The purpose of this descriptive exploratory study was to explore the meaning of being a sibling using Parse’s human becoming perspective. Twelve children between 5 and 15 years of age with a younger sibling with a cleft lip and palate or Down Syndrome participated. Through semi-structured interviews and the use of art, children talked about their experiences. Major themes portrayed the complex and paradoxical nature of being a sibling. The themes also revealed that having a sibling with special circumstances includes some unique opportunities and challenges. The finding of this study is the descriptive statement, being a sibling is an arduous charge to champion close others amid restricting-enhancing commitments while new endeavors give rise to new possibilities. Implications for nursing are discussed in the context of understanding being a sibling.
Albrecht, G. L., & Devlieger, P. J. (1999). The disability paradox: High quality of life against all odds. Social Science & Medicine, 48, 977-988.
2.
The American heritage talking dictionary of the English language (3rd ed.). (1994). New York: Houghton Mifflin.
3.
Andersson, E. (1997). Relations in families with a mentally retarded child from the perspective of the siblings. Scandinavian Journal of Caring Sciences, 11, 131-138.
4.
Baumann, S. (1999a). Art as a path of inquiry. Nursing Science Quarterly, 12, 106-110.
5.
Baumann, S. (1999b). The lived experience of hope: Children in families struggling to make a home. In R. R. Parse, Hope: An international human becoming perspective (pp. 191-210). Boston: Jones & Bartlett.
6.
Baumann, S., & Braddick, M. (1999). Out of their element: Fathers of children who are not the same. Journal of Pediatric Nursing, 14, 369-377.
7.
Benson, B. A., Gross, A. M., & Kellum, G. (1999). The siblings of children with craniofacial anomalies. Children’s Health Care, 28, 51-68.
8.
Brody, G. H., & Stoneman, Z. (1996). A risk-amelioration model for sibling relationships: Conceptual underpinning and preliminary findings. In G. H. Brody (Ed.), Sibling relationships: Their cause and consequences (pp. 231-247). Norwood, NJ: Ablex.
9.
Cuskelly, M., Chant, D., & Hayes, A. (1998). Behaviour problems in the siblings of children with Down Syndrome: Associations with family responsibilities and parental stress. International Journal of Disability, Development & Education, 45, 295-311.
10.
Derouin, D., & Jessee, P. O. (1996). Impact of a chronic illness in childhood: Siblings’perceptions. Issues in Comprehensive Pediatric Nursing, 19, 135-147.
11.
Downey, M. (1986). A blessed weakness: The spirit of Jean Vanier and l’Arche. New York: Harper & Row.
12.
Dunn, J. (1999). Making sense of the social world: Mindreading, emotion and relationships. In P. D. Zelazo, J. W. Astington, & D. R. Olson (Eds.), Developing theories of intention: Social understanding and self-control (pp. 229-242). Mahwah, NJ: Lawrence Erlbaum.
13.
Dunn, J. (2000). State of the art: Siblings. The Psychologist, 13, 244-248.
14.
Fisman, S., Wolf, L., Ellison, D., & Freeman, T. (2000). A longitudinal study of siblings of children with chronic disabilities. Canadian Journal of Psychiatry, 45, 369-375.
15.
Fisman, S., Wolf, L., Ellison, D., Gillis, B., Freeman, T., & Szatmari, P. (1996). Risk and protective factors affecting the adjustment of siblings of children with chronic disabilities. Journal of the American Academy of Child & Adolescent Psychiatry, 35, 1532-1541.
16.
Girard, R. (1996). The Girard reader (J. G. Williams, Ed.). New York: Crossroad.
17.
Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. Englewood Cliffs, NJ: Prentice-Hall.
18.
Kowal, A., & Kramer, L. (1997). Children’s understanding of parental differential treatment. Child Development, 68, 113-126.
19.
