Abstract
A participatory action research approach was adopted to explore supports that enhance participation of individuals with developmental disabilities and family members on advisory committees. Focus groups and open-ended surveys were conducted with staff from University Centers for Excellence in Developmental Disabilities and members of their Consumer Advisory Committees. Five themes emerged: (a) individualized supports, (b) financial supports, (c) coordination and communication, (d) leadership development, and (e) value and outcomes. Themes provide practical guidance to organizations as well as highlight broader systemic issues.
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