“It’s not Just Camp!”

Abstract

The purpose of this philosophical hermeneutic inquiry was to understand the meaning of children’s cancer camps for the child with cancer and the family. Six childhood cancer families and 5 cancer camp counselors were interviewed, in order to bring understanding to this topic. Findings from this research revealed that camp means different things for different families, and that much is at play in the cancer camp experience: the healing and developmental power of play, finding acceptance and fit, grief as something to live with versus “get over,” storytelling as a means of reshaping and understanding traumatic experiences, and the solidarity of the community as one that creates intense, healing bonds. Children’s cancer camps, we conclude, should be considered a necessity, versus a luxury, and could even be thought of as a psychosocial intervention for some children and families. Barriers such as structure of funding and access to resources are present and likely due to the separateness of camps from hospital programs.

Keywords

cancer camps hermeneutics play acceptance

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References

Abma

T. A.

(2005). Struggling with the fragility of life: A relational-narrative approach to ethics in palliative nursing. Nursing Ethics, 12, 337-348. doi:10.1191 /0969733005-ne799oa

Alberta Health Services. (2009). Strategic direction 2009-2012: Defining our focus, measuring our progress. Retrieved from http://www.assembly.ab.ca/lao/library/egovdocs/2009/alahs/172555.pdf

Atkinson

(2002). The life story interview. In Gubrium

J. F.

Holstein

J. A.

(Eds.), Handbook of interview research: Context and method (pp. 121-140). Thousand Oaks, CA: Sage.

Bell

(1992). Ritual theory, ritual practice. New York, NY: Oxford University Press.

Benner

(1994). Interpretive phenomenology: Embodiment, caring, and ethics in health and illness. Thousand Oaks, CA: Sage.

Benner

(2000). The wisdom of our practice. American Journal of Nursing, 100(10), 99-105.

Benson

P. J.

(1987). The relationship between self-concept and a summer camping program for children and adolescents who have cancer. Journal of Pediatric Oncology Nursing, 4(1-2), 42-43. doi:10.1177/10434542-8700400116

Binding

L. L.

Tapp

D. M.

(2008). Human understanding in dialogue: Gadamer’s recovery of the genuine. Nursing Philosophy, 9, 121-130. doi:10.1111/j.1466-769X.2007.00338.x

Bjorkland

D. F.

Pellegrini

A. D.

(2000). Child development and evolutionary psychology. Child Development, 71, 1687-1708. doi:10.1111/1467-8624.00258

10.

Bluebond-Langner

Perkel

Goertzel

Nelson

McGeary

(1990). Children’s knowledge of cancer and its treatment: Impact of an oncology camp experience. Journal of Pediatrics, 116, 207-213. doi:10.1016/S0022-3476(05)82876-8

11.

Bluebond-Langner

Perkel

Goertzel

Nelson

McGeary

(1991). Pediatric cancer patients’ peer relationships: The impact of an oncology camp experience. Journal of Psychosocial Oncology, 9, 67-80. doi:10.1300/ J077v09n02_05

12.

Bosticco

Thompson

T. L.

(2005). Narratives and storytelling in coping with grief and bereavement. Omega: Journal of Death and Dying, 51(1), 1-16. Retrieved from http://baywood.com/journals/previewjournals.asp?id=0030-2228

13.

Bowles

(1995). Storytelling: A search for meaning within nursing practice. Nurse Education Today, 15, 365-369. doi:10.1016/S0260-6917

14.

Brown

(2009). Play: How it shapes the brain, opens the imagination, and invigorates the soul. New York, NY: Penguin.

15.

Canadian Association of Pediatric Oncology Camps. (2012). What is CAPOC? Retrieved from http://www.cancercamps.ca/?q=node/34

16.

Carpenter

P. J.

Sahler

O. J. Z.

Davis

M. S.

(1990). Use of a camp setting to provide medical information to siblings of pediatric cancer patients. Journal of Cancer Education, 5(1), 21-26. doi:10.1080/08858199009528030

17.

Chesla

C. A.

(1995). Hermeneutic phenomenology: An approach to understanding families. Journal of Family Nursing, 1, 68-78. doi:10.1177/107484079500100105

18.

Children’s Oncology Group. (2014). Late effects for treatment of children’s cancer. Retrieved from http://www.childrensoncologygroup.org/index.php/lateeffectsoftreatment

19.

Davis-Berman

Berman

D. S.

(1989). The wilderness therapy program: An empirical study of its effects with adolescents in an outpatient setting. Journal of Contemporary Psychotherapy, 19, 271-281. doi:10.1007/BF00946092

20.

Fisher

E. P.

(1992). The impact of play on development: A meta-analysis. Play & Culture, 5, 159-181.

21.