Mandleco, B., Olsen, S., Robinson, C., Marshall, E., & McNeilly-Choque, M. (1998). Social skills and peer relationships of siblings of children with disabilities: Parental and family linkages. In P. Slee & K. Rigby (Eds.), Children’s peer relations: Current issues and future directions (pp. 106-120). London: Routledge.
20.
McHale, S. M., & Pawletko, T. (1992). Different treatment of siblings in two family contexts: Implications for children’s adjustment and relationship evaluations. Child Development, 63, 68-81.
21.
Mendelson, M. J., de Villa, E. P., Fitch, T. A., & Goodman, F. G. (1997). Adult expectations for children’s sibling roles. International Journal of Behavioral Development, 20, 549-572.
22.
Meyer, D. J., Vadasy, P., & Vance, R. S. (1996). Living with a brother or sister with special needs: A book for sibs (Rev. ed.). Seattle, WA: University of Washington Press.
23.
Morrison, L. (1997). Stress and siblings. Pediatric Nursing, 9, 26-27.
24.
Murray, J. S. (1998). The lived experience of childhood cancer: One sibling’s perspective. Issues in Comprehensive Pediatric Nursing, 21, 217-227.
25.
Murray, J. S. (1999). Siblings of children with cancer: A review of the literature. Journal of Pediatric Oncology Nursing, 16, 225-234.
26.
Murray, J. S. (2000). Attachment theory and adjustment difficulties in siblings of children with cancer. Issues in Mental Health Nursing, 2, 149-169.
27.
Newman, J. (1996). The more the merrier? Effects of family size and sibling spacing on sibling relationships. Child Care, Health and Development, 22, 285-302.
28.
Nichols, M. P., & Schwartz, R. C. (1998). Family therapy: Concepts and methods (4th ed.). Boston: Allyn & Bacon.
29.
Parse, R. R. (1981). Man-living-health: A theory of nursing. New York: Wiley.
30.
Parse, R. R. (1987) Parse’s man-living-health theory of nursing. In R. R. Parse, Nursing science: Major paradigms, theories, and critiques (pp. 181-204). Philadelphia: Saunders.
31.
Parse, R. R. (1998). The human becoming school of thought: A perspective for nurses and other health professionals. Thousand Oaks, CA: Sage.
32.
Parse, R. R. (2001). Qualitative inquiry: The path of sciencing. Sudbury, MA: Jones and Bartlett.
33.
Pollack, E. G. (2002). The children we have lost: When siblings were caregivers, 1900-1970. Journal of Social History, 36, 31-61.
34.
Seligman, M., & Darling, R. B. (1997). Ordinary families, special children: A systems approach to childhood disability (2nd ed.). New York: Guilford Press.
35.
Senel, H. G., & Akkok, F. (1995). Stress levels and attitudes of normal siblings of children with disabilities. International Journal for the Advancement of Counseling, 18, 61-68.
36.
Silver, E. J., & Frohlinger-Graham, M. J. (2000). Brief report: Psychological symptoms in healthy female siblings of adolescents with and without chronic conditions. Journal of Pediatric Psychology, 25, 279-284.
37.
Skidmore, K. L. (1996). Childhood cancer, families and siblings. (Doctoral dissertation, Loyola University, 1996). Dissertation Abstracts International, 56(12B), 7056-7056.
38.
Stawski, M., Auerbach, J. G., Barasch, M., Lerner, Y., & Zimin, R. (1997). Behavioral problems of children with chronic physical illness and their siblings. European Child and Adolescent Psychiatry, 6, 20-25.
39.
Terzo, H. (1999). Evidence-based practice: The effects of childhood cancer on siblings. Pediatric Nursing, 25, 309-311.
40.
Vanier, J. (1997). Our journey home: Rediscovering a common humanity beyond our differences (M. Parham, Trans.). Maryknoll, NY: Novalis.
41.
Williams, P. D. (1997). Siblings and pediatric chronic illness: A review of the literature. International Journal of Nursing Studies, 34, 312-323.
