Intellectual disability is one of the least researched areas in social science inquiry. This paper traces the complex interplay between the concepts of intellectual disability, gender and personhood. It outlines the socio-historical and cross-cultural variability of intellectual disability, and its connections with class, urbanisation and modernisation. Based on ethnographic material on the disabled in Delhi and the neighbouring state of Haryana, it presents case studies of two NGOs working with the intellectually disabled, namely, Arpan, a school for the mentally retarded in Rohtak, Haryana, and Action for Autism in New Delhi. It engages specifically with the notion of masculinity and the manner in which intellectually disabled male adults are feminised and infantilised. An attempt is made to understand how disabled individuals and their families seek social spaces for themselves and negotiate the social compulsions for ‘normalcy’ and competent adulthood.
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References
1.
Armstrong, D.2003. Experiences of Special Education.
New York: Routledge and Kegan Paul
.
2.
Asch, A.
and
M. Fine
(eds). 1988. Women with Disabilities: Essays in Psychology, Culture and Politics.
Philadelphia: Temple University Press
.
3.
Asperger, Hans
. 1944/1991. ‘Autistic Psychopathy in Childhood’ (translated by
Uta Frith
), in
Uta Frith
(ed.), Autism and Asperger's Syndrome, pp. 337–92.
Cambridge: Cambridge University Press
.
4.
Baron-Cohen, S.1997. Mindblindness: An Essay on Autism and Theory of Mind.
Massachusetts: MIT Press
.
5.
Chowdhry, P.2005. ‘
Crisis of Masculinity in Haryana: The Unmarried, the Unemployed and the Aged
’, Economic and Political Weekly, 40(49):
5189–98
.
6.
Dalal, A.K.
,
N. Pande
,
N. Dhawan
and
D.D. Wijendra
. 2000. The Mind Matters: Disability Attitudes and Community-Based Rehabilitations.
Allahabad: University of Allahabad Publications
.
7.
Daley, T.2004. ‘
From Symptom Recognition to Diagnosis: Children with Autism in Urban India
’, Social Science and Medicine, 58(7):
1323–35
.
8.
Das, V.
and
R. Addlakha
. 2001. ‘
Disability and Domestic Citizenship: Voice, Gender, and the Making of the Subject
’, Public Culture, 13(3):
511–31
.
9.
Devlieger, P.J.1998. Incompetence in America in Comparative Perspective’, in
R. Jenkins
(ed.), Questions of Competence: Culture, Classification and Intellectual Disability, pp. 54–75,
Cambridge: Cambridge University Press
.
10.
Dube, S.C.1990. Tradition and Development.
New Delhi: Vikas Publishing House
.
11.
Edgerton, R.B.1967. The Cloak of Competence: Stigma in the Lives of the Mentally Retarded.
Berkeley: University of California Press
.
12.
Foucault, M.1967. Madness and Civilization: A History of Insanity in the Age of Reason.
Cambridge: Cambridge University Press
.
13.
Gilmore, D. D.2001. ‘The Manhood Puzzle’, in
C.B. Brettel
and
C.F. Sargent
(eds), Gender in Cross-cultural Perspective, pp. 207–20.
Englewood Cliffs, NJ: Prentice-Hall
.
14.
Goffman, E.1961Asylums: Notes on the Social Situation of Mental Patients and Other Inmates.
Chicago: Aldine Publishing Company
.
15.
Goffman, E.1963. Stigma: Notes on the Management of Spoiled Identity.
Englewood Cliffs, NJ: Prentice-Hall
.
16.
Ingstad, B.1995. ‘Public Discourses on Rehabilitation’, in
B. Ingstad
and
S.R. Whyte
(eds.), Disability and Culture, pp. 174–95.
Berkeley: University of California Press
.
17.
Ingstad, B.
and
S.R. Whyte
(eds.). 1995. Disability and Culture.
Berkeley: University of California Press
.
18.
Jenkins, R.1998. ‘Culture, Classification and Competence’, in
R. Jenkins
(ed.), Questions of Competence: Culture, Classification and Intellectual Disability, pp. 1–24.
Cambridge: Cambridge University Press
.
19.
Jordan, R.1997. Teaching Language and Communication.
London: The National Autistic Society, the Inge Wakehurst Memorial Fund Collection of Papers from Study Weekends
.
20.
Judge, C.1987. Civilisation and Mental Retardation: A History of the Care and Treatment of Intellectually Disabled People.
Mulgrave, Australia: Magenta Press
.
21.
Kanner, Leo
. 1943. ‘
Autistic Disturbances of Affective Contact
’, Nervous Child, 2(1):
217–50
.
22.
Kleinman, A.1980. Patients and Healers in the Context of Culture: An Exploration of the Borderland between Anthropology, Medicine, and Psychiatry.
