In the mid-1990s, medical advances dramatically altered the experience of living with HIV/AIDS. The shifting medical climate spurred new social and financial questions, such as the possibility of returning to work. In this qualitative study, the authors examine how people living with HIV/AIDSperceive, attach meaning to, and approach the experience of returning to work. Findings demonstrate that the participants are influenced by, and wrestle with, both the dominant societal perspective that “people should return to work,” and the oppositional perspective that people living with HIV/AIDS “should not return to work.” Theoretical understanding of the results is enhanced using the concepts of the “sick role” and the “hierarchy of identities.” Findings have conceptual and methodological implications for literature in HIV/AIDS, return to work, and identity.
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References
1.
Adams, B. D., Maticka-Tyndale, E., & Cohen, J. J. (2001). Living with combination therapies. Windsor, Canada: University of Windsor.
2.
Annandale, E. (1998). The sociology of health and medicine: A critical introduction. New York: Polity.
3.
Bellaby, P. (1990). What is genuine sickness? The relationship between work-discipline and the sick role in a pottery factory. Sociology of Health and Illness, 12(1), 47-68.
4.
Brashers, D. E., Neidig, J. L., Cardillo, L. W., Dobbs, L. K., Russell, J. A., & Haas, S. M. (1999). “In an important way, I did die”: Uncertainty and revival in persons living with HIV. AIDS Care, 11(2): 201-219.
5.
British Columbia Persons With AIDS Society. (1997). Issues and guiding principles: Vocational rehabilitation and rehabilitation services in the context of HIV infection. Vancouver, BC: Author.
6.
Canadian AIDS Society. (1998a). Force for change: Labour force participation for people living with HIV/AIDS. Ottawa, Canada: Author.
7.
Canadian AIDS Society. (1998b). HIV/AIDS: A guide to insurance benefits. Ottawa, Canada: Maclean Hunter.
8.
Carpenter, C. C., Fischl, M. A., Hammer, S. M., Hirsch, M. S., Jacobsen, D. M., Katzenstein, D. A., et al. (1998). Antiretroviral therapy for human immunodeficiency virus infection in 1998: Updated recommendations of the International AIDS Society—USA Panel. Journal of the American Medical Association, 280(1), 78-86.
9.
Charmaz, K. (1983). Loss of self: A fundamental form of suffering of the chronically ill. Sociology of Health and Illness, 5, 168-193.
10.
Charmaz, K. (1987). Struggling for a self: Identity levels of the chronically ill. In J. A. Roth & P. Conrad (Eds.), Research in the sociology of health care: The experience and management of chronic illness (Vol. 6, pp. 283-321). Greenwich, CT: JAI.
11.
Charmaz, K. (1990). Discovering chronic illness: Using grounded theory. Social Science & Medicine, 30, 1161-1172.
12.
Charmaz, K. (1994). Identity dilemmas of chronically ill men. Sociological Quarterly, 35, 269-288.
13.
Creswell, J. (1998). Qualitative inquiry and research design: Choosing among five traditions. Thousand Oaks, CA: Sage.
14.
Crossley, M. (1998). “Sick role” or “empowerment”? The ambiguity of life with an HIV positive diagnosis. Sociology of Health and Illness, 20(4), 507-531.
15.
Ezzy, D., De Visser, R., & Bartos, M. (1999). Poverty, disease progression and employment among people living with HIV/AIDS in Australia. AIDS Care, 11(4), 405-414.
16.
Grubb, I., & McClure, C. (1997). Back to the future: A feasibility study on return-to-work programming for people living with HIV/AIDS. Toronto, Canada: AIDS Committee of Toronto.
17.
HIV and AIDS Legal Clinic (Ontario). (1998). Do you need income support because you have a disability or health problem? [Brochure]. Toronto, Canada: Author.
18.
Jalbert, Y., & Masson, R. (1998, June-July). Returning to work when you are on triple therapy: The reality. Poster No. 13448 presented at the Twelfth World AIDS Conference, Geneva.
19.
Mauthner, M., & Doucet, A. (1998). Reflections on a voice-centred relational method: Analyzing maternal and domestic voices. In J. Ribbens & R. Edwards (Eds.), Feminist dilemmas in qualitative research: Public knowledge and private lives (pp. 119-146). Thousand Oaks, CA: Sage.
20.
Palella, F. J., Jr., Delaney, K. M., Moorman, A. C., Loveless, M. O., Fuhrer, J., Sutten, G. A., et al. (1998). Declining morbidity and mortality among patients with advanced HIV infection. New England Journal of Medicine, 338, 853-860.
21.
Parsons, T. (1951). The social system. Chicago: Free Press.
22.
Phillips, A. (Ed.). (1998). A comprehensive guide for the care of persons with HIV disease, module 7: Rehabilitation services. Toronto, Canada: Wellesley-Central Hospital.
23.
Ritzer, G. (1983). Sociological theory. New York: Knopf.
24.
Sowell, R. L., Phillips, K. D., & Grier, J. (1998). Restructuring life to face the future: The perspective of men after a positive response to protease inhibitor therapy. AIDS Patient Care and STDs, 12(1), 33-42.
25.
Strauss, A., & Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.
26.
Toronto Persons Living With AIDS Foundation. (1997). Benefits issues and going back to work: An introduction [Brochure]. Toronto, Canada: Author.
27.
Yoshida, K. K. (1993). Reshaping of self: A pendular reconstruction of self among adults with traumatic spinal cord injury. Sociology of Health and Illness, 15(2): 217-245.
