A child with osteogenic sarcoma of the sacral spine has complex nursing and interdisciplinary team needs. The course of one patient is discussed, both from the patient and family’s perspective and that of her inter-disciplinary care team. The need for a coordinated, holistic approach to care that involves advance planning, continual reassessment of goals, and clear communication among the team members and consulting services is clearly demonstrated.
Arndt, C. A. S. (2004). Neoplasms of bone. In R. E. Behrman, R. M. Kliegman, & H. B. Jenson (Eds.), Nelson textbook of pediatrics (17th ed., pp. 1714-1717). Philadelphia: W. B. Saunders
2.
Atkins, M. S. (2002). Spinal cord injury. In C. A. Trombly & M. V. Radomski (Eds.), Occupational therapy for physical dysfunction (5th ed., pp. 965-999). Philadelphia: Lippincott, Williams & Wilkins.
3.
Clarke, J. N., & Fletcher, P. (2003). Communication issues faced by parents who have a child diagnosed with cancer. Journal of Pediatric Oncology Nursing, 20, 175-191.
4.
Gore, L., Greffe, B. S., Rothenberg, S. S., Erickson, M., Schrieber, D. P., & Handler, M. H. (2003). Long-term survival after intralesional resection and multi-modal therapy of thoracic spine osteosarcoma. Medical and Pediatric Oncology, 40, 400-402.
5.
Gravely, S. (2001). When your patient speaks Spanish—And you don’t. RN, 64, 65-67.
6.
Hicks, M. D., & Lavender, R. (2001). Psychosocial practice trends in pediatric oncology. Journal of Pediatric Oncology Nursing, 18, 143-153.
7.
Keene, N., Hobbie, W., & Ruccione, K. (2000). Childhood cancer survivors: A practical guide to your future (pp. 5-17). Sebastopol, CA: O’Reilly and Associates.
8.
Link, M. P., Gebhardt, M. C., & Meyers, P. A. (2002). Osteosarcoma. In P. A. Pizzo & D. G. Poplack (Eds.), Principles and practice of pediatric oncology (4th ed., pp. 1051-1089). Philadelphia: Lippincott, Williams & Wilkins.
9.
Miller, L. V. (2000). Spinal cord injury. In R. A. Hansen & B. Atchison (Eds.), Conditions in occupational therapy (2nd ed., pp. 176-204). Philadelphia: Lippincott, Williams & Wilkins.
10.
Rehm, R. S. (2000). Parental encouragement, protection, and advocacy for Mexican-American children with chronic conditions. Journal of Pediatric Nursing, 15, 89-98.
11.
Sawin, K. J., Cox, A. W., & Metzger, S. G. (2002). Transitions to adulthood. In D. G. Jackson & J. A. Vessey, (Eds.), Primary care of the child with a chronic condition (3rd ed., pp. 140-161). St. Louis, MO: Mosby.
12.
Spiegel, D. A., Richardson, W. J., Scully, S. P., & Harrelson, J. M. (1999). Long-term survival following total sacrectomy with reconstruction for the treatment of primary osteosarcoma of the sacrum: A case report. Journal of Bone and Joint Surgery, 81, 848-855.
13.
Wuisman, P., Lieshout, O., Sugihara, S., & van Dijk, M. (2000). Total sacrectomy and reconstruction: Oncologic and functional outcome. Clinical Orthopaedics and Related Research, December, 192-203.
