“Stories Take Your Role Away From You”: Understanding the Impact on Health Care Professionals of Viewing Digital Stories of Pediatric and Adolescent/Young Adult Oncology Patients
Restricted accessResearch articleFirst published online July, 2017
“Stories Take Your Role Away From You”: Understanding the Impact on Health Care Professionals of Viewing Digital Stories of Pediatric and Adolescent/Young Adult Oncology Patients
The purpose of this philosophical hermeneutic study was to understand the effects on health care providers (HCPs) of watching digital stories made by (past and present) pediatric and adolescent/young adult (AYA) oncology patients. Twelve HCPs participated in a focus group where they watched digital stories made by pediatric/AYA oncology patients and participated in a discussion related to the impact the stories had on them personally and professionally. Findings from this research revealed that HCPs found digital stories to be powerful, therapeutic, and educational tools. Health care providers described uses for digital stories ranging from education of newly diagnosed families to training of new staff. Digital stories, we conclude, can be an efficient and effective way through which to understand the patient experience, implications from which can range from more efficient patient care delivery to decision making. Recommendations for incorporating digital storytelling into healthcare delivery are offered.
AbmaT. A. (2003). Learning by telling: Storytelling workshops as an organizational learning intervention. Management Learning, 34, 221-240.
2.
AndersonK. (2009). Creating a self-narrative of strength, purpose, and possibility. In PerilloJ. (Ed.), Enhancing resilience in survivors of family violence (pp. 99-116). New York, NY: Springer.
3.
BarelloS.GraffignaG.VegniE. (2012). Patient engagement as an emerging challenge for healthcare services: Mapping the literature. Nursing Research and Practice, 2012, 1-7. doi:10.1155/2012/905934
4.
BleikerJ.KnappK. M.FramptonI. (2011). Teaching patient care to students: A blended learning approach in radiography education. Radiography, 17, 235-240. doi:10.1016/j.radi.2011.01.002
5.
Boychuk DuchscherJ. (2008). The process of becoming: The stages of new nursing graduate professional role transition. Journal of Continuing Education in Nursing, 39, 441-450.
6.
CarrP. L.GareisK. C.BarnettR. C. (2003). Characteristics and outcomes for women physicians who work reduced hours. Journal of Women’s Health, 12, 399-405. doi:10.1089/154099903765448916
ChoJ.LaschingerH. K. S.WongC. (2006). Workplace empowerment, work engagement and organizational commitment of new graduate nurses. Nursing Leadership, 19(3), 43-60. doi:10.12927/cjnl.2006.18368
9.
ChristiansenA. (2011). Storytelling and professional learning: A phenomenographic study of students’ experience of patient digital stories in nurse education. Nurse Education Today, 31, 289-293. doi:10.1016/j.nedt.2010.10.006
10.
CimiottiJ. P.AikenL. H.SloaneD. M.WuE. S. (2012). Nurse staffing, burnout, and health care-associated infection. American Journal of Infection Control, 40, 486-490. doi:10.1016/j.ajic.2012.02.029
11.
ClarkeA.HansonE. J.RossH. (2003). Seeing the person behind the patient: Enhancing the care of older people using a biographical approach. Journal of Clinical Nursing, 12, 697-706. doi:10.1046/j.1365-2702.2003.00784.x
12.
CoulterA. (2002). The autonomous patient: Ending paternalism in medical care. London, England: Nuffield Trust.
13.
DavisA. (2005). Co-authoring identity: Digital storytelling in an urban middle school. Technology, Humanities, Education, & Narrative, 1(1), 1-12.
14.
DavisA.WeinshenkerD. (2012). Digital storytelling and authoring identity. In ChingC.FoleyB. (Eds.), Technology and identity: Research on the development and exploration of selves in a digital world (pp. 47-64). Cambridge, England: Cambridge University Press.
15.
EastL.JacksonD.O’BrienL.PetersK. (2010). Storytelling: An approach that can help to develop resilience: relating personal experiences can help participants to cope with their conditions and improve research. Nurse Researcher, 17(3), 17-25.
