Although heart transplantation has become recognized as a viable option for the treatment of incorrectable heart disease in infants and children, its application becomes less clear in infants with potentially serious neurologic impairment. The following case study illustrates one transplant team's approach to decision making in the case of an infant born with a chromosomal deletion syndrome.
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References
1.
OkamotoNWadaYNakamuraU. Hereditary spherocytic anemia with deletion of the short arm of chromosome 8. Am J Med Genet.1995;58:225–229.
2.
TsukaharaMMuranoIAokiYKajiiTFurukawaS.Interstitial deletion of 8p: Report of two patients and review of the literature. Clin Genet.1995;48(1):41–45.
3.
KilnerJF. Who lives? Who dies? Ethical Criteria in Patient Selection.New Haven, Conn: Yale University Press; 1990.
4.
ChurchillLR. Which infants should live? On the usefulness and limitations of Robert Weir's selective nontreatment of handicapped newborns. Sol Sci Med.1985;20:1097–1102.
5.
WhiteheadAT. Rejecting organs: The organ allocation process and the Americans with Disabilities Act. Am J Law Med.1998;XXIV:481–497.
6.
VeatchRM. The Foundation of Justice: Why the Retarded and the Rest of Us Have Claims to Equality.New York, NY: Oxford University Press; 1986.
7.
SmithGFDiamondELejeuneJ. The right of infants with Down's Syndrome. JAMA.1984;251:229.
8.
HutchinsonRWilsonMVoullaireL.Distal 8p deletion (8p23.1—-8pter): A common deletion?J Med Genet.1992;29:407–411.
9.
LevensonJLOlbrischME. Psychosocial evaluation of organ transplant candidates. Psychosomatics.1993;34:314–323.