Illness troubles us because it is an occasion of suffering, but research on illness has difficulty conceptualizing suffering—and naturally so because suffering is not a concept but a lived reality that resists articulation. Based on the work of Dorothy Smith, the author argues that the rhetoric of social science inadvertently increases suffering because it attempts to organize local experience within extralocal categories. He concludes with suggestions for changing research practices.
Get full access to this article
View all access options for this article.
References
1.
Baudrillard, J. (1998). The consumer society. London: Sage Ltd.
2.
Chambliss, D. F. (1996). Beyond caring: Hospitals, nurses, and the social organization of ethics. Chicago: University of Chicago Press.
3.
Diamond, S. F. (1996). Case story: Lifelong effects of chronic atopic eczema. Making the Rounds in Health, Faith, & Ethics, 2, 1-4.
4.
Dolenc, D. A. , & Dougherty, C. J. (1989). DRGs: The counterrevolution in financing health care. In P. Brown (Ed.), Perspectives in medical sociology (pp. 308-325). Prospect Heights, IL: Waveland.
5.
Frank, A. W. (1991). At the will of the body: Reflections on illness. Boston: Houghton Mifflin.
6.
Frank, A. W. (1995). The wounded storyteller: Body, illness, and ethics. Chicago: University of Chicago Press.
7.
Levinas, E. (1985). Ethics and infinity. Pittsburgh: Duquesne University Press.
8.
Levinas, E. (1989). The Levinas reader (S. Hand, Ed.). Cambridge, MA: Blackwell.
9.
Levinas, E. (1998). Entre nous: Thinking-of-the-other. New York: Columbia University Press.
10.
Morris, D. B. (1991). The culture of pain. Berkeley: University of California Press.
11.
Morris, D. B. (1998). Illness and culture in the postmodern age. Berkeley: University of California Press.
12.
Robbins, J. (1999). Altered reading: Levinas and literature. Chicago: University of Chicago Press.
13.
Smith, D. E. (1987). The everyday world as problematic: A feminist sociology. Toronto: University of Toronto Press.
14.
Smith, D. E. (1999). Reading the social: Critique, theory, and investigations. Toronto: University of Toronto Press.