canadian Journal of Occupational Therapy, 79(3), 181–190. https://doi.org/10.2182/cjot.2012.79.3.8
12.
LeungJ. Y.-L.MackenzieL.DicksonC. (2021). Outcomes of assistance dog placement in the home for individuals with autism spectrum disorder and their families: A pilot study. Australian Occupational Therapy Journal, Early View, 69(1), 1–14. https://doi.org/10.1111/1440-1630.12768
13.
LiamputtongP. (2017). The science of words and the science of numbers. In LiamputtongP., (Ed.), Research methods in health: Foundations for evidence-based practice. (3rd. ed., pp. 3–28). Oxford University Press.
14.
LudlowA.SkellyC.RohlederP. (2012). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17(5), 702–711. https://doi.org/10.1177/1359105311422955
15.
MabryL.BrannenJ. (2008). Case study in social research. In AlasuutariP.BickmanL. (Eds.), The SAGE handbook of social research methods (pp. 214–228). Sage Publications.
16.
MacKinnonL. (2014). Service dogs for children with autism spectrum disorder: Child and family experiences [Unpublished doctoral dissertation, University of Calgary].
17.
McStayR. L.DissanayakeC.ScheerenA.KootH. M.BegeerS. (2015). Parenting stress and autism: The role of age, autism severity, quality of life and problem behaviour of children and adolescents with autism. Autism, 18(5), 502–510. https://doi.org/10.1177/1362361313485163
18.
RodgerS.UmaibalanV. (2011). The routines and rituals of families of typically developing children compared with families of children with autism spectrum disorder: An exploratory study. The British Journal of Occupational Therapy, 74(1), 20–26. https://doi.org/10.4276/030802211x12947686093567
SmithJ. A.OsbornM. (2008). Interpretative phenomenological analysis. In SmithJ. A. (Ed.), Qualitative psychology: A practical guide to research methods (2nd ed., pp. 53–80). Sage Publications.
TintA.WeissJ. A. (2015). Family wellbeing of individuals with autism spectrum disorder: A scoping review. Autism, 20(3), 262–275. https://doi.org/10.1177/1362361315580442
23.
TsengA. (2022). Brief report: Above and beyond safety: Psychosocial and biobehavioral impact of autism-assistance dogs on autistic children and their families. Journal of Autism and Developmental Disorders, 1–16. https://doi-org.ezp1.lib.umn.edu/10.1007/s10803-021-05410-0
24.
TuohyD.CooneyA.DowlingM.MurphyK.SixsmithJ. (2013). An overview of interpretive phenomenology as a research methodology. Nurse Researcher, 20(6), 17–20. https://doi.org/10.7748/nr2013.07.20.6.17.e315
25.
ViauR.Arsenault-LapierreG.FecteauS.ChampagneN.WalkerC.LupienS. (2010). Effect of service dogs on salivary cortisol secretion in autistic children. Psychoneuroendocrinology, 35(8), 1187–1193. https://doi.org/10.1016/j.psyneuen.2010.02.004
