Objective: This study was conducted to describe care arrangements for persons with dementia (PwDs) who are living at home with the support of a dementia care network (DCN). Method: Data on the utilization of formal and informal support were collected in face-to-face interviews at baseline and 1-year follow-up with PwDs and caregivers receiving support from 1 of 13 DCNs. Results: Men with dementia were supported by twice as many informal caregivers as women (2 vs. 1, respectively, p < .001). Regional differences were found in home-care nursing services, social care groups, companion home services, and day care. The care situations were considered stable by most caregivers. Discussion: DCNs appear to contribute to a high degree of perceived stability in care situations. Future research should investigate possible gender differences in informal support networks. DCNs should continue their efforts in making low-threshold services in rural areas available and accessible.
BakkerC.de VugtM. E.van VlietD.VerheyF. R.PijnenburgY. A.Vernooij-DassenM. J.KoopmansR. T. (2013). The use of formal and informal care in early onset dementia: Results from the NeedYD study. American Journal of Geriatric Psychiatry, 21, 37-45. doi:10.1016/j.jagp.2012.10.004
3.
BanerjeeS.WillisR.MatthewsD.ContellF.ChanJ.MurrayJ. (2007). Improving the quality of care for mild to moderate dementia: An evaluation of the Croydon Memory Service Model. International Journal of Geriatric Psychiatry, 22, 782-788. doi:10.1002/gps.1741
4.
BassD. M.JudgeK. S.SnowA. L.WilsonN. L.MorganR. O.MaslowK.. . . KunikM. E. (2014). A controlled trial of Partners in Dementia Care: Veteran outcomes after six and twelve months. Alzheimer’s Research & Therapy, 6, Article 9. doi:10.1186/alzrt242
BrodatyH.DonkinM. (2009). Family caregivers of people with dementia. Dialogues in Clinical Neuroscience, 11, 217-228.
7.
BrodatyH.GreenA.KoscheraA. (2003). Meta-analysis of psychosocial interventions for caregivers of people with dementia. Journal of the American Geriatrics Society, 51, 657-664. doi:10.1034/j.1600-0579.2003.00210.x
8.
BrodatyH.ThomsonC.ThompsonC.FineM. (2005). Why caregivers of people with dementia and memory loss don’t use services. International Journal of Geriatric Psychiatry, 20, 537-546. doi:10.1002/gps.1322
9.
Council of the European Union. (2008). Council conclusions on public health strategies to combat neurodegenerative diseases associated with ageing and in particular Alzheimer’s disease. In 2916th Employment, Social Policy, Health and Consumer Affairs Council meeting. Retrieved from http://www.consilium.europa.eu/ueDocs/cms_Data/docs/pressData/en/lsa/104778.pdf
10.
DorinL.KrupaE.MetzingS.BuscherA. (2015). Gender disparities in German home-care arrangements. Scandinavian Journal of Caring Sciences, 30, 164-174. doi:10.1111/scs.12236
Gallagher-ThompsonD.TzuangY. M.AuA.BrodatyH.CharlesworthG.GuptaR.. . . ShyuY.-I. (2012). International perspectives on nonpharmacological best practices for dementia family caregivers: A review. Clinical Gerontologist, 35, 316-355. doi:10.1080/07317115.2012.678190
15.
GauglerJ. E.JarrottS. E.ZaritS. H.StephensM. A.TownsendA.GreeneR. (2003). Respite for dementia caregivers: The effects of adult day service use on caregiving hours and care demands. International Psychogeriatrics, 15, 37-58. doi:10.1017/S1041610203008743
16.
GeraedtsM.HellerG. V.HarringtonC. A. (2002). Germany’s long-term-care insurance: Putting a social insurance model into practice. Milbank Quarterly, 78, 375-401. doi:10.1111/1468-0009.00178
17.
GräskeJ.MeyerS.SchmidtA.SchmidtS.Laporte UribeF.ThyrianJ. R.. . .Wolf-OstermanK. (2016). Regionale Demenznetzwerke in Deutschland—Ergebnisse der DemNet-D-Studie zur Lebensqualität der Nutzer/innen [Regional Dementia Care Networks in Germany–results from the DemNet-D-Study regarding the quality of life of their users]. Pflege—Die wissenschaftliche Zeitschrift für Pflegeberufe, 29, 93-101. doi:10.1024/1012-5302/a000xxx
18.
IBM Corporation. (2012). IBM SPSS Statistics for Windows (Version 21.0). Armonk, NY: Author.
19.
