Creating a Palliative and End-of-Life Program in a Cure-Oriented Pediatric Setting: The Zig-Zag Method

American Academy of Pediatrics. (2000). Committee on Bioethics and Committee on Hospital Care . Palliative care for children. Pediatrics, 106, 351-357 .

Arias, E. , MacDorman, M.F. , Strobino, D.M. , & Guyer, B. (2003). Annual summary of vital statistics——2002 . Pediatrics, 112, 1215-1230 .

Bradshaw, G. , Hinds, P.S. , Lensing, S. , Gatusso, J.S. , & Razzouk, B.I. (2005). Cancer-related deaths in children and adolescents. Journal of Palliative Medicine, 8, 86-95 .

Field, M. J. , Behrman, R. E. (Eds.), for the Institute of Medicine Committee on Palliative and End-of-Life Care for Children and Their Families. (2003). When children die: Improving palliative and end-of-life care for children and their families. Washington, DC: National Academies Press .

Hinds, P.S. , Oakes, L. , Furman, W. , Foppiano, P. , Olson, M.S. , Quargnenti, A. , et al. (1997). Decision making by patients and healthcare professionals when considering continued care for pediatric patients with cancer . Oncology Nursing Forum, 24, 1523-1528 .

Hinds, P.S. , Oakes, L. , Furman, W. , Quargnenti, A. , Olson, M.S. , Foppiano, P. , et al. (2001). End-of-life decision making by adolescents, parents, and healthcare providers in pediatric oncology: Research to evidence-based practice guidelines . Cancer Nursing, 24, 122-134 .

Hinds, P.S. , Oakes, L. , Quargnenti, A. , Furman, W. , Bowman, L. , Gilger, E. , et al. (2000). An international feasibility study of parental decision making in pediatric oncology . Oncology Nursing Forum , 27, 1233-1243 .

National Consensus Project for Quality Palliative Care. (2004). Clinical practice guidelines for quality palliative care. Brooklyn, NY: National Consensus Project .

National Institutes of Health. (2004). State-of-the-science conference statement . Improving end-of-life care. December 6-8, 2004; final statement, February 18, 2005. Retrieved from http://consensus.nih.gov/PREVIOUSSTATEMENTS.htm#endOfLifeCare

Wolfe, J. , Grier, H.E. , Klar, N. , Levin, S.B. , Ellenbogen, J.M. , Salem-Schatz, S. , et al. (2000). Symptoms and suffering at the end of life in children with cancer . New England Journal of Medicine, 342, 326-333 .

World Health Organization. (1998). Reducing mortality from major killers of children: Fact sheet no. 178. Geneva , Switzerland: Author .