Restricted accessOtherFirst published online 2011-2
Reflections on Methodological Approaches and Conceptual Contributions in a Program of Caregiving Research: Development and Testing of Wuest’s Theory of Family Caregiving
Caregiving by family members, particularly women, is a societal expectation that is intensifying in the context of an aging population and health care restructuring. Our program of caregiving research spans two decades, moving from inductive theory development using grounded theory methods to deductive theory testing. In this article, we reflect on the serendipitous development of this program of research methodologically and conceptually. We summarize the key conceptual contributions that the program has made to caregiving knowledge, particularly with respect to the past relationship between care recipient and caregiver, obligation to care, caregiver agency, and relationships between caregivers and the health care system.
Gilligan C. ( 1993). In a different voice. Cambridge, MA : Harvard University Press.
2.
Glaser, B. ( 1978). Theoretical sensitivity. Mill Valley, CA: Sociology Press.
3.
Glaser, B. ( 1992). Basics of grounded theory analysis. Mill Valley, CA: Sociology Press.
4.
Glaser, B., & Strauss, A. ( 1967). The discovery of grounded theory. Chicago: Aldine.
5.
Leininger, M. ( 1988). Caring: An essential human need. Detroit, MI: Wayne State University Press.
6.
Merritt-Gray, M., & Wuest, J. ( 1995). Counteracting abuse and breaking free: The process of leaving revealed through women’s voices. Health Care for Women International, 16, 399-412. doi:10.1080/07399339509516194
7.
Mishel, M. ( 1984). Perceived uncertainty and stress in illness. Research in Nursing & Health, 7(3), 163-171. doi:10.1002/ nur.4770070304
8.
Montgomery, R., & Williams, K. ( 2001). Implications of differential impacts of care-giving for future research on Alzheimer’s care. Aging & Mental Health, 5, S23-S34. doi:10.1080/713650007
9.
Morse, J., Stern, P.N., Corbin, J., Bowers, B., Charmaz, K., & Clarke, A. ( 2009). Developing grounded theory: The second generation. Walnut Creek, CA: Left Coast Press.
10.
Stern, P. ( 1980). Grounded theory methodology: Its uses and processes. Image, 12, 20-23. doi:10.1111/j.1547-5069.1980. tb01455.x
11.
Stern, P.N. ( 2007). On solid ground: Essential properties for growing grounded theory. In A. Bryant & K. Charmaz (Eds.), The Sage handbook of grounded theory (pp. 114-126). Los Angeles: Sage .
12.
Strauss, A. ( 1987). Qualitative analysis for social scientists. Cambridge, MA: Cambridge University Press.
13.
Strauss, A., & Corbin, J. ( 1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.
14.
Wuest, J. ( 1991) Harmonizing: A North American Indian approach to management of middle ear disease with transcultural nursing implications. Journal of Transcultural Nursing, 3(1), 5-14. doi:10.1177/104365969100300103
15.
Wuest, J. ( 1995). Feminist grounded theory: An exploration of congruency and tensions between two traditions in knowledge discovery. Qualitative Health Research, 5, 125-137. doi:10.1177/104973239500500109
16.
Wuest, J. ( 1997a). Illuminating environmental influences on women’s caring. Journal of Advanced Nursing, 26, 49-58. doi:10.1046/j.1365-2648.1997.1997026049.x
17.
Wuest, J. ( 1997b). Fraying connections of caring women: An exemplar of including difference in the development of explanatory frameworks. Canadian Journal of Nursing Research, 29, 99-116.
18.
Wuest, J. ( 1998). Setting boundaries: A strategy for precarious ordering of women’s caring demands. Research in Nursing & Health21, 39-49. doi:10.1002/(SICI)1098-240X (199802)21:1<39::AID-NUR5>3.0.CO;2-U
19.
Wuest, J. ( 2000a). Negotiating with helping systems: An example of grounded theory evolving through emergent fit. Qualitative Health Research , 10,51-70. doi:10.1177/104973200129118246
20.
Wuest, J. ( 2000b). Repatterning care: Women’s proactive management of family caregiving demands. Health Care for Women International , 21, 393-441. doi:10.1080/07399330050082236
21.
Wuest, J. ( 2001). Precarious ordering: Toward a formal theory of women’s caring. Health Care for Women International, 22, 167-193. doi:10.1080/073993301300003144
22.
Wuest, J., Ericson, P., & Stern, P. ( 2001). Connected and disconnected support: The impact on the caregiving process in Alzheimer’s disease. Health Care for Women International, 22, 115-130. doi:10.1080/073993301300003117
23.
Wuest, J., Ericson, P., & Stern, P.N. ( 1994). Becoming strangers: Changing family relationships in Alzheimer’s disease. Journal of Advanced Nursing, 20, 437-443. doi:10.1111/ j.1365-2648.1994.tb02378.x
24.
Wuest, J., Hodgins, M.J., Malcolm, J., Merritt-Gray, M., & Seaman, P. ( 2007). The effects of past relationship and obligation on health and health promotion in women caregivers of adult family members. Advances in Nursing Science, 30(3), 206-220. doi:10.1097/01.ANS.0000286620 .39021.88
25.
Wuest, J., Hodgins, M.J., Merritt-Gray, M., Seaman, P., Malcolm, J., & Furlong, K. ( 2006). Queries and quandaries in developing and testing a measurement instrument derived from grounded theory. Journal of Theory Construction and Testing, 10(1), 26-33.
26.
Wuest, J., Hodgins, M.J., Merritt-Gray, M., & Seaman, P. ( 2007). Past relationship and obligation as predictors of health outcomes and health promotion in women caregiving for family members with ADRD. Unpublished proposal, Faculty of Nursing, University of New Brunswick, Fredericton, New Brunswick, Canada, funded by the Alzheimer Society of Canada and the Canadian Nurses Foundation.
27.
Wuest, J., Malcolm, J., & Merritt-Gray, M. (2010). Daughers’ obligation to care in the context of past abuse. Health Care for Women International, 31(12), 1047-1067.
28.
Wuest, J., & Stern, P. ( 1990a). Childhood otitis media: The family’s endless quest for relief. Issues in Comprehensive Pediatric Nursing, 13, 25-39.
29.
Wuest, J., & Stern, P. ( 1990b). The impact of fluctuating relationships with the Canadian health care system on family management of otitis media with effusion. Journal of Advanced Nursing, 15, 556-563. doi:10.1111/j.1365-2648.1990.tb01854.x
30.
Wuest, J., & Stern, P. ( 1991). Empowerment in primary health care: The challenge for nurses. Qualitative Health Research, 1, 80-99. doi:10.1177/104973239100100105
