Social media analysis of Meniere’s disease: Insights and challenges for otolaryngologists

Abstract

Introduction

The advent and growth of social media platforms have dramatically altered the landscape of health information sharing, particularly for conditions like Meniere’s disease. This study delves into the nature and impact of shared experiences and peer support concerning Meniere’s disease on social media, underscoring the critical need for analyzing this content for its influence and accuracy. This study aims to analyze the portrayal of Meniere’s disease across social media platforms, focusing on content accuracy and misinformation, to provide vestibular care professionals with insights for improving patient education and fostering more effective patient engagement.

Materials and methods

Employing a comprehensive qualitative approach, our study scrutinized 1108 social media posts about Meniere’s disease from Facebook, Instagram, and TikTok—over 3 months. Analysis included authorship identification, examination of the subject matter, tone assessment, and evaluation of post popularity and engagement metrics.

Results and analysis

A significant portion of the analyzed posts were predominantly image-driven, with a majority authored by patients or their family members. Instagram was the most utilized for Meniere’s disease discussions, followed by Facebook and then TikTok. The content analysis revealed that personal experiences comprised 40% of the posts, followed by informational posts, and queries or advice-seeking posts. Sentiment analysis showcased a diverse range of emotions: 45% of posts displayed a positive tone, 35% were neutral, and 20% expressed negative sentiments.

Discussion

The findings from this study highlight a significant demand for accurate and authoritative educational resources on social media regarding Meniere’s disease. They offer vestibular care providers, including otolaryngologists, audiologists, physical therapists, speech-language pathologists, and others valuable insights into improving patient-centered care by developing and implementing effective communication strategies. Emphasizing patient empowerment, these strategies should cater to a patient population that is increasingly turning to social media for health-related information. The study also points to the necessity of addressing misinformation and guiding patients towards reliable sources of medical information online.