Gadamer

H. G.

(1976). Philosophical hermeneutics ( Linge

D. E.

, Ed., & Trans.). Berkeley: University of California Press.

22.

Gadamer

H. G.

(1989). Truth and method ( Weinsheimer

Marshall

D. G.

, Trans.; 2nd rev. ed.). New York, NY: Continuum. (Original work published 1960)

23.

Gadamer

H. G.

(1996). The enigma of health. Stanford, CA: Stanford University Press.

24.

Gelfert

(2006). Kant on testimony. British Journal for the History of Philosophy, 14, 627-652. Retrieved from http://www.gelfert.net/People/Axel/axel.html

25.

Goodall

(1986). The chimpanzees of Gombe. Cambridge, MA: Belknap Press of Harvard University Press.

26.

Gordon

N. S.

Burke

Akil

Watson

S. J.

Panskepp

(2003). Socially-induced brain “fertilization”: Play promotes brain derived neurotrophic factor transcription in the amygdala and dorsolateral frontal cortex in juvenile rats. Neuroscience Letters, 341(1), 17-20. doi:10.1016/S0304-3940(03)00158-7

27.

Government of Alberta. (2010). Alberta’s health research and innovation strategy. Retrieved from http://www.advancededucation.gov.ab.ca/media/277640/ahris_report_aug2010_web.pdf

28.

Greenough

W. T.

Black

J. E.

(1992). Induction of brain structure by experience: Substrates for cognitive development. In Gunnar

M. R.

Nelson

C. A.

(Eds.), Minnesota symposia on child psychology: Developmental neuroscience (pp. 155-200). Hillside, NJ: Lawrence Erlbaum.

29.

Grondin

(1994). Introduction to philosophical hermeneutics ( Weinsheimer

, Trans.). New Haven, CT: Yale University Press.

30.

Grondin

(1995). Sources of hermeneutics. Albany, NY: State University of New York Press.

31.

Hattie

Marsh

Neill

Richards

(1997). Adventure education and outward bound: Out-of-class experiences that make a lasting difference. Review of Educational Research, 67(1), 43-87. Retrieved from http://www.jstor.org/stable/1170619

32.

Huber

Tonini

Cirelli

(2007). Exploratory behavior, cortical BDNF expression, and sleep homeostasis. Sleep, 30, 129-139. Retrieved from http://www.journalsleep.org/Articles/300202.pdf

33.

Kessell

Resnick

M. D.

Blum

R. W. M.

(1985). Adventure, etc.: A health promotion program for chronically ill and disabled youth. Journal of Adolescent Health Care, 6, 433-438. doi:10.1016/S0197-0070(85)80048-6

34.

Kids Cancer Care Foundation of Alberta. (2012). Camp & community. Retrieved from http://www.kidscancercare.com/camp_and_community.htm

35.

Koch

(1996). Implementation of a hermeneutic inquiry in nursing: Philosophy, rigor, and representation. Phenomenological Research, 24, 174-184. doi:10.1046/j.1365-2648.1996.17224.x

36.

Koch

(1998). Storytelling: Is it really research? Journal of Advanced Nursing, 28, 1182-1190. doi:10.1046/j.1365-2648.1998.00853.x

37.

Laing

C. M.

(2012). In play, at play. Journal of Applied Hermeneutics, Article 6. Retrieved from http://jah.synergiesprairies.ca/jah/index.php/jah/article/view/16/pdf

38.

Laing

C. M.

Moules

N. J.

(2013). The island of misfit toys. Journal of Applied Hermeneutics, Article 8. Retrieved from http://hdl.handle.net/10515/sy5js9hq4

39.

Laing

C. M.

Moules

N. J.

(2014a). Children’s cancer camps: A sense of community, a sense of family. Journal of Family Nursing, 20, 185-203. doi:10.1177/1074840-714520717

40.

Laing

C. M.

Moules

N. J.

(2014b). Stories from cancer camp: Tales of glitter and gratitude. Journal of Applied Hermeneutics, Article 3. Retrieved from http://hdl.handle.net/10515/sy5qf8k16

41.

Laing

C. M.

Moules

N. J.

(2015). Children’s cancer camps: A way to understand grief differently. Omega: Journal of Death and Dying, 70, 436-453.

42.

Landreth

(2001). Innovations in play therapy. New York, NY: Brunner-Routledge.

43.

Lewis

Boucher

Lupton

Watson

(2000). Relationships between symbolic play, functional play, verbal and non-verbal ability in young children. International Journal of Language & Communication Disorders, 35, 117-127. doi:10.1080/ 136828200247287

44.

McMahon

(2003). The handbook of play therapy. London, England: Routledge.

45.

Mishna

Michalski

Cummings

(2002). Camps as social work interventions: Returning to our roots. Social Work With Groups, 24, 153-171. doi:10.1300/J009v-24n03_11

46.