16.
EricksonJ. I.HamiltonG. A.JonesD. E.DitomassiM. (2003). The value of collaborative governance/staff empowerment. Journal of Nursing Administration, 33, 96-104.
17.
ErranteA. (2000). But sometimes you’re not part of the story: Oral histories and ways of remembering and telling. Educational Researcher, 29, 16-27.
18.
FarleyC.WidmannS. (2001). The value of birth stories. International Journal of Childbirth Education, 16(3), 22-26.
19.
ForbatL.CaylessS.KnightingK.CornwellJ.KearneyN. (2009). Engaging patients in health care: An empirical study of the role of engagement on attitudes and action. Patient Education & Counseling, 74, 84-90. doi:10.1016/j.pec.2008.07.055
20.
FreemanE.BarkerC.PistrangN. (2008). Outcome of an online mutual support group for college students with psychological problems. CyberPsychology & Behavior, 11, 591-593. doi:10.1089/cpb.2007.0133
21.
FrenchJ. (2005). Work locus of control as a moderating influence on the quality of work life for radiation therapists. Canadian Journal of Medical Radiation Technology, 36, 12-16. doi:10.1016/S0820-5930(09)60052-9
22.
GadamerH. G. (1989). Truth and method (2nd Rev. ed.; WeinsheimerJ.MarshallD. G., Trans.). New York, NY: Continuum. (Original work published 1960)
23.
GellisZ. V. (2002). Coping with occupational stress in healthcare: a comparison of social workers and nurses. Administration in Social Work, 26(3), 37-52.
GraffignaG.VegniE.BarelloS.OlsonK.BosioC. A. (2011). Studying the social construction of cancer-related fatigue experience: The heuristic value of ethnoscience. Patient Education & Counseling, 82, 402-409. doi:10.1016/j.pec.2010.12.017
26.
HaighC.HardyP. (2011). Tell me a story: A conceptual exploration of storytelling in healthcare education. Nurse Education Today, 31, 409-411. doi:10.1016/j.nedt.2010.08.001
27.
HeilmanA. W. (1951). An investigation in measuring and improving listening ability of college freshmen. Speech Monographs, 18, 302-308.
28.
HorganA.McCarthyG.SweeneyJ. (2013). An evaluation of an online peer support forum for university students with depressive symptoms. Archives of Psychiatric Nursing, 27, 84-89. doi:10.1016/j.apnu.2012.12.005
KramarE. J. J.LewisT. B. (1951). Comparison of visual and nonvisual listening. Journal of Communication, 1(2), 16-20. doi:10.1111/j.1460-2466.1951.tb00110.x
32.
LaingC. M.MoulesN. J.EstefanA.LangM. (2017). Stories that heal: Understanding the effects of creating digital stories with pediatric and adolescent/young adult oncology patients. Journal of Pediatric Oncology Nursing, 34, 272–282.
33.
LaschingerH. K. S.LeiterM. P. (2006). The impact of nursing work environments on patient safety outcomes: The mediating role of burnout/engagement. Journal of Nursing Administration, 36, 259-267.
McManusI. C.WinderB. C.GordonD. (2002). The causal links between stress and burnout in a longitudinal study of UK doctors. Lancet, 359, 2089-2090.
36.
MillenderE. (2011). Using stories to bridge cultural disparities, one culture at a time. Journal of Continuing Education in Nursing, 42, 37-42. doi:10.3928/00220124-20100901-01
37.
MockfordC.StaniszewskaS.GriffithsF.Herron-MarxS. (2011). The impact of patient and public involvement on UK NHS health care: A systematic review. International Journal for Quality in Health Care, 24, 1-11. doi:10.1093/intqhc/mzr066
38.
MoonJ.FowlerJ. (2008). There is a story to be told: A framework for the conception for story in higher education and professional development. Nurse Education Today, 28, 232-239. doi:10.1016/j.nedt.2007.05.001
39.
