Restricted accessResearch articleFirst published online 2021-4
The Cultural and Methodological Factors Challenging the Success of the Community-Based Participatory Research Approach When Designing a Study on Adolescents Sexuality in Traditional Society
Youth growing up in traditional cultures are split between the messages that they receive on sexuality from their families and those they receive via the internet depicting values of Western culture. The Palestinian-Israeli community, a national, ethnic, and linguistic minority, is an example of this situation. The purpose of this community-based participatory research study is to describe the challenges and lessons learned about launching a community advisory board (CAB) in studies on the taboo topic of adolescent sexuality. Using content analysis, we identified two necessary conditions to convene a CAB on adolescent sexuality in a traditional community: (a) an insider academic researcher, fluent in the native language, able to discuss the linguistic difficulties of sexual terminology and (c) the recruitment of motivated, community activists who were knowledgeable on the topic. The mostly traditional society of Palestinian-Israelis shuns discussions on sexuality; but with these two conditions, the study was a success.
AbboudS.Sweet JemmottL.SommersS. M. (2015). “We are Arabs”: The embodiment of virginity through Arab and Arab American women’s lived experiences. Sexuality & Culture, 19(4), 715–736. https://doi.org/10.1007/s12119-015-9286-1
2.
AcharyaD. R.ThomasM.CannR. (2016). Validation of a questionnaire to measure sexual health knowledge and understanding (Sexual Health Questionnaire) in Nepalese secondary school: A psychometric process. Journal of Education and Health Promotion, 5(1), 18. https://doi.org/10.4103/2277-9531.184560
3.
AhmedA.VandrevalaT.HendyJ.KellyC.AlaA. (2019). An examination of how to engage migrants in the research process: Building trust through an “insider” perspective. Ethnicity and Health, 2–20. https://doi.org/10.1080/13557858.2019.1685651
4.
AzaizaF. (2013). Processes of conservation and change in Arab society in Israel: Implications for the health and welfare of the Arab population. International Journal of Social Welfare, 22(1), 15–24. https://doi.org/10.1111/j.1468-2397.2011.00866.x
5.
BeckA.MajumdarA.EstcourtC.PetrakJ. (2005). “We don’t really have cause to discuss these things, they don’t affect us”: A collaborative model for developing culturally appropriate sexual health services with the Bangladeshi community of Tower Hamlets. Sexually Transmitted Infections, 81, 158–162. https://doi.org/10.1136/sti.2004.012195
6.
BeloneL.LuceroJ. E.DuranB.TafoyaG.BakerE. A.ChanD.ChangC.Greene-MotonE.KelleyM. A.WallersteinN. (2016). Community-based participatory research conceptual model: Community partner consultation and face validity. Qualitative Health Research, 26(1), 117–135. https://doi.org/10.1177/1049732314557084
7.
BrockieT. N.Dana-SaccoG.LópezM. M.WetsitL. (2017). Essentials of research engagement with native American tribes: Data collection reflections of a tribal research team. Progress in Community Health Partnerships: Research, Education, and Action, 11(3), 301–307. https://doi.org/10.1353/cpr.2017.0035
8.
BrownN. (2012). Negotiating the insider/outsider status: Black feminist ethnography and legislative studies. Journal of Feminist Scholarship, 3(3), 19–34. https://digitalcommons.uri.edu/jfs/vol3/iss3/3
9.
Cacari-StoneL.WallersteinN.GarciaA. P.MinklerM. (2014). The promise of community-based participatory research for health equity: A conceptual model for bridging evidence with policy. American Journal of Public Health, 104(9), 1615–1623. https://doi.org/10.2105/AJPH.2014.301961
10.
CareyM. A. (2015). Focus groups—What is the same, What is new, What is next?Qualitative Health Research, 26(6), 731–733. https://doi.org/10.1177/1049732316636848
11.
ChavezC. (2008). Conceptualizing from the inside: Advantages, complications, and demands on insider positionality. The Qualitative Report, 13(3), 474–494. http://nsuworks.nova.edu/tqr/vol13/iss3/9
CostleyC.ElliottG.GibbsP. (2014). Key concepts for the insider-researcher. In CostleyC. (Ed.), Doing work based research: Approaches to enquiry for insider-researchers (pp. 1–7). SAGE. https://doi.org/10.4135/9781446287880.n1
14.
CreanM. (2018). Minority scholars and insider-outsider researcher status: Challenges along a personal, professional and political continuum. Forum Qualitative Sozialforschung, 19(1), 17. https://doi.org/10.17169/fqs-19.1.2874
15.
CurrieC.InchleyJ.MolchoM.LenziM.VeselskaZ.WildF. (2014). Health Behaviour in School-aged Children (HBSC) study protocol: Background, methodology and mandatory items for the 2013/14 survey. Child and Adolescent Health Research Unit.
16.
DeblaereC.BrewsterM. E.SarkeesA.MoradiB. (2010). Conducting research with LGB people of color: Methodological challenges and strategies. The Counseling Psychologist, 38(3), 331–362. https://doi.org/10.1177/0011000009335257
17.
