In the post-1996 era, the effectiveness of antiviral therapies (such as highly active antiretroviral therapy [HAART]), which transformed HIV/AIDS into a more manageable disease, raised expectations that the disease’s stigma would decrease. The authors compared focused-interview data from a pre-HAART (1994 to 1996) and a HAART-era (2000 to 2003) sample of African American, Puerto Rican, and White women living with HIV/AIDS to identify changes in stigma experiences and suggest reasons for continued stigmatization. In both eras, general stereotypes about HIV/AIDS, as well as gender- and race-related stereotypes about the disease, were identified. Internalizing any of these stereotypes was a necessary and sufficient condition for feeling stigmatized. Instances of enacted stigmatization were more frequent and intense in the pre-HAART era. Nevertheless, misinformation and irrational fears of contagion, which triggered stigmatizing behavior, persisted into the HAART era. This analysis revealed that although enacted stigmatization has decreased slightly, felt stigma remains a primary adaptational challenge facing women with HIV/AIDS.
Boyle, J. S., Hodnicki, D. R., & Ferrell, J. A. (1999). Patterns of resistance: African American mothers and adult children with HIV illness. Scholarly Inquiry for Nursing Practice: An International Journal, 13, 111-133.
2.
Bunting, S. M. (1996). Sources of stigma associated with women with HIV. Advances in Nursing Science, 19, 64-73.
3.
Camp, D. L., Finlay, W. M. L., & Lyons, E. (2002). Is low self-esteem an inevitable consequence of stigma?: An example from women with chronic mental health problems. Social Science & Medicine, 55, 823-834.
4.
Centers for Disease Control. (2000). HIV-related knowledge and stigma—United States, 2000. Morbidity and Mortality Weekly Report, 49, 1062-1064.
5.
Chapman, E. (2000). Conceptualization of the body for people living with HIV: Issues of touch and contamination. Sociology of Health & Illness, 22, 840-857.
6.
Ciambrone, D. (2003). Women’s experiences with HIV/AIDS: Mending fractured selves. New York: Haworth.
7.
Crocker, J. (1999). Social stigma and self-esteem: Situational construction of self-worth. Journal of Experimental Social Psychology, 35, 89-107.
8.
Crocker, J., Major, B., & Steele, C. (1998). Social stigma. In D. Gilbert, S. Fiske, & G. Lindrey (Eds.), The handbook of social psychology (Vol. 2, 4th ed., pp. 504-553). Boston: McGraw-Hill.
9.
Devine, P. G., Plant A. E., & Harrison, K. (1999). The problem of “us” versus “them” and AIDS stigma. American Behavioral Scientist, 42, 1212-1228.
10.
Frazer-Wyche, K. (1998). Let me suffer so my kids won’t: African American mothers living with HIV/AIDS. In C. Garcia-Cole, J. Surrey, & K. Weingarten (Eds.), Mothering against the odds: Diverse voices of contemporary mothers (pp. 173-189). New York: Guilford.
11.
Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. New York: Simon and Schuster.
12.
Green, G. (1996). Stigma and social relationships of people with HIV: Does gender make a difference? In L. Sherr, C. Hankins, & L. Bennett (Eds.), AIDS as a gender issue: Psychosocial perspectives (pp. 46-63). Washington, DC: Taylor & Francis.
13.
Greene, K., Frey L. R., & Derlega, V. J. (2002). Interpersonalizing AIDS: Attending to the personal and social relationships of individuals living with HIV and/or AIDS. Journal of Social and Personal Relationships, 19, 5-17.
14.
Grove, K., Kelly, D. P., & Liu, J. (1997). “But nice girls don’t get it”: Women, symbolic capital, and the social construction of AIDS. Journal of Contemporary Ethnography, 26, 317-337.
15.
Hader, S. L., Smith, D. K., Moore, J. S., & Holmberg, S. D. (2001). HIV infection in women in the United States status at the millennium. Journal of the American Medical Association, 285, 1186-1192.
16.
Herek, G. M., Capitanio, J. P., & Widaman, K. F. (2002). HIV-related stigma and knowledge in the United States: Prevalence and trends, 1991-1999. American Journal of Public Health, 92, 371-376.
17.
Herek, G. M., Mitnick, L., Burris, S., Chesney, M., Devine, P., Fullilove, M. T., et al. (1998). Workshop report: AIDS and stigma—A conceptual framework and research agenda. AIDS & Public Policy Journal, 13, 36-47.
18.
Ingram, D., & Hutchinson, S. A. (1999). HIV positive mothers and stigma. Health Care for Women International, 20, 93-103.
19.
Ingram, D., & Hutchinson, S. A. (2000). Double binds and the reproductive and mothering experiences of HIV-positive women. Qualitative Health Research, 10, 117-132.
20.
Jarrett, R. L. (1996). Welfare stigma among low-income, African American single mothers. Family Relations, 45, 368-374.
21.
Lawless, S., Kippax, S., & Crawford, J. (1996). Dirty, diseased and undeserving: The positioning of HIV positive women. Social Science & Medicine, 43, 1371-1377.
22.
Lee, R. S., Kochman, A., & Sikkema, K. J. (2002). Internalized stigma among people living with HIV/AIDS. AIDS and Behavior, 6, 309-319.
23.
Link, B. G., & Phelan, J. C. (2001). Conceptualizing stigma. Annual Review of Sociology, 27, 363-385.
24.
McNair, L. D., & Prather, C. M. (2004). African American women and AIDS: Factors influencing risk and reaction to HIV disease. Journal of Black Psychology, 30, 106-123.
25.
Merton, R. K., Fiske, M., & Kendall, P. L. (1990). The focused interview: A manual of problems and procedures (2nd ed.). New York: Free Press. (Original work published 1956)
26.
Moneyham, L., Seals, B., Demi, A., Sowell, R., Cohen, L., & Guillory, J. (1996). Perceptions of stigma in women infected with HIV. AIDS Patient Care & Studies, 10, 162-167.
27.
Parker, R., & Aggleton, P. (2003). HIV and AIDS-related stigma and discrimination: A conceptual framework and implications for action. Social Science & Medicine, 57, 13-24.
28.
Sandelowski, M., Lambe, C., & Barroso, J. (2004). Stigma in HIV-positive women. Journal of Nursing Scholarship, 36, 122-128.
29.
Siegel, K., Lekas, H.-M., & Schrimshaw, E. W. (2005). Serostatus disclosure to sexual partners in HIV-infected women before and after the advent of HAART. Women & Health, 41, 63-85.
30.
Stanley, L. D. (1999). Transforming AIDS: The moral management of stigmatized identity. Anthropology & Medicine, 6, 103-119.
31.
Ward, M. C. (1993). A different disease: HIV/AIDS and healthcare for women in poverty. Culture, Medicine & Psychiatry, 17, 413-430.
32.
Whittaker, A. M. (1992). Living with HIV: Resistance by positive people. Medical Anthropology Quarterly, 6, 358-390.
