This investigation determined the themes that represented quality of life for persons with a spinal cord injury. Fifteen people (6 females, 9 males; 7 persons with quadriplegia, 8 with paraplegia) participated in this study, which used naturalistic inquiry methodologies. Results showed that quality of life for this population, regardless of severity of impairment, consisted of nine themes: (a) physical function and independence, (b) accessibility, (c) emotional well-being, (d) stigma, (e) spontaneity, (f) relationships and social function, (g) occupation, (h) finances, and (i) physical well-being. The themes of life quality were similar for quadriplegics and paraplegics; however, physical function and independence and physical well-being affected the quality of life of persons with a quadriplegic injury to a greater extent. These findings may provide health professionals with information necessary to assist in the development of programs to enhance quality of life.
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References
1.
Bach, C. A. , & McDaniel, R. W. (1993). Quality of life in quadriplegic adults: A focus group study. Rehabilitation Nursing, 18, 364-374.
2.
Bauman, W. A. , & Spungen, A. (1994). Disorders of carbohydrate and lipid metabolism in veterans with paraplegia or quadriplegia: A model of premature aging. Metabolism, 43, 749-756.
3.
Bogdan, R. C. , & Biklen, S. K. (1982). Qualitative research for education: An introduction to theory and methods. Newton, MA: Allyn & Bacon.
4.
Clayton, K. S. , & Chubon, R. A. (1994). Factors associated with quality of life of long term spinal cord injured persons. Archives of Physical Medicine and Rehabilitation, 75, 633-638.
5.
Day, H. , & Jankey, S. (1996). Lessons from the literature: Toward a holistic model of quality of life. In R. Renwick, I. Brown, & M. Nagler (Eds.), Quality of life in health promotion and rehabilitation (pp. 39-50). Thousand Oaks, CA: Sage.
6.
Dijkers, M. (1997). Quality of life after spinal cord injury: A meta analysis of the effects of disablement components. Spinal Cord, 35, 829-840.
7.
Douglas, J. (1976). Investigating social research: Individual and team field research. Beverly Hills, CA: Sage.
8.
Flanagan, J. C. (1982). Measurement of quality of life: Current state of the art. Archives of Physical Medicine and Rehabilitation, 63, 56-59.
9.
Guba, E. , & Lincoln, W. (1981). Effective evaluation: Improving the usefulness of evaluation results through responsiveness and naturalistic approaches. San Francisco: Jossey-Bass.
10.
Humbert, M. L. (1995). On the sidelines: The experiences of young women in physical education classes. Avante, 1, 58-77.
11.
Janssen, T.W.J. , Van Oers, A.J.M., Van Der Woude, L.H.V., & Hollander, A. P. (1994). Physical strain in daily life of wheelchair users with spinal cord injuries. Medicine and Science in Sports and Exercise, 26, 661-670.
12.
Lanig, I. S. , Chase, T. M., Butt, L. M., Hulse, K. L., & Johnson, K.M.M. (1996). A practical guide to health promotion after spinal cord injury. Gaithersburg, MD: Aspen.
13.
Lincoln, W. , & Guba, E. (1985). Naturalistic inquiry. Newbury Park, CA: Sage.
14.
Morse, J. , & Field, P. A. (1995). Qualitative research methods for health professionals. Thousand Oaks, CA: Sage.
15.
Noreau, L. , Shephard, R. J., Simard, C., Pare, G., & Pomerleau, P. (1993). Relationship of impairment and functional ability to habitual activity and fitness following spinal cord injury. International Journal of Rehabilitation Research, 16, 265-275.
16.
Raeburn, J. M. , & Rootman, I. (1996). Quality of life and health promotion. In R. Renwick, I. Brown, & M. Nagler (Eds.), Quality of life in health promotion and rehabilitation: Conceptual approaches, issues and applications (pp. 14-25). Thousand Oaks, CA: Sage.
17.
Rapheal, D. (1996). Defining quality of life: Eleven debates concerning its measurement. In R. Renwick, I. Brown, & M. Nagler (Eds.), Quality of life in health promotion and rehabilitation: Conceptual approaches, issues and applications (pp. 146-165). Thousand Oaks, CA: Sage.
18.
Renwick, R. , & Brown, I. (1996). The Centre for Health Promotion’s conceptual approach to quality of life: Being, becoming and belonging. In R. Renwick, I. Brown, & M. Nagler (Eds.), Quality of life in health promotion and rehabilitation: Conceptual approaches, issues and applications (pp. 75-86). Thousand Oaks, CA: Sage.
19.
Renwick, R. , & Friefeld, S. (1996). Quality of life and rehabilitation. In R. Renwick, I. Brown, & M. Nagler (Eds.), Quality of life in health promotion and rehabilitation: Conceptual approaches, issues and applications (pp. 26-38). Thousand Oaks, CA: Sage.
20.
Rubin, H. J. , & Rubin, I. S. (1995). Qualitative interviewing: The art of hearing. Thousand Oaks, CA: Sage.
21.
Sabari, J. S. , Meisler, J., & Silver, E. (2000). Reflections upon rehabilitation by members of a community based stroke club. Disability and Rehabilitation, 22, 330-336.
22.
Schulz, R. , & Decker, S. (1985). Long term adjustment to physical disability: The role of social support, perceived control, and self blame. Journal of Personality and Social Psychology, 48, 1162-1172.
23.
Stensman, R. (1994). Adjustment to traumatic spinal cord injury. A longitudinal study of self-reported quality of life. Paraplegia, 32, 416-422.
24.
Stuifbergen, A. K. , & Rogers, S. (1997). Health promotion: An essential component of rehabilitation for persons with chronic disabling conditions. Advanced Nursing Science, 19, 1-20.
25.
Whiteneck, G. G. (1994). Measuring what matters: Key rehabilitation outcomes. Archives of Physical Medicine and Rehabilitation, 75, 1073-1076.
26.
Wood-Dauphinee, S. , & Kuchler, T. (1992). Quality of life as a rehabilitation outcome: Are we missing the boat?Canadian Journal of Rehabilitation, 6, 3-12.
