In this study, the authors examine the under-investigated topic of patient-provided support for spouse caregivers. Thirty-four men with prostate cancer and their female partners were interviewed separately three times: before the man’s radical prostatectomy, 8 to 10 weeks postsurgery, and 1 year postsurgery. The core category of active consideration encompassed 4 dimensions: easing spousal burden, keeping us up, maintaining connection, and considering spouse. Patient-provided support entails two overlapping tasks: minimizing the practical and emotional impact of the illness and tending to the caregiver’s social-emotional needs. A theory expounding on the double bind of being both a patient and an agent in light of masculine socialization practices is articulated and brought to bear on the phenomenon of patient-provided support.
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References
1.
Acitelli, L. K. , & Antonucci, T. C. (1994). Gender differences in the link between marital support and satisfaction in older couples. Journal of Personality and Social Psychology, 67, 688-698.
2.
Aries, E. (1987). Gender and communication. In P. Shaver & C. Hendrick (Eds.), Sex and gender: A review of personality and social psychology (Vol. 7, pp. 149-176). Newbury Park, CA: Sage.
3.
Baider, L. , Koch, U., Esacson, R., & Kaplan De-Nour, A. (1998). Prospective study of cancer patients and their spouses: The weakness of marital strength. Psycho-oncology, 7, 49-56.
4.
Baider, L. , Rizel, S., & Kaplan De-Nour, A. (1986). Comparison of couples’ adjustment to lumpectomy and mastectomy. General Hospital Psychiatry, 8, 251-257.
5.
Bernard, J. (1981). The good-provider role. American Psychologist, 36, 1-12.
6.
Bloom, J. R. (1982). Social support, accommodation to stress and adjustment to breast cancer. Social Science Medicine, 16, 1329-1338.
7.
Bloom, J. R. , & Spiegel, D. (1984). The relationship of two dimensions of social support to the psychological well-being and social functioning of women with advanced breast cancer. Social Science Medicine, 19, 831-837.
8.
Carey, R. C. (1974). Emotional adjustment in terminal patients: A quantitative approach. Journal of Counseling Psychology, 21, 433-439.
9.
Cassileth, B. R. , Lusk, E. J., Strouse, T. B., Miller, D. S., Brown, L. L., & Cross, P. A. (1985). A psychological analysis of cancer patients and their next of kin. Cancer, 55, 72-76.
10.
Cobb, S. (1976). Social support as a moderator of life stress. Psychosomatic Medicine, 38, 300-314.
11.
Coffman, S. , & Ray, M. A. (1999). Mutual intentionality: A theory of support processes in pregnant African American women. Qualitative Health Research, 9, 479-492.
12.
Coyne, J. C. , Ellard, J. H., & Smith, D. A. F. (1990). Social support, interdependence, and the dilemmas of helping. In B. R. Sarason, I. G. Sarason, & G. R. Pierce (Eds.), Social support: An interactional view (pp. 129-149). New York: John Wiley.
13.
DiMatteo, M. R. , & Hayes, R. (1981). Social support and serious illness. In B. H. Gottlieb (Ed.), Social networks and social support (pp. 117-149). London: Sage.
14.
Douglass, L. G. (1997). Reciprocal support in the context of cancer: Perspectives of the patient and spouse. Oncology Nursing Forum, 24, 1529-1536.
15.
Doyle, J. A. (1995). The male experience (3rd ed.). Boston: McGraw-Hill.
16.
Dunkel-Schetter, C. (1984). Social support and cancer: Findings based on patient interviews and their implications. Journal of Social Issues, 40, 77-98.
17.
Elliott, R. , Fischer, C. T., & Rennie, D. L. (1999). Evolving guidelines for publication of qualitative research studies in psychology and related fields. British Journal of Clinical Psychology, 38, 215-229.
18.
Fergus, K. , Gray, R., Fitch, M., Labrecque, M., & Phillips, C. (2000, April). Social Support amongst Men with Prostate Cancer and their Spouses: A Dynamic, Reciprocal Understanding. Paper presented at the Psychosocial Oncology 2000 and Beyond Conference, cosponsored by AOSW, CAPO, and ASPBOA, Vancouver, BC.
19.
Fincham, F. D. , & Bradbury, T. N. (1990). Social support in marriage: The role of social cognition. Journal of Social and Clinical Psychology, 9, 31-42.
20.
Funch, D. P. , & Mettlin, C. (1982). The role of support in relation to recovery from breast surgery. Social Science & Medicine, 16, 91-98.
21.
Gadamer, H. G. (1989). Truth and method (J. Weinsheimer & D. G. Marshall, Trans.). New York: Crossroad. (Original work published 1960)
22.
Giddens, A. (1976). New rules for sociological method. New York: Basic Books
23.
Gilligan, C. (1982). In a different voice. Cambridge, MA: Harvard University Press.
24.
Glaser, B. G. (1978). Theoretical sensitivity: Advances in the methodology of grounded theory. Mill Valley, CA: Sociology Press.
25.
Glaser, B. G. , & Strauss, A. (1967). The discovery of grounded theory: Strategies for qualitative research. Chicago: Aldine.
26.