DeJongJ.El-KhouryG. (2006). Reproductive health of Arab young people. British Medical Journal, 333(7573), 849–851. https://doi.org/333/7573/849
18.
De KockC.SchampJ.VanderplasschenW.DecorteT.DerluynI.HauspieB.JacobsD.SaccoM. (2017). Implementing community-based participatory research in the study of substance use and service utilisation in Eastern European and Turkish communities in Belgium. Drugs: Education, Prevention and Policy, 24(3), 265–275. https://doi.org/10.1080/09687637.2017.1282420
19.
DeLyserD. (2001). American geographical society “Do you really live here?” Thoughts on insider research. Geographical Review, 91(1), 441–453.
20.
DulinM. F.TappH.SmithH. A.de HernandezB. U.FurusethO. J. (2011). A community based participatory approach to improving health in a Hispanic population. Implementation Science, 6, 38. https://doi.org/10.1186/1748-5908-6-38
21.
El FekiS. (2013). Sex and the citadel: Intimate life in a changing Arab World. Pantheon Books.
22.
FryerC. S.PassmoreS. R.MaiettaR. C.PetruzzelliJ.CasperE.BrownN. A.ButlerJ.GarzaM. A.ThomasS. B.QuinnS. C. (2016). The symbolic value and limitations of racial concordance in minority research engagement. Qualitative Health Research, 26(6), 830–841. https://doi.org/10.1177/1049732315575708
23.
HackerK. (2015). Introduction to community-based participatory research. In MinklerM.WallersteinN. (Eds.), Community based participatory research for health (pp. 3–26). Jossey-Bass. https://doi.org/10.1891/088970110805029804
24.
HeskethK.BisharaS.ZaherS.RosenbergR. (2010). Inequality report: The Palestinian Arab Minority in Israel. The Arab World Geographer, 13(3–4), 234–284.
25.
HolstiR. (1969). Content analysis for the social sciences and humanities. Addison-Wesley.
26.
HsiehH. F.ShannonS. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288. https://doi.org/10.1177/1049732305276687
IsraelB. A.KriegerJ.VlahovD.CiskeS.FoleyM.FortinP.GuzmanJ. R.LichtensteinR.McGranaghanR.PalermoA. G.TangG. (2006). Challenges and facilitating factors in sustaining community-based participatory research partnerships: Lessons learned from the Detroit, New York City and Seattle Urban Research Centers. Journal of Urban Health: Bulletin of the New York Academy of Medicine, 83(6), 1022–1040. https://doi.org/10.1007/s11524-006-9110-1
29.
IsraelB. A.SchulzA.ParkerE.BeckerA. (1998). Review of community-based research: Assessing partnership approaches to improve public health. Annual Review of Public Health, 19(1), 173–202. https://doi.org/10.1146/annurev.publhealth.19.1.173
30.
JerniganV. B. B.JacobT.StyneD. (2015). The adaptation and implementation of a community-based participatory research curriculum to build tribal research capacity. American Journal of Public Health, 105, S424–S432. https://doi.org/10.2105/AJPH.2015.302674
31.
KillawiA.HeislerM.HamidH.PadelaA. I. (2015). Using CBPR for health research in American Muslim mosque communities. Progress in Community Health Partnerships: Research, Education, and Action, 9(1), 65–74. https://doi.org/10.1353/cpr.2015.0007
32.
LangdonS. E.GoldenS. L.ArnoldE. M.MaynorR. F.BryantA.FreemanV. K.BellR. A. (2015). Lessons learned from a community-based participatory research mental health promotion program for American Indian youth. Health Promotion Practice, 17(3), 457–463. https://doi.org/10.1177/1524839916636568
33.
LefkowitzD. (2004). Words and stones: The politics of language and identity in Israel. Oxford University Press.
34.
LuddenT. M.TaylorY. J.SimmonsL. K.SmithH. A.de HernandezB. U.TappH.FurusethO. J.DulinM. F. (2018). Using community-based participatory research to develop geospatial models toward improving community health for disadvantaged Hispanic populations in Charlotte, NC. Journal of Primary Prevention, 39(2), 171–190. https://doi.org/10.1007/s10935-018-0505-z
35.
MassadS. G.KaramR.BrownR.GlickP.ShaheenM.LinnemayrS.KhammashU. (2014). Perceptions of sexual risk behavior among Palestinian youth in the West Bank: A qualitative investigation. BMC Public Health, 14(1), Article 1213. https://doi.org/10.1186/1471-2458-14-1213
36.
MercerJ. (2007). The challenges of insider research in educational institutions: Wielding a double-edged sword and resolving delicate dilemmas. Oxford Review of Education, 33(1), 1–17. https://doi.org/10.1080/03054980601094651
37.
MinklerM. (2004). Ethical challenges for the “outside” researcher in community-based participatory research. Health Education and Behavior, 31(6), 684–697. https://doi.org/10.1177/1090198104269566
38.
