Restricted accessResearch articleFirst published online 2020-9
Asian Immigrant Parents’ Role Enactment While Accessing and Using Services for Their Child With Developmental Disabilities in the United States: A Meta-Synthesis Study
We conducted a meta-synthesis to explore how Asian immigrant parents in the United States enact their perceived parental role while using health and educational services for their child with developmental disabilities. We identified 11 qualitative studies for analysis, and examined these studies using a constant comparative approach and thematic analysis informed by role theory and acculturation theory. Based on our analysis, five themes related to parents’ role enactment emerged: (a) parents perceive a multifaceted parental role; (b) parents’ individual factors influence their role enactment; (c) system factors influence parents’ role enactment; (d) parents use coping strategies to address role dissatisfaction; and (e) parental role enactment is a continuously evolving process influenced by acculturation, which spirals them toward their ultimate goal of helping their child thrive. Findings can inform practitioners’ and researchers’ understanding of how to create a culturally safe environment to support Asian immigrant parents in realizing their parental role.
ChanS.LeeE. (2004). Families with Asian roots. In LynchE. W.HansonM. J. (Eds.), Developing cross-cultural competence: A guide for working with young children and their families (3rd ed., pp. 219–291). Paul H. Brookes.
ChoS.GannottiM. E. (2005). Korean-American mothers’ perception of professional support in early intervention and special education programs. Journal of Policy and Practice in Intellectual Disabilities, 2(1), 1–9. https://doi.org/10.1111/j.1741-1130.2005.00002.x
7.
ChouY.KrögerT.PuC. (2016). Universal breadwinner versus universal caregiver model: Fathers’ involvement in caregiving and well-being of mothers of offspring with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 29(1), 34–45. https://doi.org/10.1111/jar.12156
DouglasT.RedleyB.OttmannG. (2017). The need to know: The information needs of parents of infants with an intellectual disability—A qualitative study. Journal of Advanced Nursing, 73(11), 2600–2608. https://doi.org/10.1111/jan.13321
10.
FourqureanJ. M.MeisgeierC.SwankP. R.WilliamsR. E. (1991). Correlates of postsecondary employment outcomes for young adults with learning disabilities. Journal of Learning Disabilities, 24(7), 400–405. https://doi.org/10.1177/002221949102400704
11.
GerlachA. J. (2012). A critical reflection on the concept of cultural safety. Canadian Journal of Occupational Therapy, 79(3), 151–158. https://doi.org/10.2182/cjot.2012.79.3.4
12.
GlaserB. G. (1965). The constant comparative method of qualitative analysis. Social Problems, 12(4), 436–445. https://doi.org/10.2307/798843
13.
GliddenL. M.BillingsF. J.JobeB. M. (2006). Personality, coping style and well-being of parents rearing children with developmental disabilities. Journal of Intellectual Disability Research, 50(12), 949–962. https://doi.org/10.1111/j.1365-2788.2006.00929.x
HamiltonA.MazzucchelliT. G.SandersM. R. (2015). Parental and practitioner perspectives on raising an adolescent with a disability: A focus group study. Disability and Rehabilitation, 37(18), 1664–1673. https://doi.org/10.3109/09638288.2014.973969
16.
HeerK.RoseJ.LarkinM. (2012). Understanding the experiences and needs of South Asian families caring for a child with learning disabilities in the United Kingdom: An experiential–contextual framework. Disability & Society, 27(7), 949–963. https://doi.org/10.1080/09687599.2012.699276
17.
HiranoK. A.RoweD. A. (2016). A conceptual model for parent involvement in secondary special education. Journal of Disability Policy Studies, 27(1), 43–53. https://doi.org/10.1177/1044207315583901
18.
Hoover-DempseyK. V.WalkerJ. M. T.SandlerH. M.WhetselD.GreenC. L.WilkinsA. S.ClossonK. (2005). Why do parents become involved? Research findings and implications. The Elementary School Journal, 106(2), 105–130. https://doi.org/10.1086/499194
19.
HsiehE. (2007). Interpreters as co-diagnosticians: Overlapping roles and services between providers and interpreters. Social Science & Medicine, 64(4), 924–937. https://doi.org/10.1016/j.socscimed.2006.10.015
20.
Hwa-FroelichD. A.WestbyC. E. (2003). Considerations when working with interpreters. Communication Disorders Quarterly, 24(2), 78–85. https://doi.org/10.1177/15257401030240020401
21.
Individuals with Disabilities Education Act (IDEA). (2004). P.L. No. 108-446, SS 614 (b)(6)(A).
22.
JegatheesanB. (2009). Cross-cultural issues in parent-professional interactions: A qualitative study of perceptions of Asian American mothers of children with developmental disabilities. Research and Practice for Persons with Severe Disabilities, 34(3–4), 123–136. https://doi.org/10.2511/rpsd.34.3-4.123
23.
JohnA.BowerK.McCulloughS. (2016). Indian immigrant parents of children with developmental disabilities: Stressors and support systems. Early Child Development and Care, 186(10), 1594–1603. https://doi.org/10.1080/03004430.2015.1116297
24.
JohnsonJ.DuffettA. (2002). When it’s your own child: A report on special education from the families who use it. Public Agenda.
