The paths taken by each family in coming to terms with the dismal prognosis associated with brain stem glioma can be quite different. The case studies of 2 school-age girls diagnosed with a brain stem glioma within weeks of each other are presented. The multi-disciplinary team response to each family was individualized at each stage of diagnosis, treatment, and end-of-life care, as expected. The ultimate chronologic union of these 2 families as each child neared death was somewhat uncanny. The experience of each family, and their relationship with the team through this process, was an intense challenge and learning experience.
Broniscer, A., & Gajjar, A. (2004). Supratentorial high-grade astrocytoma and diffuse brainstem glioma: Two challenges for the pediatric oncologist. Oncologist, 9, 197-206.
2.
Guillamo, J. S., Creange, A., Kalifa, C., Grill, J., Rodriguez, D., Doz, F., et al. (2003). Prognostic factors of CNS tumors in neurofibromatosis 1 (NF1): A retrospective study of 104 patients. Brain, 126, 152-160.
3.
Jallo, G. I., Biser-Rohrbaugh, A., & Freed, D. (2004). Brainstem glioma. Child’s Nervous System, 20, 143-153.
4.
Shiminski-Maher, T. (1995). Seven weeks. Journal of Pediatric Oncology Nursing, 12, 233.