JurkR.AmanatidisE.MatthesC.SchusterM.SchützwohlM. (2010). Behandlungsbedürfnis und Inanspruchnahmeverhalten bei Demenzerkrankungen (BIADEM): Versorgungsforschung für Patienten und ihre pflegenden Angehörigen [The need for treatment and utilization in dementia (BIADEM): Health care research for patients and their family-caregivers]. Retrieved from http://www.deutschealzheimergesellschaft.info/fileadmin/alz/pdf/BIADEM_Abschlussbericht.pdf
20.
KallyZ.CherryD. L.HowlandS.VillarruelM. (2014). Asian Pacific Islander dementia care network: A model of care for underserved communities. Journal of Gerontological Social Work, 57, 710-727. doi:10.1080/01634372.2013.854856
KöhlerL.Meinke-FranzeC.HeinJ.FendrichK.HeymannR.ThyrianJ.HoffmannW. (2014). Does an interdisciplinary network improve dementia care? Results from the IDemUck-study. Current Alzheimer Research, 11, 538-548. doi:10.2174/1567205011666140618100727
23.
KollerD.EiseleM.KaduszkiewiczH.SchonG.SteinmannS.WieseB.. . . van den BusscheH. (2010). Ambulatory health services utilization in patients with dementia—Is there an urban-rural difference?International Journal of Health Geographics, 9, Article 59. doi:10.1186/1476-072X-9-59
24.
LamuraG.MnichE.NolanM.WojszelB.KreversB.MestheneosL.DöhnerH. (2008). Family carers’ experiences using support services in Europe: Empirical evidence from the EUROFAMCARE study. The Gerontologist, 48, 752-771. doi:10.1093/geront/48.6.752
25.
Laporte UribeF.HeinrichS.Wolf-OstermannK.SchmidtS.ThyrianJ.Schäfer-WalkmannS.HolleB. (2016). Caregiver burden assessed in dementia care networks in Germany: Findings from the DemNet-D study baseline. Aging & Mental Health, 20, 1-12. doi:10.1080/13607863.2016.1181713
26.
Lemieux-CharlesL.ChambersL. W.CockerillR.JaglalS.BrazilK.CohenC.. . . SchulmanB. (2005). Evaluating the effectiveness of community-based dementia care networks: The Dementia Care Networks’ study. The Gerontologist, 45, 456-464. doi:10.1093/geront/45.4.456
27.
MorganD.InnesA.KosteniukJ. (2011). Dementia care in rural and remote settings: A systematic review of formal or paid care. Maturitas, 68, 17-33. doi:10.1016/j.maturitas.2010.09.008
28.
ReichertM.KoehlerK.LeveV.ZimmerB. (2011). Evaluating service networks for people with dementia and their informal caregivers: The “EVIDENT”-project. The Gerontologist, 51, 356.
29.
SchäufeleM.KöhlerL.TeufelS.WeyererS. (2008). Betreuung von demenziell erkrankten Menschen in Privathaushalten: Potentiale und Grenzen [Caregiving for people with dementia living at home: potentials and limitations]. In SchneeklothU.WahlH.-W. (Eds.), Selbstständigkeit und Hilfebedarf bei älteren Menschen in Privathaushalten: Pflegearrangements, Demenz, Versorgungsangebote (2nd ed., pp. 103-143). Stuttgart, Germany: Kohlhammer.
Van MierloL. D.MeilandF. J.Van HoutH. P.DroesR. M. (2014). Towards personalized integrated dementia care: A qualitative study into the implementation of different models of case management. BMC Geriatrics, 14, Article 84. doi:10.1186/1471-2318-14-84
33.
von KutzlebenM.ReutherS.DortmannO.HolleB. (2015). Care arrangements for community-dwelling people with dementia in Germany as perceived by informal carers—A cross-sectional pilot survey in a provincial–rural setting. Health and Social Care in the Community, 24, 283-296. doi:10.1111/hsc.12202
34.
WimoA.ReedC. C.DodelR.BelgerM.JonesR. W.HappichM.. . . HaroJ. M. (2013). The GERAS Study: A prospective observational study of costs and resource use in community dwellers with Alzheimer’s disease in three European countries—Study design and baseline findings. Journal of Alzheimer’s Disease, 36, 385-399. doi:10.3233/JAD-122392
WubbelerM.ThyrianJ. R.MichalowskyB.HertelJ.Laporte UribeF.Wolf-OstermannK.. . . HoffmannW. (2015). Nonpharmacological therapies and provision of aids in outpatient dementia networks in Germany: Utilization rates and associated factors. Journal of Multidisciplinary Healthcare, 8, 229-236. doi:10.2147/jmdh.s80560