MuhammadM.WallersteinN.SussmanA. L.AvilaM.BeloneL.DuranB. (2015). Reflections on researcher identity and power: The impact of positionality on Community Based Participatory Research (CBPR) processes and outcomes. Critical Sociology, 41(7–8), 1045–1063. https://doi.org/10.1177/0896920513516025
39.
MurrayD. (2003). Who is Takatāpui? Māori language, sexuality and identity in Aotearoa/New Zealand. Anthropologica, 45(2), 233–244. https://doi.org/10.2307/25606143
40.
PattonM. Q. (1999). Enhancing the quality and credibility of qualitative analysis. Health Services Research, 34(5 Pt. 2), 1189–1208.
41.
ReeceM.DodgeB. (2004). A study in sexual health applying the principles of community-based participatory research. Archives of Sexual Behavior, 33(3), 235–247. https://doi.org/10.1023/B:ASEB.0000026623.69017.df
42.
RhodesS. D.KelleyC.SimánF.CashmanR.AlonzoJ.McGuireJ.WellendorfT.HinshawK.AllenA. B.DownsM.BrownM.MartínezO.DuckS.ReboussinB. (2012). Using community-based participatory research (CBPR) to develop a community-level HIV prevention intervention for Latinas: A local response to a global challenge. Women’s Health Issues, 22(3), E293–E301. https://doi.org/10.1016/j.whi.2012.02.002
43.
RobertsC.FreemanJ.SamdalO.SchnohrC. W.de LoozeM. E.GabhainnS. N.IannottiR.RasmussenM. (2009). The Health Behaviour in School-aged Children (HBSC) study: Methodological developments and current tensions. International Journal of Public Health, 54(Suppl. 2), 140–150. https://doi.org/10.1007/s00038-009-5405-9
44.
SaabnehA. (2015). Ethnic health inequalities in unequal societies: Morbidity gaps between Palestinians and Jews in Israel. European Journal of Population, 31(4), 445–466. https://doi.org/10.1007/s10680-015-9349-x
SmithS. A.WhiteheadM. S.SheatsJ. Q.AnsaB. E.CoughlinS. S.BlumenthalD. S. (2015). Community-based participatory research principles for the African American community. Journal of the Georgia Public Health Association, 5(1), 52–56.
StoverC. (2015). Community based participatory research: The application and lessons learned from a study with LGB college students. Journal of Health Disparities and Practice, 8(4), 55–70. http://digitalscholarship.unlv.edu/jhdrp/
VaughnL. M.WagnerE.JacquezF. (2013). A review of community-based participatory research in child health. MCN the American Journal of Maternal/Child Nursing, 38(1), 48–53. https://doi.org/10.1097/NMC.0b013e31826591a3
52.
WallersteinN.DuranB. (2008). The conceptual, historical, and practice roots of community-based participatory research and related participatory traditions. In MinklerM.WallersteinN. (Eds.), Community based participatory research: From process to outcomes (pp. 25–46). Jossey Bass.
53.
WardM.SchulzA. J.IsraelB. A.RiceK.MarteniesS. E.MarkarianE. (2018). A conceptual framework for evaluating health equity promotion within community-based participatory research partnerships. Evaluation and Program Planning, 70, 25–34. https://doi.org/10.1016/j.evalprogplan.2018.04.014
54.
WeinstockM.GanayiemM.IgbaryiaR.ManagoA. M.GreenfieldP. M. (2015). Societal change and values in Arab communities in Israel. Journal of Cross-Cultural Psychology, 46(1), 19–38. https://doi.org/10.1177/0022022114551792
55.
WilsonE. (2018). Community-based participatory action research. In LiamputtongP. (Ed.), Handbook of research methods in health social sciences (pp. 1–15). Springer. https://doi.org/10.1007/978-981-10-2779-6_87-1
56.
WinterbauerN. L.BekemeierB.VanRaemdonckL.HooverA. G. (2016). Applying community-based participatory research partnership principles to public health practice-based research networks. SAGE Open, 6(4) Advance online publication. https://doi.org/10.1177/2158244016679211
57.
YoungH.KöltoA.ReisM.SaewycE. M.MoreauN.BurkeL.CosmaA.WindlinB.GabhainnS. N.GodeauE. (2016). Sexual health questions included in the Health Behaviour in School-aged Children (HBSC) Study: An international methodological pilot investigation. BMC Medical Research Methodology, 16(1), Article 169. https://doi.org/10.1186/s12874-016-0270-8
58.
ZlotnickC.GoldblattH.ShadmiE.Birenbaum-CarmeliD.TaychawO. (2015). A qualitative study assessing cardiovascular risk factors: The accumulative stressors influencing societal integration of teenage African immigrants. BMC Public Health, 15(1), Article 785. https://doi.org/10.1186/s12889-015-2122-6
59.
ZlotnickC.WrightM.SanchezR. M.KusnirR. M.Te’o-BennettI. (2010). Adaptation of a community-based participatory research model to gain community input on identifying indicators of successful parenting. Child Welfare, 89(4), 9–27.