KimK.-H.LeeY.MorningstarM. E. (2007). An unheard voice: Korean American parents’ expectations, hopes, and experiences concerning their adolescent child’s future. Research and Practice for Persons with Severe Disabilities, 32(4), 253–264. https://doi.org/10.2511/rpsd.32.4.253
LeeY.-J.ParkH. J. (2016). Becoming a parent of a child with special needs: Perspectives from Korean mothers living in the United States. International Journal of Disability, Development and Education, 63(6), 593–607. https://doi.org/10.1080/1034912X.2016.1154139
29.
LettsL.WilkinsS.LawM.StewartD.BoschJ.WestmorlandM. (2007). Guidelines for critical review form: Qualitative studies (Version 2.0). McMaster university occupational therapy evidence-based practice research group.
30.
LoL. (2005). Barriers to successful partnerships with Chinese-speaking parents of children with disabilities in urban schools. Multiple Voices for Ethnically Diverse Exceptional Learners, 8(1), 84–95.
31.
LoL. (2008a). Chinese families’ level of participation and experiences in IEP meetings. Preventing School Failure, 53(1), 21–27. https://doi.org/10.3200/PSFL.53.1.21-27
32.
LoL. (2008b). Expectations of Chinese families of children with disabilities towards American schools. School Community Journal, 18(2), 73–90.
33.
MajorD. A. (2003). Utilizing role theory to help employed parents cope with children’s chronic illness. Health Education Research, 18(1), 45–57. https://doi.org/10.1093/her/18.1.45
34.
MaxwellJ. A. (2012). Qualitative research design: An interactive approach (Vol. 41). Sage.
35.
MeyerB. (2001). Coping with severe mental illness: Relations of the Brief COPE with symptoms, functioning, and well-being. Journal of Psychopathology and Behavioral Assessment, 23(4), 265–277. https://doi.org/10.1023/A:1012731520781
36.
ParkJ.TurnbullA. P. (2001). Cross-cultural competency and special education: Perceptions and experiences of Korean parents of children with special needs. Education and Training in Mental Retardation and Developmental Disabilities, 36(2), 133–147.
37.
ParkJ.TurnbullA. P.ParkH.-S. (2001). Quality of partnerships in service provision for Korean American parents of children with disabilities: A qualitative inquiry. Journal of the Association for Persons with Severe Handicaps, 26(3), 158–170. https://doi.org/10.2511/rpsd.26.3.158
RabrenK.EvansA. M. (2016). A consensual qualitative analysis of parental concerns and strategies for transition. Journal of Vocational Rehabilitation, 44(3), 307–321. https://doi.org/10.3233/JVR-160801
40.
RehmR. S.FisherL. T.Fuentes-AfflickE.CheslaC. A. (2013). Parental advocacy styles for special education students during the transition to adulthood. Qualitative Health Research, 23(10), 1377–1387. https://doi.org/10.1177/1049732313505915
41.
RossettiZ.LehrD.PelerinD.HuangS.LedererL. (2016). Parent involvement in meaningful post-school experiences for young adults with IDD and pervasive support needs. Intellectual and Developmental Disabilities, 54(4), 260–272. https://doi.org/10.1352/1934-9556-54.4.260
42.
RossettiZ.RedashA.SauerJ. S.BuiO.WenY.RegensburgerD. (2018). Access, accountability, and advocacy: Culturally and linguistically diverse families’ participation in IEP meetings. Exceptionality, 1–16. https://doi.org/10.1080/09362835.2018.1480948
43.
RyanC.QuinlanE. (2018). Whoever shouts the loudest: Listening to parents of children with disabilities. Journal of Applied Research in Intellectual Disabilities, 31, 203–214. https://doi.org/10.1111/jar.12354
SmithM. J.RyanA. S. (1987). Chinese-American families of children with developmental disabilities: An exploratory study of reactions to service providers. Mental Retardation, 25(6), 345–350.
46.
TestD. W.FowlerC. H.RichterS. M.WhiteJ.MazzottiV.WalkerA. R.. . . KorteringL. (2009). Evidence-based practices in secondary transition. Career Development for Exceptional Individuals, 32(2), 115–128. https://doi.org/10.1177/0885728809336859
47.
U.S. Department of Health and Human Services, Office of Disease Prevention and Health Promotion. (2010). National action plan to improve health literacy. U.S. Department of Health and Human Services. https://doi.org/10.4135/9781483346427.n360
48.
WangM.MannanH.PostonD.TurnbullA. P.SummersJ. A. (2004). Parents’ perceptions of advocacy activities and their impact on family quality of life. Research and Practice for Persons with Severe Disabilities, 29(2), 144–155. https://doi.org/10.2511/rpsd.29.2.144
49.
Wathum-OcamaJ. C.RoseS. (2002). Hmong immigrants’ views on the education of their deaf and hard of hearing children. American Annals of the Deaf, 147(3), 44–53. https://doi.org/10.1353/aad.2012.0207
50.
YunusS. A. M. (2005). Childcare practices in three Asian countries. International Journal of Early Childhood, 37, 39–56. https://doi.org/10.1007/BF03165831
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