Mooney

Holt

(1996). The storyteller’s guide. Little Rock, AR: August House.

47.

Morse

J. M.

Field

P. A.

(1995). Qualitative research methods for health professionals (2nd ed.). Thousand Oaks, CA: Sage.

48.

Moules

N. J.

(2002). Hermeneutic inquiry: Paying heed to history and Hermes: An ancestral, substantive, and methodological tale. International Journal of Qualitative Methods, 1(3), Article 1. Retrieved from http://www.ualberta.ca/~ijqm/

49.

Moules

N. J.

Laing

C. M.

McCaffrey

Tapp

D. M.

Strother

(2012). Grandparents’ experiences of childhood cancer: Part 1. Doubled and silenced. Journal of Pediatric Oncology Nursing, 29, 119-132. doi:10.1177/1043454212439626

50.

Moules

N. J.

McCaffrey

Field

Laing

C. M.

(2015). Conducting hermeneutic research: From philosophy to practice. New York, NY: Peter Lang.

51.

Murray

J. S.

(2001). Self-concept of siblings of children with cancer. Issues in Comprehensive Pediatric Nursing, 24, 85-94. doi:10.1080/01460860116709

52.

Packman

Mazaheri

Sporri

Long

J. K.

Chesterman

Fine

Amylon

M. D.

(2008). Projective drawings as measures of psychosocial functioning in siblings of pediatric cancer patients from the camp Okizu study. Journal of Pediatric Oncology Nursing, 25(1), 44-55. doi:10.1177/1043454207311915

53.

Pellegrini

A. D.

Holmes

R. M.

(2006). The role of recess in primary school. In Singer

Golinkoff

Hirsh-Pasek

(Eds.), Play = learning: How play motivates and enhances children’s cognitive and socio-emotional growth (pp. 36-53). New York, NY: Oxford University Press.

54.

Pepler

D. J.

Ross

H. S.

(1981). The effects of play on convergent and divergent problem solving. Child Development, 52, 1202-1210. Retrieved from http://www.jstor.org/stable/1129507

55.

Perry

B. D.

Hogan

Marlin

S. J.

(2000). Curiosity, pleasure and play: A neuro-developmental perspective. Haaeyc Advocate. Retrieved from www.childtrauma.org

56.

Piaget

(1962). Play, dreams and imitation in childhood. New York, NY: Routledge.

57.

Silverman

P. R.

Klass

(1996). Introduction: What’s the problem? In Klass

Silverman

P. R.

Nickman

S. L.

(Eds.), Continuing bonds: New understandings of grief (pp. 3-27). Philadelphia, PA: Taylor & Francis.

58.

Smits

(1997). Living within the space of practice: Action research inspired by hermeneutics. In Carson

T. R.

Sumara

(Eds.), Action research as a living practice (pp. 281-297). New York, NY: Peter Lang.

59.

Stevenson

H. W.

Lee

S. Y.

(1990). Contexts of achievement: A study of American, Chinese, and Japanese children. Monographs of the Society for Research in Child Development, 55(1-2), 1-123. Retrieved from http://www.jstor.org/stable/1166090

60.

Summers-Effler

(2006). Ritual theory. In Stets

J. E.

Turner

J. H.

(Eds.), The handbook of the sociology of emotions (pp. 135-154). New York, NY: Springer.

61.

Walker

D. A.

Pearman

(2009). Therapeutic recreation camps: An effective intervention for children and young people with chronic illness? Archives of Disease in Childhood, 94, 395-402. doi:10.1136/adc.2008.145631

62.

Welch

M. J.

Carlson

A. M.

Larson

Fena

(2007). Clinical profile, health-related quality of life, and asthma control in children attending US asthma camps. Annals of Allergy, Asthma & Immunology, 99, 496-501. doi:10.1016/S1081-1206(10)60377-8

63.

Wellisch

D. K.

Crater

Wiley

F. M.

Belin

T. R.

Weinstein

(2006). Psychosocial impacts of a camping experience for children with cancer and their siblings. Psycho-Oncology, 15, 56-65. doi:10.1002/pon.922

64.

Widdershoven

(1993). The story of life: Hermeneutic perspectives on the relationship between narrative and life history. In Lieblich

Josselson

(Eds.), The narrative study of lives (pp. 1-20). Thousand Oaks, CA: Sage.

65.

Wolfgang

C. H.

Stannard

L. L.

Jones

(2001). Block play performance among preschoolers as a predictor of later school achievement in mathematics. Journal of Research in Childhood Education, 15, 173-180. doi:10.1080/0256854010959 4958

66.

Wyver

S. R.

Spence

S. H.

(1999). Play and divergent problem solving: Evidence supporting a reciprocal relationship. Early Education and Development, 10, 419-444. doi:10.1207/s15566935eed1004_1