Parents’ Experience of Hope When Their Child Has Cancer: Perceived Meaning and the Influence of Health Care Professionals

Abstract

Objective. This study examined the role and importance of hopefulness for parents of children with cancer, how hope relates to parents’ experience with the diagnosis, and the influence nurses and other health care professionals have on parents’ hope. Method. Using an interview format, 50 parents of children diagnosed with cancer were given the Reaction to Diagnosis Interview, and asked 5 open-ended questions about hope. Answers were analyzed using content analysis. Parents’ adaptation to their child’s diagnosis was compared with answers to the hope questions. Results. Parents defined hope as a knowing, belief, or wish regarding their child’s health. They emphasized the importance of hope over the course of their child’s treatment. Staff increased parents’ hope by providing care to children and families, educating parents, and by connecting with and providing a positive outlook for families. Most parents felt there was nothing staff did to decrease their hope. Conclusion. Understanding parents’ experiences validates the quality care and connections we make with children and families, and encourages us to consider the effects of our interactions. This underscores the importance of education and support as a means of instilling hope in parents, who are valued, critical members of their child’s health care team.