In the HIV epidemic hope and loss are temporally structured according to pre, and post highly active antiretroviral therapies (HAART). AIDS dementia is a neurological condition on which HAART has had an important impact, yet this form of dementia has received little sociocultural attention. In this article, the author explores ethnographically personal hope from the perspective of “Matthew,” a significant other to a person with AIDS dementia, and how treatments influence this. Hope is present in Matthew's narrative, but its nature is complex and fluctuates with the arrival and perceived failure of HAART. The author concludes by suggesting that hope in this context is forked, which is suggestive of the tenacious nature of hope in the context of AIDS dementia in the era of HAART.
Anderson, C. (1992). Living with HIV. In C. Anderson & P. Wilke (Eds.), Reflective helping in HIV and AIDS (pp. 136-159). Buckingham , UK: Open University Press.
2.
Anderson, E., & Spencer, M. (2002). Cognitive representations of AIDS: A phenomenological study. Qualitative Health Research, 12, 1338-1352.
3.
Bradley-Springer, L. (1997). Prevention versus treatment: An ongoing dilemma . Journal of the Association of Nurses in AIDS Care, 8, 87-88, 94.
4.
Brashers, D.E., Neidig, J.L., Cardillo, L.W., Dobbs, L.K., Russell, J.A., & Hass, S.M. (1999). “In an important way, I did die”: Uncertainty and revival in persons living with HIV or AIDS. AIDS Care, 11(2), 201-219.
5.
Carson, V., Soeken, K., Sabty, J., & Terry, L. (1990). Hope and spiritual well-being: Essentials for living with AIDS. Perspective Psychiatric Care, 26, 28-34.
6.
Catalan, J., Klimes, I., Bond, A., Day. A., Garrod, A., & Rizza, C. (1992). The psychosocial impact of HIV infection in men with haemophilia. Journal of Psychosomatic Research, 36, 409-416.
7.
Catalan, J., Klimes, I., Day, A., Garrod, A., Bond, A., & Gallway, J. (1992). The psychosocial impact of HIV infection on gay men. British Journal of Psychiatry, 161, 774-778.
8.
Crossley, M. (2000). Introducing narrative psychology: Self, trauma and the construction of meaning. Buckingham, UK. Open University Press.
9.
Cunningham, M. (1999). The hours. London: Fourth Estate.
10.
Dore, G., Correll, P., Li, Y., Kaldor, J., Cooper, D., & Brew, B. (1999). Changes to AIDS dementia complex in the era of highly active antiretroviral therapy. AIDS, 13, 1249-1253.
11.
Dore, G., Li, Y., McDonald, A., Ree, H., & Kaldor, J. (2002). Impact of highly active antiretroviral therapy on individual AIDS: Defining illness incidence and survival in Australia. Journal of Acquired Immune Deficiency Syndrome, 29(4), 388-395.
12.
Dore, G., McDonald, A., Li, Y., Kaldor, J., & Brew, B. (2003). Marked improvements in survival following AIDS dementia complex in the era of highly active antiretroviral therapies. AIDS, 17, 1539-1545.
13.
Eliot, J., & Olver, I. (2002). The discursive properties of “hope”: A qualitative analysis of cancer patients' speech, Qualitative Health Research, 12, 173-193.
14.
Elison, J., & McGonigle, C. (2003). Liberating losses: When death brings relief. Cambridge, UK: Perseus.
15.
Ezzy, D. (2000). Illness narratives: Time, hope and HIV. Social Science & Medicine, 50, 605-617.
16.
Hacker, M. (1986). Love, death and the changing of the seasons. New York: W. W. Norton.
17.
Hall, B. (1994). Ways of maintaining hope in HIV disease. Research Nursing Health, 17, 283-293.
18.
Haraway, D. (1988). Situated knowledges: The science question in feminism and the privilege of partial perspectives. Feminist Studies , 14(3), 575-599.
19.
Harman, G. (2001). 20 years of HIV: Characteristic uncertainty. Talkabout, 116, 17.
20.
Hurley, M. (1997, July 24). Imagining a future. Sydney Star Observer, pp. 8-9.
21.
Kelly, A. (2006). Changing minds, changing lives: The lived experiences of AIDS dementia. Unpublished doctoral dissertation, LaTrobe University, Melbourne, Australia.
22.
Kippax, S. (2005). A public health dilemma: The vexed question of voluntary counselling and testing. In N. Stephenson , C. Webb, & M. Carman (Eds.), Testing, trials and re-thinking human rights: Reflections from the HIV pandemic (pp. 7-10). Sydney, Australia: ASHM, School of Public Health and Community Medicine and the National Centre in HIV Social Research University of New South Wales .
23.
Klymä, J. (2005). Despair and hopelessness in the context of HIV: A meta-synthesis on qualitative research findings. Journal of Clinical Nursing, 14, 813-821.
24.
Lowth, A., Yallop, S., Reid, J., & Fitzgerald, M. (1999). Looking beyond the optimism surrounding new treatments: Issues for HIV service providers and people living with HIV. Australian Social Work, 52(3), 31-36.
25.
Maticka-Tyndale, E., Adam, B., & Cohen, J. (2002). To work or not to work: Combination therapies and HIV. Qualitative Health Research, 12, 1353-1372.
26.
Moore, S. (2001). 20 years of HIV: The burden of silence. Talkabout, 116, 19-20.
27.
Navia, B., Jordan, B., & Price, R. (1986). The AIDS dementia complex: Clinical features. Annals of Neurology, 19, 517-524.
28.
Panourgiá, N. (2002). Interview with Clifford Geertz. Anthropological Theory, 2(4), 421-431.
29.
Persson, A., Race, K., & Wakeford, E. (2003). HIV health in context: Negotiating medical technology and lived experience. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 7(4), 397-415.
30.
Sturken, M. (1997). Tangled memories: The Vietnam War, the AIDS epidemic, and the politics of remembering. Berkeley: University of California Press.
31.
Throop, J. (2003). Articulating experience. Anthropological Theory, 3(2), 219-241.
32.
Tietjin, M. (2001). 20 years of HIV: The view from here. Talkabout, 116, 18.
33.
Trainer, A., & Ezer, H. (2000). Rebuilding life: The experience of living with AIDS after facing imminent death. Qualitative Health Research , 10, 646-660.
34.
Tuller, D. (1996, November 24). Uncertain life after certain death . San Francisco Chronicle, p. 1.
35.
Willis, J. (2002, July). It's disturbing. Paper presented at the 14th International AIDS Conference, Barcelona, Spain.
36.
Wong-Wylie, G., & Jevne, R. (1997). Patient hope: Exploring the interactions between physicians and HIV seropositive individuals. Qualitative Health Research, 7, 32-56.
37.
Yallop, S., Lowth, A., Fitzgerald, M.H., Reid, J., & Morelli, A. (2002). The changing world of health care: The impact on health professionals. Culture, Health and Sexuality, 4(4), 431-441.