Berkeley: University of California Press
.
23.
Klotz, J.2003. ‘
The Culture Concept: Anthropology, Disability Studies and Intellectual Disability
’. Paper presented at the Symposium on Disability at the Cutting Edge: A Colloquium to Examine the Impact on Theory, Research and Professional Practice, University of Technology, Disability Studies and Research Institute (DSARI), Sydney, 12 September.
24.
Lang, R. 2000. ‘Perceiving Disability and Practising Community-based Rehabilitation: A Critical Examination with Case Studies from South India’. Unpublished Ph.D. dissertation: University of East Anglia, Norwich, UK.
25.
Leicester, M.1999. Disability Voice: Towards an Enabling Education.
London: Jessica Kingsley Publishers
.
26.
Lin, Tsung-Yi
and
Mei-chen Lin
. 1980. ‘Love, Denial and Rejection: Responses of Chinese Families to Mental Illness’, in
A. Kleinman
and
T.Y. Lin
(eds), Normal and Abnormal Behaviour in Chinese Culture, pp. 391–401.
New York: D. Reidel Publishing Company
.
27.
Mehrotra, N.2004a. ‘
Understanding Cultural Conceptions of Disability in Rural India: A Case from Haryana
’, Journal of Indian Anthropological Society, 39(1):
33–45
.
28.
Mehrotra, N.2004b. ‘
Women, Disability and Social Support in Rural Haryana
’, Economic and Political Weekly, 39(52):
5640–44
.
29.
Mehrotra, N.2006. ‘
Negotiating Gender and Disability in Rural Haryana
’, Sociological Bulletin, 55(3):
406–26
.
30.
Murphy, R.F.1987. The Body Silent: The Different Experience of the Disabled.
New York: W.W. Norton
.
31.
Nirje, B.1992. The Normalisation Principle.
Uppsala: Centre for Handicapped Research, Uppsala University
.
32.
Nuttall, M.1998. ‘States and Categories: Indigenous Models of Personhood in Northwest Greenland’, in
R. Jenkins
(ed.), Questions of Competence: Culture, Classification and Intellectual Disability, pp. 176–93.
Cambridge: Cambridge University Press
.
33.
Oliver, M.1990. The Politics of Disablement: A Sociological Approach.
London: Macmillan
.
34.
Parmenter, T.R.2001. ‘Intellectual Disabilities: Quo Vadis’, in
G.L. Albrecht
,
K.D. Seelman
and
M. Bury
(eds.), Handbook of Disability Studies, pp. 267–96.
Thousand Oaks, CA: Sage Publications
.
35.
Scheff, T. J.1966. On Being Mentally Ill: A Sociological Theory.
Chicago: Aldine Publishing Company
.
36.
Shakespeare, T.1999. ‘
The Sexual Politics of Disabled Masculinity
’, Sexuality and Disability, 17(1):
53–64
.
37.
Stiker, H.J.2000. History of Disability (translated by
William Sayers
).
Ann Arbor: University of Michigan Press
.
38.
Thomas, G.
and
A. Loxley
. 2001. Deconstructing Special Education and Constructing Inclusion.
Buckingham and Philadelphia: Open University Press
.
39.
Thomas, M.
and
M.J. Thomas
. 2002. ‘Status of Women with Disabilities in South Asia’, in
M.J. Thomas
and
M. Thomas
(eds.), Disability and Rehabilitation Issues in South Asia: Selected Readings in Community-Based Rehabilitation, Asia Pacific Disability Rehabilitation Journal (special issue), series 2, http://www.aifo.it/english/resources/online/apdrj/selread102/thomas.doc, accessed 20 October 2007.
40.
Tomlinson, S.1982. A Sociology of Special Education.
London: Routledge and Kegan Paul
.
41.
Trent, J.W.1994. Inventing the Feeble Mind: A History of Mental Retardation in the United States.
Berkeley: University of California Press
.
42.
Van Gennep, C.A.1909/1960. Les Rites de Passage.
New York: University of Columbia
.
43.
West, C.
and
D.H. Zimmerman
. 2000. ‘Doing Gender’, in
M.S. Kimmel
(ed.), The Gender Society Reader, pp. 131–49.
Oxford: Oxford University Press
.
44.
Whyte, S.R.1998. ‘Slow Cookers and Madmen: Competence of Heart and Head in Rural Uganda’, in
R. Jenkins
(ed.), Questions of Competence: Culture, Classification and Intellectual Disability, pp. 153–75.
Cambridge: Cambridge University Press
.
45.
Wolfensberger, W.1972. The Principle of Normalisation in Human Services.
Toronto: National Institute on Mental Retardation
.
46.
World Health Organization (WHO). 2002. The International Classification of Functioning Disability and Health.
Geneva: WHO Press
.