MoulesN. J. (2002). Hermeneutic inquiry: Paying heed to history and Hermes – An ancestral,substantive, and methodological tale. International Journal of Qualitative Methods1(3), Article 1. Retrieved from http://www.ualberta.ca/~ijqm/
40.
MoulesN. J.EstefanA.McCaffreyG.TappD. M.StrotherD. (2016). Differences and trading: Examining the effects of childhood cancer on the parental subsystem – Part 1. Journal of Family Nursing. Advance online publication. doi: 10.1177/1074840716668102
41.
MoulesN. J.JardineD. W.McCaffreyG.BrownC. (2013). “Isn’t all oncology hermeneutic?”Journal of Applied Hermeneutics, Article3. Retrieved from http://hdl.handle.net/l0515/sy5w95l41
42.
MoulesN. J.LaingC. M.McCaffreyG.TappD. M.StrotherD. (2012). Grandparents’ experiences of childhood cancer, Part one: Doubled and silenced. Journal of Pediatric Oncology Nursing, 29(3), 119-132. doi: 10.1177/1043454212439626
43.
MoulesN. J.McCaffreyG.FieldJ.Laing.C. M. (2015). Conducting hermeneutic research: From philosophy to practice. New York. NY: Peter Lang.
44.
MoulesN. J.McCaffreyG.LaingC. M.TappD. M.StrotherD. (2012). Grandparents’ experiences of childhood cancer, part two: The need for support. Journal of Pediatric Oncology Nursing, 29(3), 133-141. doi: 10.1177/1043454212439627
PainterJ.AkroydD.ElliotS.AdamsR. D. (2003). Burnout among occupational therapists. Occupational Therapy in Health Care, 17, 63-78. doi:10.1080/J003v17n01_06
47.
ParkK.WilsonM. G.LeeM. S. (2004). Effects of social support at work on depression and organizational productivity. American Journal of Health Behavior, 28, 444-455.
48.
QuaidD.ThaoJ.DenhamC. R. (2010). Story power: The secret weapon. Journal of Patient Safety, 6, 5-14. doi:10.1097/PTS.0b013e3181d23231
49.
SandelowskiM. (1986). The problem of rigor in qualitative research. Advances in Nursing Science, 8(3), 27-37.
50.
SandelowskiM. (2004). Using qualitative research. Qualitative Health Research, 14, 1366-1386. doi:10.1177/1049732304269672
51.
SchwartzM.AbbottA. (2007). Storytelling: A clinical application for undergraduate nursing students. Nursing Education in Practice, 7, 181-186. doi:10.1016/j.nepr.2006.06.005
52.
SieboldS. (Producer), & LangM. (Director). (2016). Professional practice in action: A single story [Video]. Edmonton, Alberta, Canada: Alberta Health Services.
53.
SinclairS.McClementS.Raffin-BouchalS.HackT. F.HagenN. A.McConnellS.ChochinovH. M. (2016). Compassion in health care: An empirical model. Journal of Pain and Symptom Management, 51, 193-203.
54.
StaceyG.HardyP. (2011). Challenging the shock of reality through digital storytelling. Nurse Education in Practice, 11, 159-164. doi:10.1016/j.nepr.2010.08.003
WeinbergA.CreedF. (2000). Stress and psychiatric disorder in healthcare professionals and hospital staff. Lancet, 355, 533-537.
58.
WerleG. D. (2004). The lived experience of violence: Using storytelling as a teaching tool with middle school students. Journal of School Nursing, 20, 81-87. doi:10.1177/10598405040200020501
59.
WhiteM.EpstonD. (1990). Narrative means to therapeutic ends. New York, NY: W. W. Norton.
60.
WilsonD. K.HutsonS. P.WyattT. H. (2015). Exploring the role of digital storytelling in pediatric oncology patients’ perspectives regarding diagnosis: A literature review. SAGE Open, 5, 1-10. doi:10.1177/2158244015572099
61.
WoodruffS. I.EdwardsC. C.ConwayT. L.ElliottS. P. (2001). Pilot test of an Internet virtual world chat room for rural teen smokers. Journal of Adolescent Health, 29, 239-243.
