This study was designed as a pilot study to see whether electronic patient-reported outcome measures using computer adaptive technology (CAT) could be successfully implemented in clinics caring for chronic kidney disease (CKD) and peritoneal dialysis (PD) patients. The results demonstrate the feasibility of using CAT on an iPad to assess the symptom burden and health-related quality of life of both PD and CKD patients.
FinkelsteinFOArsenaultKLTaverasA, et al.Assessing and improving the health-related quality of life of patients with ESRD. Nat Rev Nephrol2012; 8: 718–724.
2.
WeisbordSFriedLFMorMK, et al.Renal provider recognition of symptoms in patients on maintenance hemodialysis. Clin J Am Soc Nephrol2007; 2(5): 960–967.
3.
KligerAS. Quality measures in dialysis: time for a measured scorecard. Clin J Am Soc Nephrol2016; 11(2): 363–384.
4.
FinkelsteinFOFinkelsteinSH. Time to rethink our approach to patient-reported outcome measures for ESRD. Clin J Am Soc Nephrol2017; 12: 1885–1888.
5.
BrownEABlakePDongJ, et al.International Society for Peritoneal Dialysis practice recommendations: prescribing high-quality goal-directed peritoneal dialysis. Perit Dial Int2020; 40(3): 349–352.
6.
BaschE. Patient-reported outcomes—harnessing patients’ voices to improve clinical care. N Engl J Med2017; 376: 105–108.
7.
BaschEDealAMKrisMG, et al.Symptom monitoring with patient-reported outcomes during routine cancer treatment: a randomized controlled trial. J Clin Oncol2016; 34(6): 557–652.
8.
GibbonsRDWeissDJFrankE, et al.Computerized adaptive diagnosis and testing of mental health disorders. Annu Rev Clin Psychol2016; 12: 83–104.
9.
GeerardsDPusicAHoogbergenM, et al.Computerized quality of life assessment: a randomized experiment to determine the impact of individualized feedback on assessment experience. J Med Internet Res2019; 21(7): e12212.
10.
MichelPBaumstarckKLanconC, et al.Modernizing quality of life assessment: development of a multidimensional computerized adaptive questionnaire for patients with schizophrenia. Qual Life Res2018; 27: 1041–1054.
11.
WeisbordSDFriedLFArnoldRM, et al.Development of a symptom assessment instrument for chronic hemodialysis patients: the Dialysis Symptom Index. J Pain Symptom Manage2004; 27(3): 226–240.
12.
BrownEAJohanssonLFarringtonK, et al.Broadening Options for Long-Term Dialysis in the Elderly (BOLDE): differences in quality of life on peritoneal dialysis compared to haemodialysis for older patients. Nephrol Dial Transplant2010; 25: 3755–3763.
13.
CabreraVHanssonJKligerAS, et al.Symptom management of the patient with chronic kidney disease: the role of dialysis. Clin J Am Soc Nephrol2017; 12: 687–693.
14.
HedayatiSSYalamanchiliVFinkelsteinFO. A practical approach to the treatment of depression in patients with chronic kidney disease and end-stage renal disease. Kidney Int2012; 81: 247–255.
15.
HedayatiSMinhajuddinRTotoD. Prevalence of major depressive episode in CKD. Am J Kidney Dis2009; 54: 424–432.
16.
CohenSDCukorDKimmelPL. Anxiety in patients treated with hemodialysis. Clin J Am Soc Nephrol2016; 11: 2250–2255.