Gotay, C. (1984). The experience of cancer during early and advanced stages: The views of patients and their mates. Social Science & Medicine, 18, 605-613.
27.
Gray, R. , Fitch, M., Phillips, C., Labrecque, M., & Fergus, K. (2000). Managing the impact of illness: The experiences of men with prostate cancer and their spouses. Journal of Health Psychology, 5, 531-548.
28.
Hatfield, E. , & Sprecher, S. (1983). Equity theory and recipient reactions to aid. In J. D. Fisher, A. Nader, & B. DePaulo (Eds.), New directions in helping (Vol. 1, pp. 113-141). New York: Academic Press.
29.
House, J. S. (1981). Work stress and social support. Reading, MA: Addison-Wesley.
30.
House, J. S. , Kahn, R. L., McLeod, J. D., & Williams, D. (1985). Measures and concepts of social support. In S. Cohen, & S. L. Syme (Eds.), Social Support and Health (pp. 83-108). Orlando, FL: Academic Press.
31.
Kane, C. (1988). Family social support: Toward a conceptual model. Advances in Nursing Science, 10, 18-25.
32.
Kaplan, B. H. , Cassel, J. C., & Gore, S. (1977). Social support and health. Medical Care, 15 (Suppl.), 47-58.
33.
Kornblith, A. B. , Herr, J. W., Ofman, U. S., Scher, H.I., & Holland, J.C. (1994). Quality of life of patients with prostate cancer and their spouses. Cancer, 73, 2791-2802.
34.
Lackner, S. , Goldenberg, S., Arrizza, G., & Tjosvold, I. (1994). The contingency of social support. Qualitative Health Research, 4, 224-243.
35.
Lichtman, R. R. , Taylor, S. E., & Wood, J. V. (1987). Social support and marital adjustment after breast cancer. Journal of Psychosocial Oncology, 5, 47-74.
36.
Lydon, J. E. , & Zanna, M. P. (1992). The cost of social support following negative life events: Can adversity increase commitment to caring in close relationships? In L. Montada, S. Filipp, & M. J. Lerner (Eds.), Life crises and experiences of loss in adulthood (pp. 461-475). Hillsdale, N.J.: Lawrence Erlbaum.
37.
Maguire, P. (1981). The repercussions of mastectomy on the family. International Journal of Family Psychiatry, 1, 485-503.
38.
Maltz, D. N. , & Borker, R. A. (1982). A cultural approach to male-female miscommunication. In J. J. Gumperz (Ed.), Language and social identity (pp. 196-216). Cambridge, UK: Cambridge University Press.
39.
Neimeyer, R. A. (1993). An appraisal of constructivist psychotherapy. Journal of Consulting and Clinical Psychology, 6, 221-234.
40.
Noller, P. (1993). Gender and emotional communication in marriage: Different cultures or differential social power?Journal of Language and Social Psychology, 12, 132-152.
41.
Northouse, L. L. , Mood, D., Templin, T., Mellon, S., & George, T. (2000). Couples’ patterns of adjustment to colon cancer. Social Science & Medicine, 50, 271-284.
42.
Oberst, M. T. , & James, R. H. (1985). Going home: Patient and spouse adjustment following cancer surgery. Topics in Clinical Nursing, 7, 46-57.
43.
Omne-Ponten, M. , Holmberg, L., Bergstrom, R., Sjoden, P., & Burns, T. (1993). Psychosocial adjustment among husbands of women treated for breast cancer: Mastectomy vs. breast-conserving surgery. European Journal of Cancer, 29A, 1393-1397.
44.
Phillips, C. , Gray, R. E, Fitch, M. I., Labrecque, M., Fergus, K., & Klotz, L. (2000). Early post-surgical experiences of prostate cancer patients and spouses. Cancer Practice, 8, 165-171.
45.
Pistrang, N. , & Barker, C. (1995). The partner relationship in psychological response to breast cancer. Social Science Medicine, 40, 789-797.
46.
Rennie, D. L. (1998). Grounded theory methodology: The pressing need for a coherent logic of justification. Theory & Psychology, 8, 101-119.
47.
Rennie, D. L. , Phillips, J. R., & Quartaro, G. K. (1988). Grounded theory: A promising approach to conceptualization in psychology?Canadian Psychology, 29, 139-150.
48.
Sherbourne, C. D. , & Stewart, A. L. (1991). The MOS social support survey. Social Science & Medicine, 32, 705-714.
49.
Tannen, D. (1990). You just don’t understand. New York: William Morrow.
50.
Trobst, K. K. (1999). Social support as an interpersonal construct. European Journal of Psychological Assessment, 15, 246-255.
51.
Wiggins, J. S. & Trapnell, P. D. (1996). A dyadic-interactional perspective on the five factor model. In J. S. Wiggins (Ed.), The five-factor model of personality: Theoretical perspectives (pp. 88-162). New York: Guilford.
52.
Wortman, C. B. (1984). Social support and the cancer patient: Conceptual and methodologic issues. Cancer, 53, 2339-2362.
53.
Zacharias, D. R. , Gilg, C. A., & Foxall, M. J. (1994). Quality of life and coping with gynecologic cancer patients and their spouses. Oncology Nursing Forum, 21, 1699-1706.
